Anyone on immunesuppressors?

[Zem74]

So I take azathioprine for Crohn’s disease (100mg a day) Crohns is very well controlled only a few minor flares/no hospital visits or treatments etc since diagnosis 9 years ago!
I got sent the 12 week vulnerable letter from NHS but have since been told by my IBD nurse that I’m moderate risk as the letters were blanket sent to everyone taking azathioprine and didn’t take into account dosage.

Still...this all gives me huge anxiety that if/when I do catch Covid I will end up in hospital/dead because my immune system is slightly lowered.

Is anyone on here in the same boat either medication wise or risk wise?

Or has anyone in similar position actually had Covid?

I expect you might have seen some of these meds are being trialled to see if helps treated covid as well as due to overactive immune response.

Oh also the GP said not to take next mtx tablets while he got over it. He's better now just finds running a bit harder.

@zem74

gut.bmj.com/content/69/6/984

Re: IBD and covid stats

Ifonlywecouldwishuponastar I have been on this for about 3/4 months after being taken of sulfasalazine as they pushed my white blood count too low. It was tough being taken off them and left with nothing for 6 weeks while they sorted everything out.

I haven't had any of the side effects (feeling sick) I had on sulfasalazine, but the dosage I'm on for leflunomide is not as effective as the sulfasalazine was. I will be looking to see if it can be upped slightly as my inflammation is more of a constant, but Its bearable, so I can deal with it after this is all sorted.

I hope my account of DH was not frightening, thought after best mention he is over 50, (not overweight though) and male so those are also worth mentioning and also has mild asthma in the past and is a bit prone to chest infections as well.