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Covid

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Is anyone being treated for long covid?

7 replies

KatyMac · 14/02/2022 15:42

What forms are the treatments please?

I already have Chronic Fatugue Syndrome and fibromyalgia and the GP says I won't benefit from any long covid treatments

So I just wanna check - all I have had in 25 years of illness is repeated cbt offers and instructions to "take it easy" and "eat well"

OP posts:
user1471509171 · 14/02/2022 15:44

I had breathing problems so was under respiratory team for long covid.

KatyMac · 14/02/2022 15:48

Mine are insomnia headaches exhaustion and lack of stamina, brain fog

I'm convinced my heart and breathing are different but they say it's normal (which implies what qas happening before wasn't normal)

And totally feeling shit

OP posts:
Sodiit · 14/02/2022 15:54

I had it, took about a year to get back to normal. Fatigue, at times couldn't sit up or speak properly. Muscle and joint pain. No treatment given just advice to look at ME sites/energy management.
My daughter has it currently, she's under the chronic fatigue service and long covid hub but no treatment just energy management advice

Januarypip · 14/02/2022 17:55

How do you deal with this mentally? I'm struggling with thoughts that there really isn't much treatment for the fatigue and it might take ages to get better Sad

Mossstitch · 14/02/2022 18:49

I'm an HCP in a hospital that has a long covid clinic and have asked my colleagues that work in it this question, due to having long covid myself after contracting covid at work exactly 23 months ago. Basically it is just explaining pacing strategies, which I'm sure you already know with your other conditions, and breathing techniques/exercises for those still struggling with breathlessness, so I'd say your GP is probably correct. What I will say, from my own experience, is that all the symptoms very, very gradually improve. Even this week I can tell symptoms I have had with my sinuses all that time have improved. I'm afraid my belief is that only time helps💐

KatyMac · 14/02/2022 22:17

Yes pacing spoons and doing less than you can manage

Mentally? Accept it, acknowledge that you aren't on top form; don't push yourself to do more

They have recently proved that graduated/increasing exercise is the worst thing you can do after pushing it for 20 years

Ask for help, accept it

I think people understand the idea of long covid better than they did ME/CFS 25 years ago

Spoons theory is so useful - remember getting dressed or having a shower or even eating take large amounts of energy; so allow for that energy expenditure in your plans

Chatting on the phone or here can be exhausting - plan for it

Do 50% of what you think you can - doctors often say 70% but I think people overestimate what they can manage

OP posts:
Bunnybunny1 · 16/02/2022 18:56

Following with interest.
I have a very busy life as a full time teacher and a five year old at home who requires lots of energy.
I’m needing to sleep in the day and am exhausted just after a bath.

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