Started moaning about this on the lungs thread.
Really hoping someone els can relate as am feeling quite alone in this!
I have CFS, I live alone and I’m having COVID symptoms, although they have been mild, all in all, for about 2.5 weeks.
I’m fine on my own but I’ve had to keep it quiet that I think I have it. I’m speaking to friends and family regularly and via zoom etc, a lot of them are so wound up about CV already that I did not dare tell them I thought I had it. I’ve slowly introduced it into conversation with some, especially as I was recovering a bit, but even then people are crying, wanting to FaceTime right away, wanting to come and bring things round or talk to me through the window.
I’m used to being ill at home alone for weeks with CFS (usually everyone else is at work). I have stockpiles of food and meds. I don’t need anything. And I’m tired. I get tired talking. I’m talking to so many people now as everyone is at home. And so many texts, asking if I’ve eaten, what my temp is, am I drinking enough, am I better, the advice says blah blah
The other night I had breathing difficulty and rang 111 who sent an ambulance. My oxygen sats were ok, they didn’t need to take me in. I can’t tell anyone this happened. They will be even more hysterical if they know this. I told one v sensible friend.
I feel so sad, today I packed an emergency bag in case I do end up in hospital, and put my friend’s number on my phone lock screen as ICE contact. It s a bit worrying, and I’m upset that the people who should be supporting me are making it more difficult with their “concern” and their own anxiety.
Any sympathy or empathy greatly appreciated.