progesterone & gonadotropin levels...not ovulating...please help?

[Ellie78]

Posted recently about my cycles and temperatures being all over the place but had no response
Am hoping someone might be able to help me as have now been to the doctors. Had a day 21 test and and day 1-4 test. Having initially been told by the surgery that they had come back normal the doctor actually told me today that the progesterone test has come back as symptomatic of non-ovulation and gonadotropins on day 1-4 test are low. My cycles have been all over the place so this is no suprise to me. Whilst I am annoyed that I have wasted time as my surgery are useless I guess I am glad to know that there is a reason for me not being pregnant (heading into our 10th month of trying for number 2).
I am also going to see the endocrinologist next month as am still under surveillance for hyperprolactinaemia. Was on cabergoline when I fell pregnant with ds1 but have not been on it since as MRI has come back ok and prolactin levels now considered normal (591 at last test). However my breasts still leak occasionally despite having stopped breastfeeding 10 months ago!
Is there anyone who has had a similar experience and if so do you think I should be fighting to go back on cabergoline? What treatment should I expect for low gonadotropins/progesterone? Would this be clomid or something different?
We have another 2 months to wait before I can be referred but wonder if there is anything I could be doing in the mean time.
Would appreciate any advice or experience as am currently very confused and frustrated!
Thanks

Hi Ellie

I'm really sorry but don't know much about your condition, but just wanted to say that as your blood tests have come back as showing you're probably not ovulating you should be referred now. The 12 month guide lines should only be if you have no known problems. I would go back to your GP and insist on a referral now, if you know you have problems please don't wait for another 2 months just to be referred.

Good luck

Hi Helen

Thanks for that - hadn't thought about it in those terms. My GP is very nice but clearly incompetent! Will go back and insist. It is so hard when you are relying on 'supposed' experts to sort these things out isn't it?!

Hi Ellie

Sorry you are having a tough time. I don't know much about hyperprolactinaemia but I have been in your shoes, being told I'm not ovulating. In my case it was PCOS (a year later however I am pregnant, so things can turn around and hopefully they will for you).

Just wanted to say, firstly, about the gonadatrophins - by this do you mean FSH and LH? I'm not sure what you mean by 'low' because it is normal - and a good sign - for these to be low at the beginning of the cycle. FSH ideally should be under 6, and LH should be about the same at that time. Sorry if I'm barking up the wrong tree here, but just wanted to reassure you about that.

The low progesterone on day 21 (it should actually be taken 7 days before your period, so hopefully it was timed right) simply indicates that you didn't ovulate that month, but it doesn't tell you anything about WHY you didn't ovulate, which is what you want to get to the bottom of.

Secondly, while I don't know much about 'normal' prolactin levels or the drug you mention, I would think that if you are still leaking milk, it is quite possible that there is enough prolactin in your system to suppress ovulation, and would therefore push to investigate/treat this further as the first port of call. I would explicitly ask your Endocrinologist about that. Prolactin is known to suppress ovulation.

If that's definitely not the case, you should be sure to have all the other hormone tests - testosterone (to check for PCOS) and thyroid, as well as an ultrasound of your ovaries. And Helen is right that you should be referred sooner rather than later.

Wish you lots of luck kick starting your cycle again.

Hi Destiny

Thanks for your message and congratulations on your pregnancy - hope you are feeling well and enjoying it.
My FSH level came back at 2 and my LH as