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Kawasaki like illness in kids, anxiety awful

3 replies

SleepingStandingUp · 15/05/2020 01:37

DS is 5, he has complex health issues with his heart and he's on o2, prophylactic antibiotics. Generally we'll except you know, 1litre of cont o2 to keep his SAT'S at a shit level cos of his heart.

Were shielding and were thinking he could go back to reception in July.

Mom just posted an article about the new inflammatory condition. So even if he survived Clovid19 this one that gets the kids as an immune response will kill him.

Were never going to be able to leave. I'll have to home scho all 3 kids (babies are 5 months) and never let them out. DH wil eventually lose his job as he won't be able to go a d I'm going to either ruin their lives or get my eldest killed in the quest for a "normal" life and now I can't sleep and keep crying every time I think of how our lives will be from now on.
Even if we wait til a vaccine comes out, hl be nearly 7, tbe twins 2 at BEST.

How do I give them a good life when we can't see famy or friends or go out the house for that long?

OP posts:
ToffeeYoghurt · 15/05/2020 02:02

I'm really sorry. I can only imagine what it's like having a shielded child. How could you not be worried.

It's obviously still concerning but try not to worry about the Kawasaki type disease. It's so far rare. Just keep on taking precautions and being careful.

It's not a must, waiting for a vaccine. Honestly I'd say July might be too early for your child to go to school (given he's shielded). But it shouldn't be years. Most countries worldwide have taken some measures to reduce the infection rates and risks. There's no reason why we can't too.

There are some promising treatments. Particularly when given early. We also now have an accurate test. We could get more PPE for frontline staff, masks to wear in public especially on transport. We could, like most countries worldwide have done, implement border controls with checks and quarantine.

All these things would mean lower infection rates as we'd have less sick people. Of course it's all still early days but things aren't completely hopeless.

If your husband has to go into work (if it's not possible for him to wfh) he can take a few simple precautions to protect the rest of you. Obviously the handwashing when he gets in (and sanitiser when out). But also a mask if public transport, he wipes his phone, changes his clothes as soon as he gets home, and regularly wipe or spray door handles, taps, bannisters.

SleepingStandingUp · 15/05/2020 02:09

Thanks Toffee. It feel so hopeless and I feel like I'm letting them all down so badly. He has a really rare chromosome issue, had one of the less likely congenital issues linked to it, had a very unlikely outcome to treatment at birth, and then a rare complication from surgery 9 mints down the line that required numerous operations whicj failed and this needed to be repeated
Rare scares the crap out of me because everything with him, good and bad, is like the million to 1 chance.

The babies will be awake in 3 hours and I haven't slept a wink

OP posts:
ToffeeYoghurt · 15/05/2020 02:25

It doesn't sound like you've let them down in any way. You're doing everything you can to protect them and understandably it's a very worrying time. He's obviously a fighter. Your love and support no doubt plays a big role in that fighting spirit.

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