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Antiphospholipid Syndrome + AZ

29 replies

OpheliasCrayon · 14/04/2021 15:27

I know there are a few people with APS here.

Does anyone know if the guidance is either:

a) If you have APS you're 100% not supposed to have the AZ vaccine in any circumstances
Or...
b) you're not supposed to have it if your personal risk from APS outweighs the benefit of having the AZ vaccine.

I couldn't really understand which one it was because the "official" info directly mentions APS as a reason not to have it but I couldn't quite work out which of my two options it was!

I've got really bad allergies and so I'm still advised by my dr not to have any of them but I work with vulnerable children and so I'm STILL feeling like I need to consider getting one of the vaccines (I'm undecided still) but I have APS. I have an appointment with my GP anyway and will ask but I just wondered if anyone knew!

Thanks!

OP posts:
OpheliasCrayon · 15/04/2021 09:04

@FuzzyPuffling

OpheliasCrayon. I sort of see a rheumatologist for APS. I also have SLE as the major presenting condition, but as with many AI conditions, they come in multiples.
@FuzzyPuffling I don't think I've ever mentioned it to my Rheumatologist as whenever I see him it's because my arthritis is flaring something rotten. Which it is now to be fair be I will ask him anyway when I see him in a few weeks. I just kept getting told that I didn't need to see a haematologist because I wasn't going to have another pregnancy... But then when I saw APS being one of the two things directly mentioned for this AZ stuff... Well that's when I thought surely it's not just to do with pregnancy then!
OP posts:
FuzzyPuffling · 15/04/2021 19:09

My rheumy discovered my APS though blood tests (my DD had a stillborn DD which was a bit of a red flag - I've only ever had one MC). She advised daily aspirin for me, but as I also have CKD I can't take it and there wasn't a viable alternative.
It's just another of those AI things!

OpheliasCrayon · 15/04/2021 19:19

@FuzzyPuffling

My rheumy discovered my APS though blood tests (my DD had a stillborn DD which was a bit of a red flag - I've only ever had one MC). She advised daily aspirin for me, but as I also have CKD I can't take it and there wasn't a viable alternative. It's just another of those AI things!
Oh I'm sorry for your DDs and your loss. Its awful. I'm not sure what CKD is but I have IBD so wouldn't be able to take aspirin either. I'll mention it I guess!
OP posts:
FuzzyPuffling · 15/04/2021 20:07

Chronic Kidney Disease.
They seem not to know if it's connected to the SLE and unwilling to find out. Like everything else, I live with it!

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