Is it still the case that people with autism/LD are less chance of being treated in hospital if they get overwhelmed?

[Gobacktothe90s]

If people with learning disabilities and autism are in effect going to be at a disadvantage when hospitals are overwhelmed and places at a lesser priority than someone else then why are they not on the shielding list?

Do you have some kind of source? When has it every been said that anyone with learning disabilities would be less likely to be treated?

I saw the treatment priority map (can't remember it's proper term) in April where there were numbers assigned to you if you had frailty or diminished capacity. It made me shudder in fear. My beautiful DS has LDs and autism. I can't face looking at it again.

I will try and find a link but it was discovered in March people with LD had DNR on records put on without discussing with family and that if a hospital had to prioritise beds then a fraility scheme would be used and you got points for having a learning disability or autism so in effect less likely to be treated than someone who didn't

As the parent of a child with autism and SN, it is something that would concern me. My youngest had to be taken to hospital recently by ambulance, but I was able to travel and stay with her throughout, much to the “it’s not fair” attitude of a couple of neurotypical patients. 🙄 I hope that if she should be kept as an inpatient that I would be permitted to stay with her, as she has limited communication, as I assume it would take pressure OFF the staff to have me sit with her? I wonder if any medical staff could say what their hospital permits?

Surely that’s not allowed?! I understand them deciding not to ventilate a very elderly person if their chances of survival with any quality of life would be very low - in those circumstance they are arguably acting in their best interests. But someone with a disability that’s not physical should surely be treated the same as anyone else - as that is in their best interests.

I wasn’t aware children were not allowed someone to stay with them in hospital even with current restrictions. My friend has just has her dd inpatient for two days and there was absolutely no question about that? She went in ambulance, stayed with dd overnight in the ward both nights and at no point was that scrutinised. Her dd has no additional needs and was just poorly.

Sorry that wasn’t in response to the op. Intended to respond to the lady who said neurotypical children’s parents found it unfair she was allowed to accompany. Where in the country are parents not currently permitted to accompany children to hospital

They are not less likely to be treated. The frailty scale is for older people. They may find being in hospital and receiving treatment more difficult than other people. Vulnerable adults are allowed to have someone with them unless in intensive care.

@Bimbleboo

Sorry that wasn’t in response to the op. Intended to respond to the lady who said neurotypical children’s parents found it unfair she was allowed to accompany. Where in the country are parents not currently permitted to accompany children to hospital

Sorry, I should have clarified, my ‘child’ is actually 25.

I think it was most hospitals not allowing any accompanying visitors until the cases decreased.
There was the sad story of the 13 year old boy dying in hospital on his own that makes me cry thinking of him

@Anniemabel it is allowed if there isnt enough resource for everyone. It does in fact happen already, although the criteria may vary - say when 3 people need an intensive care bed, or a kidney, and there's only 1 available.

Spikey this wasn't the case in March. There was people who discovered DNR on their relatives records with no discussion and even some people sent letters from their drs asking them to think about having DNR on their record
I'm trying to find out if this will be the case now when hospitals get overwhelmed and if so why aren't people with autism or learning disabilities on the shielding list

www.nice.org.uk/news/article/nice-updates-rapid-covid-19-guideline-on-critical-care

Some one shared this on the other post. I take from it that the rules were changed and they dont take LD into account, certainly not in children, they are always a priority. But can someone else read and tell me what they think

Gobacktothe90s after those incidents happened it was made clear that they shouldn't have and that the frailty scale does not apply to young ( under 65 I think) adults.