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Original poster

IVF with PGD - anyone else?

7 replies

pinguin · 02/05/2010 12:14

Hi,

After 3 miscarriages, genetic testing has shown that I've got a chromosomal abnormality - a balanced translocation - that means that the best or only option for me to have kids might be to have IVF with pre-implantation genetic diagnosis (PGD). I'm wondering if anyone else is in the same situation, and if so, do you know anything about the various clinics etc? - where's the best to go, things like that? How easy is it to get NHS funding? And just, you know, how's it going?

OP posts:
mumatron · 03/05/2010 08:51

hi pinguin

dont have any experience but you co0uld try asking in this site

it deals more with ivf than mn i think.

or you could always ask on the assisted conception thread here. i'm not sure if theres anyone using pgd but i might be wrong.

Original poster
pinguin · 03/05/2010 10:41

I'll have a look at that mumatron, thanks!

OP posts:
londonlexi · 04/05/2010 23:29

Hi, I'm having ivf now for secondary infertility after 3 miscarriages, we're considering Array CGH screening. www.timesonline.co.uk/tol/life_and_style/health/article6817618.ece
I'm getting it at The Lister but I know they offer it at Care in Nottingham. Good luck x

Original poster
pinguin · 05/05/2010 22:50

Ooh that's the business, isn't it? (And the Lister's prices appear to be about half that of IVF + PGD at Guy's).

That's really interesting. I might steal my other half's laptop at the w/e and look and see if there's any published research on this (he works for a healthcare company and has online access to academic journals).

OP posts:
happytoday · 08/05/2010 19:52

Ask your GP to refer you to your local genetics service. they will organise referral to PGD centre who will in turn apply for funding for you and sort everything else out. Good luck.

Original poster
pinguin · 09/05/2010 13:19

Happytoday, I could be dead by the time that happens. 3 weeks and counting for the recurrent miscarriage clinic to send a letter to my GP. Then the GP has to refer me to the NHS genetic counsellor - and the genetics service tell me it could take several months to get an appointment with them. Then god knows how long on the NHS IVF waiting list. The private genetic counsellor at the Bridge centre, on the other hand, was available at a week's notice. I'm 34, I don't have time to hang around and wait for the NHS to stop shuffling paper.

OP posts:
Greeny4 · 07/09/2010 11:35

Hi I hope things have progressed well since your last posting. I have a translocation too which gives us a 50% chance of conceiving a healthy child. I've known about it from a young age as my sister was born with the unbalanced chromosome and so was severly disabled. I've had a fair bit of experience with genetic councellors on the NHS and I don't remember it taking long to get a meeting with them once the GP wrote to them.

We were lucky to have one child but have lost 2 in pregnancy since then so have had the discussions of PGD with the councellor. If you do not have a child already you can get it paid for on the NHS but there is a waiting list. There are also only a few hospitals that will do it, we were referred to Guy's. If you can't get it paid for by the NHS we were told it would cost about £8k which was too much for us.

I hope its all going well.

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