Long Covid type symptoms from vaccine?

[unambiguousbeard]

I had my first Pfizer way back in Jan. The usual side effects the day after for 24 hours and then again for a few days a fortnight later.

I had the second in mid March and no immediate side effects. However 3 weeks later I started a low grade fever which I've had ever since. I had extreme fatigue and was really quite ill for a good month alongside joint pain, pins and needles in my two smaller fingers on both sides, arm pain, thirst, night sweats....

it's now about one day in three so slightly improving but I've no idea what it is and I'm trying really hard not to worry and I can't imagine ever feeling properly well again.

Has anyone had similar around the vaccine? I've had blood tests for a variety of autoimmune disorders , waiting for the results, but the timing is weird. Even the gp suggested vaccine related. I guess I'm hoping someone says oh yeah I had that for a few months but now I'm fine. This cannot be my life going forward.

Wonder if it could be related to you having had covid previously? No signs of long covid before the vaccine?

I was fine before the vaccine. No signs of long Covid. And if it's a virus then it's been going on a bloody long time. I've never had a fever for nearly 6 weeks before.

Seems like it's not just me then.

@unambiguousbeard

I was fine before the vaccine. No signs of long Covid. And if it's a virus then it's been going on a bloody long time. I've never had a fever for nearly 6 weeks before.

Seems like it's not just me then.

I was the same. Had covid in October and was fine, had vaccine in January and symptoms started, I'm still suffering now

@RainOnMe79 is it easing? I mean are you getting slowly better?

I've woken up again in a sweaty tangle with a temperature. It's really getting to me.

I had exactly the same symptoms as you OP.

GP couldn’t find anything in blood tests other than low iron which I now take tablets for.

These symptoms started a couple of weeks after my vaccine but I think it’s just a coincidence.

I have had bad joint pain that started within a few days of my second Pfizer vaccine. It has now been nearly 4 weeks without improvement, and I also have what may be lung inflammation (a productive cough that improves with anti-inflammatory medication). Nothing has shown on the tests so far so they don't know the underlying cause, but I suspect it has been triggered by the vaccine

I am reluctant to post this but my health has been on a downward spiral since I had the vaccine. Pre vaccine I had mild/moderate ME (post viral but not from Covid). As far as I know I have not had Covid either. I now have new symptoms and moderate/severe ME with some new auto-immune issues.

However, I cannot definitively say it was the vaccine/the stress of the last 18 months/Long Covid triggered by asymptomatic Covid/just the waxing and waning of my ME/any other virus/anything else.

The ME society has done some initial research on their members post vaccine:

meassociation.org.uk/2021/04/mea-monthly-poll-were-asking-about-the-outcome-of-mea-covid-vaccine-priority-template-letters/

About 9% felt fine or even better after the vaccine and about the same percentage felt worse. Who knows.... I do still believe I made the right decision to have it at that time.

Watching with interest: I was fine after Pfizer 1 and had #2 yesterday. It hit me like a ton of bricks and I was in bed by 7pm. I had long covid from April 2020 which has only just ended-episodes changed from constant, to several times a week to weekly to, eventually, less than monthly. I will be deeply, deeply sad if I’ve gone backwards (though I’d still rather this that getting a potentially fatal reoccurrence of covid itself).

I had long covid but virtually recovered, back at work and feeling ok. 10 days after the jab I started with symptoms very similar to those I had in the acute phase. Now on b blockers and off work again.

It's interesting reading the data from the trials, where people didn't know if they were getting a vaccine or a placebo.
Significant number of people who received a placebo reported side effects - it's a classic nocebo effect.

Not saying that's the case here, but it's a possibility - so much coverage of side effects must mean most people who get a jab now are worrying about them - and for some, that's going to translate into symptoms.

I ended up in A/E with a hr of 125. Wasn't anxiety. Cardiologist reckons an immune response to vaccine.

[quote unambiguousbeard]@RainOnMe79 is it easing? I mean are you getting slowly better?

I've woken up again in a sweaty tangle with a temperature. It's really getting to me. [/quote]
Not really, I can have a day where I am not so bad but then the next day can be bad. I've had bloods, chest X-ray which were normal but I also had an ecg which was abnormal and they think it may be inflammation. I'm waiting for a heart scan now

@RainOnMe79 god that's awful. I'm so sorry.

@unambiguousbeard I know it's awful. I'm only 37, never had any health problems before. It could just be long covid but seems too coincidental that it started days after vaccine.

Are you yellow card reporting these ?

Well I haven't. As I've no idea if it's vaccine related, started 3 weeks afterwards. If my blood tests come back inconclusive then I might. Depends what the gp thinks really. The immediate symptoms I had from the first jab were the same as everyone had.

@Nerdygirl

Are you yellow card reporting these ?

I haven't yet, as I am still waiting on tests to try and establish what is going on

I think it’s possibly the vaccine. I’m in a group of people who have developed tinnitus after the vaccine (including me). A lot of them have nerve tingling too. I think the covid spike protein causes a lot of the issue with covid as it binds ace 2 receptors and as it’s in the vaccine it makes sense it might trigger something in small numbers of people. My tinnitus is getting better by reducing histamine levels through diet and cutting out exercise and high histamine has been linked to long covid. I think I was probably histamine sensitive anyway and the immune response to the vaccine just tipped me over the edge again.

Oh that's really interesting @JS87

I have horrendous hayfever and am on prescription anti histamines so I'm already sensitive to it. Not much more I can do. I guess if it's a histamine reaction then that would make sense as my hayfever was horrendous around the time I had it. I've just piled it onto my poor sensitive immune system

@JS87 cutting out exercise?!

Watching with interest, I know of someone with similar symptoms since vaccine and unable to work

[quote unambiguousbeard]@JS87 cutting out exercise?![/quote]
Yes. Apparently exercise leads to histamine release. I’m just trying to lower my histamine bucket as much as possible.

@JS87 I've just read up on the diet. It's not that extreme and it's quite interesting, But there's no way I'm giving up exercise. Or cutting down. I'd definitely collapse physically and mentally. Although my bucket is definitely full to the brim.

Ok so something turned up
In my blood tests so it wasn't vaccine related after all...

Ok so something turned up
In my blood tests so it wasn't vaccine related after all...