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Off you pop! Long Covid sufferer

52 replies

Pegsonstrings · 30/05/2021 02:35

I am sick of it, I am fed up with being told to just live with it.

Had relatively mild Covid mid March 2020. Six months later had a massive relapse that is ongoing and has seriously disabled me.

I have various unexplained neurological problems, fatigue and after having been taken by ambulance due to heart and lung issues been told that I have leftovers or fibroids on my lungs. Heart is fine. But I don’t want my second AstraZeneca jab which I am meant to have in a weeks time.

I use to run half a marathon just because. I was incredibly sporty and active. Now I am riddled with pain and some days hardly able to walk as my legs give way without warning.

Have called the GP numerous of times when I lost my speech and would not find my words, had difficulty with thinking or processing simple things and got really forgetful. Have had an appointment with a neurologist. Two MRIs as MS and other stuff was being ruled out, to be told it’s long Covid and nothing anyone can do, so off you pop.

I am isolated due to it, and my quality of life impacted majorly. I am in constant pain.

But I am sick of not being heard when I raise this with my GP and I just get left to it.

I have been working from home since I got ill last year.
Anyone in the Same boat?

OP posts:
Fishflakes · 15/09/2021 11:02

Thank you CFSKate

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