Pain after covid

[Bati]

My Ds (24) had covid xmas/new year and 1 month after he had covid, he started with pain in his chest then a few weeks later the pain also started in his back. 3 weeks ago pain started in his fingers and toes as well. It's spreading and we don't know what it is or what to do over it.
He was very fit and healthy before covid but now lives in a lot of pain making him unable to do much if anything at all. He has been prescribed anti inflammatories and cocodomol which he has been taking for months but they are not working.
He has had an xray of his lungs which was clear and his gp is sending him for antibody check and an arthritis check.
Has anybody else suffered like this after and did you find out what was causing so much pain and did you get any treatment for it, if so did it work.
Looking for any advice which might help x

I'm so sorry.

Has he been referred to a specialist Long Covid clinic? Any scans other than the lung X Ray?

What we really need to do - and I hope the government does this - is give people suffering from Long Covid a thorough check up. Bloods, scans - and research treatment options.

There's a couple of Long Covid threads on here, where people have mentioned Facebook and other support groups. If you check them out, hopefully you might get some advice for your ds.

I hope he makes a good recovery.

Yes, I suffered with pain after initially contracting covid. Got worse over about 3 months until I couldn’t even care for myself. Blood tests showed reactive arthritis and prescribed steroids. Pain resolved in a week but still comes back due to recurring long covid episodes. Have clinic referral but not been called for appointment yet.

Ps subsequent pain episodes haven’t shown cause in blood tests, just that first time.

Thanks for replying.

He hasn't been referred to a long covid clinic or anywhere else.
He said his gp is pretty useless, it takes ages to get an appointment and he said his gp's attituded is "what do you want me to do"
He is only having these blood tests as Ds asked him could it be arthritis and could he still have the virus, otherwise gp wasn't going to do anything.
Ds is getting worse not better and we have no idea why.
If it is reactive arthritis, does this go or will he have it for life now x

If you are concerned, please keep going back to the Dr until they do something. It will eventually happen.

Thanks for starting this thread, OP. We have a relative with similar symptoms and we have been truly stumped as to how to help them. So far the GP response has been similar; hospital referral, clear lung scan etc. It’s so strange isn’t it.

@butterflyinglow have you been able to get any sort of answers or treatment.
He has been to A&E 3 times in server pain and they just listen to his lungs which are fine and send him away with cocodomol which does very little for the pain.
He is a lot worse now than he was and doesn't seem to be getting any help.
I just wish he was being taken seriously and be seen by a long covid clinic.

Yep really had to push for tests and the long covid clinic referral feels like being pushed out into the long grass - a holding pattern. I chased my referral today and they said I should hear something soon, they're overwhelmed by demand.
There's quite a lot online about reactive arthritis and it's meant to be self limiting to about 6-12 months but thinking you might have it for 12 months when you can't open your hand, turn your head or walk up a step is too long.
Really hope he gets the help he needs. x

If it is not touched by co-codamol I would say it could be nerve pain. (As someone who has bad nerve pain, and was surprised that normal pain killers do not work on it, as it is a different pain system)

We literally have no idea what it is. It's constant and has spread to other parts of his body x

I developed chest pain and sob after covid. Had blood tests, chest xrays, lung function tests and all clear. Previous to Covid I was very fit but couldn't even walk upstairs. It eventually went but has taken 14 months.