Interstitial cystitis as covid vaccine side effect

Schmutter · 08/04/2023 14:46

No. hth.

over50andfab · 08/04/2023 14:51

IC aka painful bladder syndrome is a blanket diagnosis. Depending on what’s causing your symptoms anything that elicits an immune response might exacerbate other issues whether it’s a vaccine or an illness. Don’t suppose you’re menopausal age OP as might be related to urogenital atrophy.

Notegoat · 08/04/2023 14:52

No.

Have you changed your routine since lockdown? Lots of people have ended up working from home part/full time and that may have changed your drinking habits and loo breaks.

blephly · 08/04/2023 17:15

Clairerk · 08/04/2023 14:45

I have suffered ic on and off for a few years. But now wondering if the covid vaccine is causing more aggressive and long lasting flare ups. Anyone else thinking this?

This isn't something that has been flagged by post-marketing surveillance - which has been extensive, is ongoing, and is well powered to detect even rare side effects.

As PPs have said IC is a diagnosis of exclusion. If you're having worsening of symptoms it would be worth seeing a specialist.

I think there's real harm in ascribing everything now to the COVID vaccines (or long COVID).

AreYouVeryAnti · 09/04/2023 21:46

If you have a look at UKC summary of MHRA reports you'll see there are reports of this (12 for AstraZeneca, 1 Moderna, 6 Pfizer) https://yellowcard.ukcolumn.org/yellow-card-reports#[object%20Object]. These are just reports so vaccine may not have caused the issue, correlation doesn't mean causation. But also there is probably some degree of under-reporting. Also UKC is generally seen as v dodgy on Mumsnet but it looks like all they've done here is put the MHRA yellow card data (a huge pdf) in a searchable format, but I haven't independently verified this. So I guess in summary... can't say for sure but it looks like it's within the realms of possibility. Hope you get better soon 💐

bronzepig · 09/04/2023 22:10

AreYouVeryAnti · 09/04/2023 21:46

If you have a look at UKC summary of MHRA reports you'll see there are reports of this (12 for AstraZeneca, 1 Moderna, 6 Pfizer) https://yellowcard.ukcolumn.org/yellow-card-reports#[object%20Object]. These are just reports so vaccine may not have caused the issue, correlation doesn't mean causation. But also there is probably some degree of under-reporting. Also UKC is generally seen as v dodgy on Mumsnet but it looks like all they've done here is put the MHRA yellow card data (a huge pdf) in a searchable format, but I haven't independently verified this. So I guess in summary... can't say for sure but it looks like it's within the realms of possibility. Hope you get better soon 💐

Also UKC is generally seen as v dodgy on Mumsnet

UK column has been widely discredited by the scientific & medical community due to the vaccine disinformation they push, and the people they promote on their website who have used the pandemic to profit from disinformation @AreYouVeryAnti

Worsening of IC occurs at a background rate in the general population - before 2020 a certain number of people each year would report these symptoms. Given that almost everyone is vaccinated in the UK, nearly everyone who now reports worsening of symptoms will be vaccinated.

As has been previously posted, vaccine post-authorisation safety has been widely scrutinised and continues to be - and due to the sheer number of doses given this allows statistical power to detect even very rare effects. A number of side effects have now been established to be causal. Currently there is no evidence to suggest IC, or worsening of IC is one of them.

@Clairerk If it were me I'd focus energies on getting symptoms assessed and treated by a specialist, rather than attributing them to a vaccine that is unlikely to have contributed.

I also have IC, which has got worse over the last year, and found pelvic floor physio very helpful