Caring for a dementia sufferer in the coronavirus lock down.

[Hotlollygirl]

Hi fist time posting. I'm currently staying with my mum who has dementia. Usually I go every day for most of the day between work. Last week I was ordered by the carer to come. I was at home plying it safe becouse I didn't feel well. I've been here a week now. I have boyfriend at home so I'm wondering how I'd cope if he got sick while I'm not there. I'm also struggling with getting no break. I know it might sound horrible but coping with someone with dementia constantly is hard. As much as you love them. I know I'm not the only one in this position and would love to know how others are dealing with it.

Was it a private carer? Any chance of getting another so that you can have a break? I imagine it must be very hard.

I’ve no advice but you don’t sound horrible at all. People really don’t understand how difficult/emotionally draining dealing with someone with dementia is.

It is really hard. Anyone with dementia should have an advance care plan set up now to cover what should happen if they fall ill - in most cases aggressive interventions and CPR would not be effective or justifiable but you don't want to wait until you are in that position before deciding

First of all, try not to worry about your boyfriend. Any chance he can come help you?
Do you get any support from a care agency or adult social care? Are you able to leave your mum for short periods or does she need 1 on 1 24/7 care?