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Covid

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Original poster

Told daughter needed to be shielded now told she doesn’t?!

120 replies

PumpkinP · 17/04/2020 15:29

What the hell!! So I got a letter a few weeks ago saying my daughter was extremely vulnerable and needed to be shielded for 12 weeks, I’ve now had a text to say they’ve “reviewed” her medical notes and have decided that actually she doesnt need to be shielding, what the hell is that about?! I’ve been worried sick about my daughter, now to be told they were wrong?! Has anyone else had this? I’m a lone parent so couldn’t leave the house at all.

OP posts:

TabbyMumz · 18/04/2020 14:52

@MyDcAreMarvel
You really should read the guidance on the government website. It says under shielding :

Living with other people

The rest of your household do not need to start shielding themselves, but they should do what they can to support you in shielding and to carefully followguidance on social distancing.

Dopeydonkey · 18/04/2020 14:55

We are the opposite way around. Our teenager has autism and Sld but no other medical needs and have only recently got a letter advising to shield. We won't be doing the not leaving the house bit because I think there is more risk of one of us ending up in hospital through staying in than there is through very socially distanced exercising.

TabbyMumz · 18/04/2020 14:57

"they should have known she only had the trait given the fact that they were the ones to diagnose her 🙄 but carry on insisting it was my mistake"
Pumpkin, I dont think you are understanding. Your doctors clearly know she only had the trait, it will say so on her record. A doctor on here has told you that the initial letters that went out from the government, were based on coding from gp records. Your daughters was obviously coded suckle cell, but not sickle cell trait. It was only when the doctors reviewed who got letters that they realised the mistake.

OrganTransplant123 · 18/04/2020 15:02

TabbyMumz And it is common sense that if those in your household are children who you are unable to keep 2 metres from then everyone needs to shield.

Original poster

PumpkinP · 18/04/2020 15:09

thanks MyDcAreMarvel I don't know why a certain poster wants to keep insisting it was my fault,like you said I trusted the doctor, going to ignore them now.

OP posts:

TabbyMumz · 18/04/2020 15:10

Organ...you said everyone needs to shield in the household, I said they didnt, and that people can still go out to work. You said they couldnt. I then proved they could. You are adding children into the mix, I wasnt. I'm aware of lots of people shielding, where the partner is still going out to work. Needs must and all that.

TabbyMumz · 18/04/2020 15:11

Pumpkin..if you re read the replies, not a single one has said its your fault?!

PinkDaffodil2 · 18/04/2020 15:16

I don’t think anyone is saying it’s your fault but don’t blame your doctor! They’re the one who spotted the mistake the government made (GPs didn’t get told who the letters were sent to until a few days ago here)
Now as well as all their usual work and emergency covid stuff they’ve found time to individually review your daughters notes and spot that the government sent her a letter in error.

PinkDaffodil2 · 18/04/2020 15:19

Also if you decide to blame / not trust your doctor, consider the guidance from the sickle cell society who have had clear guidelines on their website for 3 weeks now that only those with the disease, not trait need to shield. Lots of other useful info too.
www.sicklecellsociety.org/coronavirus-and-scd/#Shielding

Mlou32 · 18/04/2020 15:21

It was probably a case of they just sent the letter out to everyone who was potentially at risk and then reviewed it further and updated people with further letters. Or guidance was updated, as has happened with pregnant women.

Its not really something I'd be upset about.

OrganTransplant123 · 18/04/2020 15:22

TabbyMumz You are being very black and white in your advice. Yes, if two adults live together then one can go out to work and they follow the shielding advice.

If there are children involved, and this is Mumsnet after all, they often are, the advice is that you should all shield.

MyDcAreMarvel · 18/04/2020 15:27

@MyDcAreMarvel
You really should read the guidance on the government website. It says under shielding :

Living with other people

The rest of your household do not need to start shielding themselves, but they should do what they can to support you in shielding and to carefully followguidance on social distancing.
@TabbyMumz
Are you just on the wind up or do you really not get this . I AM FOLLOWING THE ADVICE IN MY PERSONAL LETTER !!! that supersedes a general government link!
My dh is my carer he provides personal care he and my children have to shield as my children are too young/their disabilities prevent them from staying two metres from me. My dh has to physically touch me to provide care.
The household does not have to shield IF and only IF they can follow shielding measures within the home!
The government link is general advice the letters are more detailed again. Do not put life’s at dusk my disputing this!

Original poster

PumpkinP · 18/04/2020 15:27

I never said I won't trust the doctor again, just that I trusted what was in the original letter, I also already said I see how it happened now, but telling me what the sickle cell society says doesn't mean much to me as they could have looked into that before sending me the letter, I had NO reason to doubt the letter so I didn't go around searching to prove it was wrong. I took nhs England's word for it. No where in the letter did it say that it was just a precaution and that they will be contacting people at a later date if they don't need to shield, so I had no reason to disbelieve the letter or investigate whether it was the truth or not.

OP posts:

MyDcAreMarvel · 18/04/2020 15:28

*risk

MyDcAreMarvel · 18/04/2020 15:30

I'm aware of lots of people shielding, where the partner is still going out to work.
@TabbyMumz
Yes because they are able to follow the guidance within the home!

MrsGeee · 18/04/2020 18:37

Yes me!!

I got a letter saying to shield etc then got a text the other day to say it was wrong.

The only thing I can think of is that 4 years ago I had pancreatitis & was put on creon which also cystic fibrosis patients use too. So I think the letters were originally generated in bulk rather than going into each one if that makes sense

Inkpaperstars · 18/04/2020 19:04

@PumpkinP

Have a look at the recent pages on this thread. I don't know if it will be helpful but there is a discussion about sickle cell trait and CV

www.mumsnet.com/Talk/coronavirus/3881672-Daily-numbers-graphs-analysis-thread-5

Monsterpage · 18/04/2020 19:43

On the other hand I know a liver transplant patient who had a transplant over 5 years ago but is on daily medication and will be for life. They didn’t get a letter and so believe they are not vulnerable - even though transplant patient is at the top of the list of people that need to shield!!!

TabbyMumz · 18/04/2020 20:19

"No where in the letter did it say that it was just a precaution and that they will be contacting people at a later date if they don't need to shield,"

Well, they wouldnt would they?!!

Original poster

PumpkinP · 18/04/2020 21:08

Thanks Inkpaperstars will check it out.

OP posts:

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