Really need Universal Credit advice, please help

[KylieAndBaby01]

Im on universal credit (low income)

My daughter became sick with this really really rare illness, it took years to get diagnosed.

She lost her job because of this and is unable to work, and ive been supporting her

Were in a difficult situation because

She is not sick enough yet for pip she believes, But also too sick to work. Plus with us waiting for treatment, doctor says with it, theres a chance her health will improve and she will be able to work again

My question is,

Is she considered a non dependant adult? Because she doesnt pay rent and i support her?

And how will this affect my money?

right now Universal credit counts her as paying the rent.

Three people on tenancy agreement, 1400 rent, universal credit assumes she pays her share and splits into 3

Why does she not have her own UC claim? How old is she? if she had her own UC claim she will not get paid any rent element but would still be eligible for a standard element and once assessed for work capability maybe the LCWRA element. Then she can contribute to rent from this. The only thing excluding her from claiming would be savings in excess of 16k.

Tell them the truth

If she's named on the tenancy you can't make her into a non dependent for UC. She needs her own UC claim and to be assessed to see if she can get the lcwra element of UC (to start that process she needs to hand in fit notes from her GP). She may also want to claim pip, but pip has nothing to do with being well enough to work - it's all about what care needs she has.

If her health improves later, she can report the change to UC/pip - but for now it's probably best to claim based on how she's affected at the moment

You might want help from Citizens Advice.

She absolutely needs to put in her own UC claim asap.

Are you caring for her most of the time or are you working yourself? You might be able to claim carer's allowance.

She is 28

I thought to claim UC you have to be/expected to be looking for work?

She tried, but she cant even work 1 hour a week right now

Op says her daughter is not getting PIP so she wouldn't be able to claim carers allowance.

Not true at all. She can claim UC if she is unfit for work. Or she may be able to claim new style ESA if she has been working and paying NI contributions over the past 2-3 years. People aren't expected to live off relatives when they become too unwell to work. New style ESA could possibly be backdated for 12 weeks if her GP would give her a backdated sick note ? This way she could claw back some of the money she has missed out on by not claiming anything.

How long has this been going on? You says it’s taken years for a diagnosis so have you been struggling to support her for years?

She needs to pull her finger out and start claiming for herself if she has medical evidence that she can’t work.

No, OP says she hasn't applied for PIP because she doesn't think she is eligible. She might be able to claim. She needs to get advice to ensure she is claiming everything she can if she's that unwell.

She lost her job 4 years ago so not entitled to esa unfortunatly

if she has medical letters and diagnoses she can apply for both pip and universal credit. She will have an assessment for the UC and then be put into a group of not being able to work . She can’t live off you

Ok well she should put a claim in for UC asap, submit a sick note and wait to be assessed for work capability. She may be asked to attend some work commitment meetings whilst waiting to be assessed but could request these be done over the phone and she will just need to explain the situation. After 29 days of handing in sick notes she should be sent a UC50 form to complete to detail her health.

Yes, a few years

We didnt think and we were told she is not entitled to anything

Especially since she had no diagnosis and Drs didnt know whats wrong with her until a few months ago

It isnt the diagnosis - or lack of thats the issue as far as UC & PIP are concerned, its how the person is affected.

Eg the issue is that Mr Claimant cant walk, not why

A friend on pip is saying she and her ex husband being elderly with their many multiple severe very visible illnesses struggled to get pip and were rejected at first and had to fight at tribunal, theres no way a young person with an invisible illness will be accepted

That's not true fortunately.
Sometimes it can be a battle, yes, but the illness doesn't have to be visible for LCWRA to be awarded.
Your daughter should put in a claim for UC as soon as possible. If she's on the tenancy she'll get her share of the rent as housing costs.
And definitely explore PIP too.

You should start a UC claim for your daughter and get a fit note from the GP that says she is unable to work. This will trigger a health assessment for UC which if accepted will turn off work commitments.

She should also make a claim for PIP, ignore what other people say. Citizens Advice can help with filling in forms.