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Long covid - how long until you finally felt better

50 replies

AColdDuncanGoodhew · 10/02/2022 19:40

I'm now four weeks post Covid and have been signed off work a further four weeks.

I'm asthmatic but very well controlled. Shortness of breath and chest pain/tightness started on day 3 and have never gotten better. I've had antibiotics and steroids, I've increased my inhalers, I've been off work but I feel I'm getting nowhere.

I'm trying to relax and just take each day at a time but I'm really frustrated with how little I'm able to do. I get up every day and get the kids to school but I need to use my inhalers a few times during that, then I spend most of the day at home on the couch. I can put on washings and hoover but I need to rest in between or use my inhaler.

I have an active job, im a nurse on my feet for 11hrs a day, I can't tolerate a mask at all just now despite wearing them throughout my career and more with the pandemic so I'm concerned about that. I couldn't work where I currently do without one, nor would I really want to.

I'm worried about how long this will potentially last, I know noone has the answer but just wondering how long people felt like this, how long they've been off work or if they've been able to go back.

OP posts:
Luckymummytoone · 11/02/2022 00:13

I could have written this post myself! Literally the same except I’m 5 weeks post covid.
Had antibiotics and 3 courses of steroids but still struggling now.
All my GP keeps saying is people can take up 12 weeks to feel better!
Hope you make some improvement soon x 💐

AColdDuncanGoodhew · 11/02/2022 00:50

12 weeks! Eugh!

Hope you feel better soon too, it's really awful isn't it CakeBrew

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MrsKippling · 11/02/2022 02:34

Can't answer when you'll start to feel better unfortunately. I had covid in November with very mild symptoms. Then in December I was floored with what I am told was a viral infection as all LFT's and PCR were negative. I ended up in hospital as my oxygen levels were 80 and I was really gasping for air. I was given an inhaler and steroids on the 31st of December but after a week there was no improvement so my GP prescribed me 2 rounds of antibiotics which did clear the cough up. I'm still extremely breathless, exhausted, brain fog and my GP has now said he believes it's probably long covid.

I am due back in work on Saturday after 6 weeks off (luckily 3 of those were pre-booked annual leave as I don't receive sick pay). The prospect of wearing a mask for 8 hours is really worrying me but I'm going to give it a go as being at home is really bad for my mental health.

Sorry for rabbiting on just feeling very anxious about it all. I hope you start to feel a little better soon, definitely don't push yourself to do too much too soon. Flowers

slavetothekittens · 11/02/2022 06:29

18 months for me to feeling properly better. Covid hit me badly but I was on furlough when I caught it so was able to rest when I needed to. The breathlessness was awful, I couldn't get upstairs without gasping for breath, carrying a bag of salad across a room felt like I was carrying a boulder. Walked at a snail's pace as my legs hurt and wouldn't work properly.

By the time I was called back to work, I was able to cope but after work, I was fit for nothing and did very very little on my days off as I was just too exhausted. Gradually, I began to function again and can now walk to work or the shops and back quite happily and can do everything I used to do. I will never take the ability to breathe for granted again! Petrified of getting covid again though.

user1471509171 · 11/02/2022 06:58

I6 months for me the first time I caught Covid. Initially it was mild but on day 10 I started to feel breathless and have burning lungs and chest pains. I went from being a very fit runner to not being able to even go for a slow walk with my children. It improved slowly but took a long time. I was under a respiratory consultant for a year as my lungs showed inflammation.

countrylady2 · 11/02/2022 08:23

Do you take vitamin D as that helps with breathing, especially after a virus.

AColdDuncanGoodhew · 11/02/2022 12:57

I'm really sorry to hear you've all been struggling too. It's terrible.

@MrsKippling I hope you get on okay at work Flowers

16 and 18 months just sound absolutely horrific! It's so interchangeable too, some days I wake up and feel great, then it hits me later. Like today current my chest isn't as tight and sore, whereas yesterday I was scoffing painkillers all day and puffing on my inhaler.

@user1471509171

I haven't tried VitD but I'll give anything a go!

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FredBair · 11/02/2022 15:19

I don't think it's classed as long covid unless you have symptoms after 12 weeks.
I was hospitalised with covid and they told me to expect recovery to take 3 months. It was a long slog but I did make a full recovery by the 3 month point apart from a slightly malfunctioning sense of smell.

Amibeinghighmaintenance · 11/02/2022 15:24

Hi OP sounds though.

I don’t have personal experience but was reading what seemed a pretty comprehensive scientific study on recovery the other day which I’ll try and dog out. Were you vaccinated? Not a loaded question but I think the research depended on that and don’t want to send you something that will not be relevant and could be annoying!!

AColdDuncanGoodhew · 11/02/2022 15:34

@fredbair I also thought 12 weeks post covid was when it was classed at long covid but my GP was following guidance which classes it after 4 weeks. I'm not sure if that's old or new guidance though

@amibeinghighmaintenance yes triple jabbed, I had my first two in Dec 2020 and Jan 2021 before the guidance changed to a longer wait time, booster on Oct 2021. Info on the study would be brilliant!

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adriftabroad · 11/02/2022 15:35

4 months now, gradually getting better but exhausted and walking is difficult.

Mollysocks · 11/02/2022 15:37

I got COVID just before Christmas and even though all other symptoms has disappeared, I still have this tiredness that comes in waves. Usually mid afternoon. It’s sometimes so strong, I have to nap as my eyes are burning and closing. It doesn’t seem to be going away :(

Mollysocks · 11/02/2022 15:38

I can feel it starting now…

Amibeinghighmaintenance · 11/02/2022 15:39

Let me do some
Digging!’

Frenchfancy · 11/02/2022 15:39

DD was off work for 5 months, but it took over a year, 2 vaccinees (which made quite a big difference) and a second dose of covid before she was well enough to think about going back to the gym (for a gentle work out).

AColdDuncanGoodhew · 11/02/2022 15:52

Oh gosh I'm not holding out much hope that it'll be better anytime soon then, how depressing Sad

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HundredMilesAnHour · 11/02/2022 15:59

I was off work with long Covid for 3 months and I've now been back at work on a phased return for 1.5 months. I'm still not fully recovered 4.5 months later, with my brain fog/cognitive issues being the biggest problem. I also have to really pace myself and take a lot more rest than I used to.

I have well-controlled asthma and my breathing is almost back to normal now. My energy levels are getting back to normal too. It took several months before I could start exercising though as even a short walk wiped me out for a few days afterwards.

The best advice I was given by my doctor was only do 70% of what you feel capable of. Any more than that and it will set you back further. At first I ignored this advice (I was so determined to get back to normal) but quickly learnt the hard way that my doctor was right (duh! I know!)

AColdDuncanGoodhew · 11/02/2022 16:09

That's exactly how I'm feeling! When I've had a good day I'm going all out, going for the shopping, cleaning, taking the kids to school etc then for a day or two I'm in so much pain and my breathing is bad.

Trying so hard to just take it a day at a time but I'm so frustrated. I'm looking in to other nursing posts just now which don't involve nights/weekends/on calls. I'm thinking now might be the time to just get out of the acute/emergency type sector and find a job with more stable hours and less running around.

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CrackersDontMatter · 11/02/2022 16:16

Honestly? About 20 months. I did have it right at the start though (April 2020) before the vaccines were available. I was off work for two months and ended up getting sent home again because I couldn't work. The past couple of months things have been better, I've been able to start exercising again and I get a lot less pain in my chest and upper back. Not 100% yet but there's been a big improvement.

middleager · 12/02/2022 09:24

@HundredMilesAnHour

I was off work with long Covid for 3 months and I've now been back at work on a phased return for 1.5 months. I'm still not fully recovered 4.5 months later, with my brain fog/cognitive issues being the biggest problem. I also have to really pace myself and take a lot more rest than I used to.

I have well-controlled asthma and my breathing is almost back to normal now. My energy levels are getting back to normal too. It took several months before I could start exercising though as even a short walk wiped me out for a few days afterwards.

The best advice I was given by my doctor was only do 70% of what you feel capable of. Any more than that and it will set you back further. At first I ignored this advice (I was so determined to get back to normal) but quickly learnt the hard way that my doctor was right (duh! I know!)

@HundredMilesAnHour this is me too. I'm really struggling. Work is demanding, fast paced snd requires a lot of brainpower that I just don't have. My brain feels in sludge, yet I know work expect me to snap back, but I am not the same person I was pre Covid.
HundredMilesAnHour · 12/02/2022 20:59

@middleager I totally understand. I work in a high pressure, fast paced job in Financial Services and right now I'm just not capable of doing it. It is so VERY VERY frustrating and I have shed many tears over it. For a while I was worried sick that my brain would never recover and I would feel like an idiot forever. But I am improving, it's just much slower than I'd like. My employer won't let me do client work yet as I just can't operate at the speed required or under that level of pressure. I'm hoping by that will change soon but I feel like I'm just treading water as well as damaging my career.

AntsMarching · 12/02/2022 21:06

I’m 14 months in and although I’m heading in the right direction, I still struggle. My recovery is moving at a snail’s pace, but if I compare to a year ago, I can see how far I’ve come. I’m only working 3 days a week now as I get fatigued from concentrating so much.

Justalittlebitfurther · 12/02/2022 21:35

I got Covid in Dec 2020 and still have most of my symptoms although some to a lesser degree. I had to take 4 months off work. I still have tinnitus, pain, fatigue, brain fog and Post exertional malaise. I have only managed to return to work part time. I really really hope you recover more quickly, I honestly feel my recovery was hampered by me returning to work too soon and pushing through the fatigue for many months. Rest is so so important - that would be my advice to anyone if your body is telling you to stop then definitely listen.

All4Love · 12/02/2022 22:02

I got COVID in March 2020. It took a year for for the chest pains and palpitations to resolve. What's ongoing is a degree of tiredness, myalgia, high BP and slight hearing loss in one of my ears. Nothing is linear and it feels like a roller coaster. It feels insidious at times.

I can work full-time and I'm completing a postgraduate degree. However, recovery period are prolonged.

Also had 3 bad colds in December-January and I never had that bad before. PCR and LFT all negative. Is it because COVID damaged the immune system?

I don't want to be reinfected with COVID because I don't know what long term damage it will do. I've already seeing many people getting their 2nd infection and it's only been two years since the pandemic has began.

AColdDuncanGoodhew · 13/02/2022 22:52

Oh no I'm so sorry to hear about your struggles everyone. I'm so worried about how long this will take.

I have some appointments coming up next week for the respiratory clinic so I'll see if there's any advice there too.

I think I'm just so desperate to get back to normality and I'm always thinking about work that I'm setting myself back by doing too much.

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