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Anyone struggling to get specific goods for ASD child?

10 replies

BerthaBear · 22/03/2020 21:01

Hi, I am happy to eat anything. However, my ASD son has severe sensory issues and was diagnosed two years ago with ARFID (Avoidant Restricted Food Intake Disorder). Basically he will starve himself, rather than eat a different food.

He will only eat one type of bread and one type of cheese for all his meals. This has been the same for years, despite professional input. I am really struggling to get these specific foods.

How are other parents of ASD restricted eaters finding it?

OP posts:
Whydididothatfuckingthing · 22/03/2020 21:08

My child has asd, luckily his food restrictions aren’t too severe. Is there anything you’re struggling to find?

onlyreadingneverposting8 · 22/03/2020 21:18

Yep pasta & certain cereal - we be still got some pasta but the cereal is about to run out and I can't get more.

doubleshotespresso · 22/03/2020 21:18

Yes OP we are in the same boat. It has been utterly exhausting trying to find the very restricted list of basics for our DC, who is ASD/ Other very complex needs. On Thursday I drove to 5 separate supermarkets and cried in the car park of number 5.
I have now managed to get enough in that should last us until the back end of next week, I am dreading having to go back out as I have managed to stay in otherwise. DH and DC not left the house since last Monday.....
All really tough on both of them, but to be honest sadly I realised this week that the adjustment is really not very big for me I am pretty much isolated ,out of the time due to DC's conditions anyway. My whole life revolves around the school, meetings at the school, medical appointments and Sainsbury's. Sad fact but little change for me! DH is already struggling as he is out at work f/t and out at least three nights a week usually...
Going to be tough this next few weeks...

Mrsappleby · 22/03/2020 21:32

Same here, and a McDonald's is his weekend treat, just seen that they're closing now.

Jemimapuddleduk · 22/03/2020 21:36

Hi - in the same boat. My son eats baked beans, grated cheese and toast for every dinner - it’s the only hot food he eats. People seem to have also stockpiled pull ups which is frustrating as he needs approx 10 a day. I’m in a Facebook group for ARFID and there is a template letter you can download and take to the supermarket. ARFID parent/carer support uk/Ireland.

ColourMeGreen · 22/03/2020 21:38

We're struggling too. Three DC with autism, but it's mostly my 5 year old I'm worried about. He eats the same things every week, won't even consider a change. Same cereal every day, same lunch every day and a rotation of seven dinners (actually 5, two are repeated). These are the only things he will eat. When he was younger he went through a months long phase of eating nothing but berries. Mealtimes have not been fun here. Just heard Mcdonalds is closing tomorrow, so there's the one meal a week I could guarantee to get him gone too. He will lose a lot of weight in the coming weeks.

Comefromaway · 22/03/2020 21:42

We’ve been struggling for a while anyway and I just found out quern low fat sausages have been discontinued. (He won’t eat the normal ones since they changed the recipient a few years ago). I can’t get hold of Weetabix Protein Crunch but luckily Birds Eye chicken dippers are still to be found. I’m only allowed to buy 3 of the yoghurts he eats (he usually has 1/2 per day to up his protein intake. Also can’t get passata to make totally smooth pasta sauce or the dolmio kids one he eats. He generally has KFC/Macdonalds at least once a week as he will eat their popcorn chicken (no other brand) or fishfingers.

He LOVES Yorkshire puddings though and the freezers are full of them.

Clymene · 22/03/2020 21:49

I have finally managed to get the things he eats but it's been touch and go. I was in a total panic last week

I really feel for you :(

What does he eat?

RozHuntleysStump · 22/03/2020 21:52

Yes. I’m really struggling. We have plenty in but I often buy what he fancies day to day. Obviously I regret that now because we are stuck with what’s in! Had a bit of a meltdown tonight. It could be worse though. I know plenty of SN people with much more restrictive diets.

Ivalueloyaltyaboveallelse · 22/03/2020 21:54

Same Here our DC also has ARFID and will only consume a certain type of chicken nuggets and chips. Dc will not even eat McDonald’s nuggets or chips.

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