Would I be expecting a letter...

[Inapickleortwo]

I have APS (also known as Hughes Syndrome) and Lupus. I get reoccurring bilateral PEs with 5 in the last 3 years alone. Currently on Tinz (blood thinner) as a temporary measure as I became warfarin resistant in January but the haematology plan was to go back to warfarin beginning of April. I am under a cardiologist to establish why I can't breathe properly as last week I was discharged from respiratory due to my lung tests showing it's not the them causing the shortness of breathe/problems.... I'm now slightly panicking I'll be falling into this 12 week category - my anxiety is sky rocketing as it is!

www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19#how-do-these-measures-differ-from-the-social-distancing-guidance-for-vulnerable-people-issued

[DentalPatient]

I suspect you are included but even if your not I would follow the advice if I were you.

[Inapickleortwo]

I have been self isolating since this started with DP sent home to work from home last Monday as his work deemed me high risk and didn't want him to be a carrier to me from the office should anyone have it. I think it's more my anxiety on everything getting me worked up. I feel everything is so vague!!

[Roselilly36]

We all need to do what we think is right for ourselves, I for one won’t be lead by the nose by the government, I have MS, I am self isolating for 12 weeks with my family. Keep well OP.

[DaisyDoo09]

If i had to isolate with my dd because of her condition would my employer have to keep my job for me ?

[Inapickleortwo]

@daisydoo09 I'm not too sure. My own leader is being unsupportive of my condition but DPs have been amazing. I would speak to your line manager/HR.

@Roselilly36 DP says 12 weeks regardless of the letter just like you. According to him 12 weeks isolated indoors in the scheme of things isn't the worse and he can still go get food or whatnot for us. I think when/if I get a call or letter I'll feel somewhat calm as I know where I am with my autoimmune illnesses with this horrible virus

[DentalPatient]

If you were to follow the strictest definition of the 12 week lockdown your husband would not be leaving the house to shop for food. He will be coming into contact with the shop workers who will be coming into contact with an awful lot of people. Is there anyone who could shop for you, even if you have to find a local Facebook group and ask for help.

[Endofmytether2020]

@Inapickleortwo Do you mind me asking if you had a letter? I have APS and UCTD (originally dx lupus with ANA 1:1280) but haven’t heard anything. I am only on aspirin though.

[Inapickleortwo]

@Endofmytether2020 my haematologist called be on Friday afternoon advising she's wrote to my GP to issue the letter. I'm in an APS support group and many others with APS have received the letter/text especially those like me, who've had some damage caused to the lungs from the reoccurring PEs. If you're in doubt the advise is after 29th if no letter/text to call the GP or consultant you're under. I would expect with APS and lupus antibodies you'd be on the list like me.

[housemdwaswrong]

I have lupus, take steroids and immunosupressants. No letter. In Wales they addres being sent or up until the 29th, and some from individual GPs.

I haven't been out for 10 days, I know how difficult it is for me to fight a cold if I'm run down.

I'm lucky though, I can absorb the cost of not working. If I needed evidence for my employer, with no letter I couldn't provide it.

Anticipating a letter next week, but don't intend leaving house/ garden regardless. Do what you can... everybody should be trying desperately to stay at home as much as possible atm anyway, health conditions or not I would have thought.

[Inapickleortwo]

@housemdwaswrong I've been isolating since this started hitting the news like it did and as a household, we started our own 'lockdown' before it became a lockdown. I've anxiety caused by my medical issues so knowing I've the letter coming is more of a reassurance that I'm not over reacting in what we're doing. When my consultant called yesterday it was like a weight was lifted on this part.

[housemdwaswrong]

I know what you mean, exactly. I want reassurance that I'm doing the right thing...I know I am, but I would really appreciate someone just saying so. I left school on the Tuesday of the week they shut, and went to sort meds & everything & that's the last timge I've been out. Also of course, my lupus has chosen to flare now, so steroids increased=feelings of vulnerability increased.

I missed where you had the letter, that's good news. Hope you stay well.