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Original poster

CV and Antivirals

13 replies

Justwingingit2005 · 25/04/2022 20:56

My dad is cv, copd.
Tested postive today.
Feels poorly, he said it was like the time he had flu years ago.
I've rang 119 and registered his postive they told me to register him on panoramic trial or something similar which I have.
What happens now?

OP posts:
Cookerhood · 26/04/2022 08:20

They will contact him, assess his suitability on the phone. He will be randomised to no treatment or antivirals & if he gets the antivirals they will courier them to him. He then has to fill in an on line diary for 28 days.

thing47 · 26/04/2022 12:59

Everything @Cookerhood says with one small addition – they can alternatively suggest intravenous anti-virals, which would obviously require a hospital trip.

How well the system functions in terms of someone contacting your dad does seem to vary from place to place, hopefully your area will be one of the more efficient ones.

Scottsforsure281 · 26/04/2022 16:54

My experience was that the trial was closed as it was Bank Holiday, I had another text saying the local covid hub would be in touch within 24hours and to call 111 if they weren't. They didn't phone so 111 took my details and I had a phone call a few hours later.

I didn't need antivirals as my oxygen levels were good but they phoned me every day for 4 days to check I was still doing ok

Do you have an oximeter at home, if not you can buy them from boots or your gp might be able to supply one.

Scottsforsure281 · 26/04/2022 16:56

Sorry 119 not 111.

lazymum99 · 26/04/2022 17:43

contact his GP they will refer for anti virals. I did it this way and it worked impressively. In fact I tested positive on a Sunday, phoned 111 and they made me a phone appointment with my GP for the Monday morning. Discussed with GP, referred and got a call from a Covid Medicine Distribution Centre later that day. Within 24 hours the anti viral pills were delivered to my house.
this is in London if it makes any difference.

lazymum99 · 26/04/2022 17:43

Even if you got on the trial he could be given a placebo and that’s too risky

nether · 26/04/2022 17:58

OP says he's CV, not on the critically vulnerable list (severely immune compromised, and a few others, not even all the original CEV). From what OP describes, he wont be eligible for assessment by a CMDU, so PANORAMIC is the only way.

GPs cannot prescribe or recommend - all they can do is refer to CMDU if the patient has a condition that is on the list in the policy document. 119 can do that too.

lazymum99 · 26/04/2022 18:05

I am not CEV. I am on a biologic for psoriasis which compromises my immune system. So CV only. The GP referred me to the CMDU. I didn’t know 119 could do that or I would have phoned them. There is however a hugely long list of medications which interact with the one I was given so quite a few people must be turned down anyway. I was given choice of pills or infusion and chose pills

nether · 26/04/2022 18:39

lazymum99 · 26/04/2022 18:05

I am not CEV. I am on a biologic for psoriasis which compromises my immune system. So CV only. The GP referred me to the CMDU. I didn’t know 119 could do that or I would have phoned them. There is however a hugely long list of medications which interact with the one I was given so quite a few people must be turned down anyway. I was given choice of pills or infusion and chose pills

You have an IMID, and are on a biologic, so therefore are on the potentially eligible list.

IMID with active/unstable disease on corticosteroids, cyclophosphamide, tacrolimus, cyclosporin or mycophenolate.
IMID with stable disease on either corticosteroids, cyclophosphamide, tacrolimus, cyclosporin or mycophenolate.
IMID patients with active/unstable disease including those on biological monotherapy and on combination biologicals with thiopurine or methotrexate

It's not everyone at higher risk, its those with the specific conditions listed in the commissioning policy

Original poster
Justwingingit2005 · 26/04/2022 19:30

Thanks all.
My dad has copd, asthma and is on steroids daily for rheumatism.

So, he has been referred for a drip tomorrow of anti virals but he has improved dramatically over the last 12 hours. Does he still go for the drip? I have a number to ring incase of any changes.

OP posts:
nether · 26/04/2022 19:34

Justwingingit2005 · 26/04/2022 19:30

Thanks all.
My dad has copd, asthma and is on steroids daily for rheumatism.

So, he has been referred for a drip tomorrow of anti virals but he has improved dramatically over the last 12 hours. Does he still go for the drip? I have a number to ring incase of any changes.

As it's PANORAMIC, the yes definitely go.

Cookerhood · 26/04/2022 22:09

I don't think PANORAMIC is an infusion, it's just tablets.

nether · 27/04/2022 07:46

PANORAMIC isn't the medication, its the name of the clinical trial - op said in the opening post that he had been registered on it, and that they were selected for treatment the following day.

They want all sorts of patients, and use all types of antivirals. If those who thought they were getting better anyway all self-selected off the trial, that is not good for being representative.

And if by chance he's obtained then in lightning speed, outside the commissioning policy from a CMDU, its even more important that he attends, because something he reported must have been exceptionally worrying to have got him in to a system he doesn't qualify for, and then to have got the drugs (as some are screened out by CMDUs). And you don't want to muck about against medical advice in those circs, esp as so many people report worsening symptoms after day 3 - 5 (at which point it would become harder to get preventative antivirals before the window closes)

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