Has anybody had or still got long Covid

[Yesnoormaybe]

Just been diagnosed with long covid. Does anybody have any idea on how long it lasts. How did you cope with it. Just feeling so fed up with feeling ill. TIA

Caught it Christmas 2020. Still got Long Covid. Better but only able to work 5 and a half hours per day. Bit bored with it now. Was going better but had a chest infection before Christmas which set me back 6 months or more.

I had a crying fit 2 weeks ago. Made be bedbound for 2 weeks. My brain was just like glue. Headaches too.

Month 9 so sick of it. There’s no way l could work, l can’t even leave the house independently. Dh had to pull me up the stairs on Sunday.

Bored shitless of rest.

@User287264
My doctor referred me to the Long Covid Clinic. The 1st appointment was less than impressive, but I think that they were overwhelmed at that point. I now have an open appointment for 6 months if I'm worried about anything. There is no treatment right now, though they trialled me on Fomatadine and Loratadine in case that helped. It didn't....The most useful thing for me is the fact that I've had blood tests etc which show that there is nothing 'nasty' going on and it is Long Covid. And the video calls with the ME clinicians and other sufferers made me feel less isolated when I was feeling very discouraged and sad. I hope that you feel better soon.

@ArseInTheCoOpWindow i totally get this! You are not alone.

Pacing has been helpful for me plus other bits. I’m actually about to online shortly for a yoga nidra session (lying down and resting with other ill people!) with the 360 mind body soul group - look it up! PP mentioned it too. It’s run by Suzy Bolt. It reduces the feelings of being alone!

Thank you. I’ll look that up. Makes a change from lying on the sofa listening to audio books.

I caught covid in March 2020, massive viral load as caring for 2 sick secondary aged kids who brought it home from school. I didnt know what it was or how to protect myself at the time. Took me 2 years to get over it, but Im not what I was before it, not sure if I ever will be. But nonetheless I now work FT and manage most everything I need to, but I do get very tired and rest a lot on weekends. What helped me most was 20 sessions of oxygen therapy in a hyperbaric chamber at 33ft depth at my local MS centre. I also felt that high doses of ubiquinone (COQ10) helped. For me it was all about mitochondria repair.

@Snippysocks - those 2 antihistamines did nothing for me either - but the Ketotifen and the Famotidine was a game changer. Got me well enough to go back to work. Ask if you can try it. After 2 weeks I felt better on this.

Hi @Riverslick
So the Fomatadine together with Ketotifen combination worked when Fomatadine combined with Loratadine didn't?
If so, I'll contact the Long Covid clinic and talk to them about it. Please can you give me the amounts?
Many thanks!

Yes, resigned to having it long term. Not recovering but I am getting better at managing my symptoms.

Thanks so much ❤️ We’re you quite incapacitated by it?

I had it for months. But now completely recovered. An app called Curable really helped me I used the advice on that as well as the exercises, all aimed at reducing tension, calming the nervous system.I learned from the app that lots of rest was essential . No pacing, no little bits of exercise, just rest, in bed, as much as possible, until feeling pretty much 80% better. Then a tiny bit of walking, a bit of yoga, but much much less movement and exercise than was possible, no pushing myself, if I did that I crashed. Avoided stress as much as poss, that made me crash too. I was fortunate, I had sick pay and a great partner and on the whole friends who were supportive and tried to understand how I felt. Still can’t believe I am completely back to how I was before covid, fit and healthy, recovery is almost unimaginable when you are in the middle of suffering and the loneliness, the brain fog, the exhaustion. So glad I found something that helped me and hope it might help others.

Had covid in first wave end of March 2020, took me a year to recover to a level that felt ok. I could not even manage to walk to the end of my road for about 4 months. I’m in my fifties but before that I could easily hike 10 miles in the Peak District. Now I can manage about 6 miles, on flat terrain I can do 10. What I have found is that I have had more illness and worse illness since then than any time in my life. I’m sure my immune system has been affected.

I also had it March 2020. Made real strides in 2022 and 2023 but recently symptoms have returned, some are severe and unpleasant. I think the worst thing this time is that my MH has taken a nosedive as I think I've realised that, if I'm not recovered after 4 years, then it's unlikely I ever will be, it's been hard. I've lost interest in all my hobbies, seeing friends etc, I still work part time (wfh) but am losing interest I. That if I'm honest. I just want to do gardening, go for walks when I can and read (when I can as the tinnitus and blurred vision makes that impossible sometimes). I'm a shell of the person I used to be.