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Dementia & Alzheimer's

Stroke then violent then self harm

18 replies

wonderstuff123 · 23/04/2021 20:51

I have posted this in elderly parents but thought it might be helpful here. Does my scenario sound familiar to anyone else who has experienced something similar?
I can't believe in writing the following but here goes.
My 75 year old dad was taken into hospital on Mon 12th April with a stroke. He came home last Sat for a few days and then went back into hospital for a procedure to clear a artery that was 90% blocked with plaque. Whilst he was at home he was massively confused and very unpleasant to my mum. I told her this wasn't uncommon with stroke patients and that hopefully he'd have his procedure then begin recovery.

He had his procedure Weds,all went well, physically ok.Confusion set in yesterday when ringing to ask my mum for clothes. Then this morning,when he was meant to be discharged,we got a phonecall saying he'd been violent on the ward,hitting staff with his crutches,accusing my mum of having affairs with the doctors. The doctors also assessed him to lack capacity and apply a DOLS to him. The nurse called mum later and she and they both agree that dad can't come home the way he is as mum is too scared of his aggression and that the best thing was for him to go to a care home for a period to see if his aggression calmed down. The doctor did say at this point he'd calmed down and was very apologetic but was saying a voice in his head told him to be violent.

My dad's always been quite unstable and abusive. But this a whole other level. I've often said I think he has mental health problems but they weren't talked about in our family and he wouldn't entertain the idea of even discussing them if it was broached. My family was a brush it under the carpet type when we were growing up.

The nurse told mum to call again this evening to see how he was. Apparently he asked to go for a walk around the ward to stretch his legs,but then returned to his bed and started to cut his wrists with a knife. My mum then decided to go and see him to see if she could calm things down.

I feel totally numb. Depression is rife in our family but never to this level. My dad is a staunch Catholic and I never would have dreamed he'd do something like this as it's so against his religion. I don't even know where to begin. They're talking about running tests for schizophrenia because the nurse said this is not a normal side effect of stroke.

Update: My mum went to see him and he was sobbing as he'd been told what he did and was so ashamed. My heart is broken hearing that.

Can anyone offer any support or advice. I literally feel like I'm in hell and just when I've reached rock bottom,this happens.

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NutellaEllaElla · 23/04/2021 21:03

Oh you poor thing, i'm so sorry to read this it sounds incredibly hard. I'm glad though, that you have the support of the hospital and they agree that he can't come home. That is a blessing because you/ your mum couldn't manage him at home. There's usually a priest or someone in the hospital for spiritual care and he might appreciate a visit from them?

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wonderstuff123 · 23/04/2021 21:13

Thanks for your response. My mum went to see him and said he was in bits about his actions and that he didn't know why he did them. She's told him he can't come home until they know what's wrong with him. I'm worried he's going to mask it though, she'll have him home and then something really awful will happen.

Mums old colleague who works at the hospital said she went to see him the night of his stroke and the day after and is certain he didn't know who she was,despite him saying he did. She said in her personal opinion,it seemed like dementia and that he had that blank look in his eyes. The CT scan also showed some white patches on the brain. But surely the MRI should have picked that up and we'd have been told?

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NutellaEllaElla · 23/04/2021 21:27

Do you know anything about Dementia, Alzheimers, how strokes play into it all?

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wonderstuff123 · 23/04/2021 21:32

No,this is the thing,it all feels like we're grasping in the dark.
I know stroke can effect your personality and have read it can cause delusions...so could be that.
My mum's friend says the CT scan showed white patches on the brain she thinks it's dementia, I'd tend to agree but surely the MRI should have picked it up...so could be that.


Could be confusion caused the the GA from his procedure,we were told he'd be more confused after his procedure.....could be that.

I'm just exhausted and heart broken. I don't want him to feel ashamed of what he's doing when he can't help it

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BryanAdamsLeftAnkle · 23/04/2021 21:42

He might possibly have delirium. Have they checked for that. I frequently have the most beautiful patients who are so gentle and calm and the next day they would gladly beat you up. We don't take it personally and the sudden change in behaviour is often met with that question. Have they tested his urine for infection? It's very likely something they have already thought of. Strokes do change behaviour quite a bit as well.

Huge hugs. Your poor mum.. Glad he's being kept for assessment. She has alot of stress to deal with

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NutellaEllaElla · 23/04/2021 21:43

Ok. So Dementia is an umbrella term like Cancer is an umbrella term. Like you get different types of Cancer, you get different types of Dementia.

Alzheimer's is the kind where you see gradual memory loss. This gradually deteriorates over time.

Vascular dementia is where a physical event such as a stroke or heart attack causes brain changes which can include memory loss but depends on where in the brain the stroke is. After the event, you may see a deterioration in brain functioning but it won't change gradually over time. It will stay the same until/if another event happens. You can have one stroke, never have another one and won't necessarily be diagnosed with Dementia as it isn't deteriorating. So maybe they can't diagnose it at this point.

You can get a mix of the two types. There are other types too but Vascular seems most relevant to your dad.

With strokes, you can see them on scans. Diagnosis of Dementia requires him to have tests on his thinking as well - they usually start with "What day/date/month/year is it" "Where are you right now" and other things. I hope that helps somewhat.

Of course you're devastated. It's so sudden and drastic. Usually the recovery happens most in the early days and it sounds as if he has made some good progress?

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wonderstuff123 · 23/04/2021 21:45

I asked today when I spoke to the nurse at 13.30 for them to check his urine and the nurse said she would. I presume she'd have mentioned if that was it when mum went into the ward at 18.30 unless she was still waiting for the results.

Would delirium cause reactions to that extent? He was devastated about being violent and cutting himself when they told him,he said it's like something took over him and he can't control it. I'm so scared for him

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wonderstuff123 · 23/04/2021 21:51

@NutellaEllaElla

Ok. So Dementia is an umbrella term like Cancer is an umbrella term. Like you get different types of Cancer, you get different types of Dementia.

Alzheimer's is the kind where you see gradual memory loss. This gradually deteriorates over time.

Vascular dementia is where a physical event such as a stroke or heart attack causes brain changes which can include memory loss but depends on where in the brain the stroke is. After the event, you may see a deterioration in brain functioning but it won't change gradually over time. It will stay the same until/if another event happens. You can have one stroke, never have another one and won't necessarily be diagnosed with Dementia as it isn't deteriorating. So maybe they can't diagnose it at this point.

You can get a mix of the two types. There are other types too but Vascular seems most relevant to your dad.

With strokes, you can see them on scans. Diagnosis of Dementia requires him to have tests on his thinking as well - they usually start with "What day/date/month/year is it" "Where are you right now" and other things. I hope that helps somewhat.

Of course you're devastated. It's so sudden and drastic. Usually the recovery happens most in the early days and it sounds as if he has made some good progress?

Thank you for this. Yes, vascular dementia was mentioned when I called the Stroke Association on Monday to ask for advice. So that's can't be diagnosed on a MRI but rather through assessment,is that correct?

If that's so,I'm worried he'll refuse to do the assessments. A doctor tried to do a formal mental capacity test on him on Sat but he told her to stop asking him silly questions. In my opinion, he was masking the fact he couldn't answer the questions.

My main concern is the what he says are the things he's doing that he can't control - the violence and the self harm. Would you mind sharing what you think about that?
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BryanAdamsLeftAnkle · 23/04/2021 21:59

When I worked on a stroke ward I had been a minister who was the loveliest man ever, but often lashed out. He'd have been horrified if he knew. He had these beautiful moments where he was gentle and mild mannered and sadly days where he wasn't.

I had the most adorable older lady who became very combative. It would take 5 to attend to her personal care. Then once she had a bowel movement was been to being gentle and we could use 2 members of staff. The 5 sounds brutal but 2 would hold her hands and talk gently to her whilst we quickly did what was required as quickly as possible so as not to distress her too much. I make sure I keep a track of bowel movements very carefully.

It's still early days for your dad. He will be frightened as well by all the changes. Can you take in familiar things like photos, a blanket from home?

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NutellaEllaElla · 23/04/2021 22:05

As a PP says, it's early days. He's frightened, might be finding it difficult to process his emotions and think straight. No one knows how they will react if something like this happens.

Sometimes the brain can struggle to inhibit things that we might get impulses to say or do, but wouldn't usually actually do them. That can be affected by stroke for sure.
Don't worry if he refuses to do tests, they can assess him less formally.

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NutellaEllaElla · 23/04/2021 22:06

The word for that is disinhibited. For some people that might be saying something inappropriate for example.

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wonderstuff123 · 24/04/2021 07:37

Yes he's defo become more inhibited and I know that's common. The day after he came back home for a few days,he was obsessed with sex. And for a buttoned up,Irish man in his 70s, that is totally out it character. So that part is defo the stroke.

Not sure about taking anything in,I'll suggest to mum as she's going to see him on the ward every day for a few hours as long as he doesn't become violent. I'm going to take a few days off this as it all hit me last night. I think the only way I can deal with this is put it into a box, separate from my normal life and deal with it when I have to after the weekend. My dad and I didn't have the best relationship but this is killing me otherwise.

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wonderstuff123 · 24/04/2021 07:39

Sorry, just one further question. Do you think there's any chance of him mellowing out/getting on meds that might help the outbursts? I think my mum can cope with anything but violence and aggression

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NutellaEllaElla · 24/04/2021 07:44

Morning, you do what you need to OP. Look after yourself. Just because he's had a stroke, doesn't mean he was the perfect dad, perfect man etc.

No need to apologise, if I can help i'm happy to but of course the Drs are the best people to ask your questions to. My thoughts on your last question is that it's hard to say. The good news is that at this early stage, things could change a lot. If there is a UTI or other physical health difficulty that could well be making things worse and yes, treating that will likely help. Sedatives are available but hopefully are not the first port of call.

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MereDintofPandiculation · 24/04/2021 08:00

Yes, vascular dementia was mentioned when I called the Stroke Association on Monday to ask for advice. So that's can't be diagnosed on a MRI but rather through assessment,is that correct? What I was told was that dementia isn't a disease like measles, it's a conglomeration of symptoms. So no matter what the level of damage revealed on an MRI, it's not dementia unless the functioning of the brain reveals it to be so. The full assessment for that isn't just the test we all know (Count back from 100 in 7s, draw a clock face etc), it's a long and detailed assessment over perhaps 3 or 4 hour-long sessions, involving all sorts of cognitive tests.

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NutellaEllaElla · 24/04/2021 08:01

The tests don't have to be that long and detailed. It depends, case by case.

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OnthePiste · 24/04/2021 08:28

My mum was diagnosed with Alzheimer's without doing the long cognitive tests. They tried on several occasions to do the Addenbrookes test but she just could not concentrate for that long.

Sorry for what your poor dad is going though @wonderstuff123. I think meds could help with his behaviour but it will probably mean him being assessed for a few weeks first. Do not agree to him coming home until you have some answers and a treatment plan.

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MereDintofPandiculation · 24/04/2021 09:35

I guess that if you score low enough on the mini-test, there's no need to test any further. Probably no need to test at all.

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