Prolactinoma and Pregnancy

[Chipper10]

Hello,

I have a 2.5 year old DD that I breastfeed for 18 months, during which time I did not have a period. I gave up breastfeeding to get my cycles back and get pregnant November 2008. To cut a long story short I have been diagnosed with prolactinoma, a benign growth on the pituitary gland. Started taking medication for this in July and 8 weeks later I finally got a period. I started TTC, got pregnant in October but then sadly mc in December. So back on the meds and waiting again for my periods to resume - it has been nearly 5 weeks.

I was just wondering whether there were other people out there that had/have this. It feels like I have been on a roller coaster and the mc has nearly taken it all out of me, plus with my history I am terrified that it will take me longer than normal to get periods back so I can TTC again. Part of me wants to give up TTC so that I can get on with my life as it feels like I have put so many things on hold in the hope that I will get pregnant - I just don't know what to do.

Thank you for your help

Hi - great your results lower. How interesting they say your results still too high ... you on medication to lower it below 500?

My fertility consultant is the endo specialist but he will not treat it below 1000. So frustrating - what would you recommend to get it treated, as it would be much cheaper for nhs to treat that then do anything else. I have had blood tests, doing repeated blood tests now (progesterone quite low on 21 day blood test) and am waiting for a scan and go back mid-June.

A friend is under same consultant, saw a different dr to me though and got repeat bloods, ultrasound, hsg and an appointment in 6 weeks not 12. Her progesterone and prolactin all good. I don't know what I am doing wrong!

I am sorry I don't know what to suggest. My doctor has just doubled my bromocriptine but I forgot to ask what my levels were currently. I imagine they were higher again because of recent mc, It took me 11 weeks to get my period back post that and I was back on the drugs from 5 days post mc starting. That is almost twice what they told me, so I am guessing that is why the doctor is giving me a higher dose.

I wasn't having periods at all though prior to taking the bromocriptine.

Are you ovulating that you are aware of?

The only way I think I may be ovulating is I got peaks this month on CBFM but none at all last month. Still having periods, though short and light.

Then I would keep pressing the specialist. Sorry you have probably already said, have you had an MRI? I have a small growth on my pituitary causing the high prolactin levels.

Hi, no MRI offered. You are right, need to press the specialist! Have got another set of bloods this cycle to have, so am hoping 3 sets of bloods and still no bfp will allow for some medication.

Chipper, do you know what level your prolactin was before they diagnosed the problem/growth for you?

Hi Chipper here - my levels were over 1000 when I was referred to the endo.
Good luck with your next appointment.

Thanks for info and best wishes.

hi,
was good to read other peoples messages about having prolactatomia,i am going threw the process now and have had CT scan and MRI scan and now just waiting to get results,nerous about what medication i will b given TTC,since my husband and i have been trying since jan 09,im 26 but i felt so alone when i was told what was the probable cause of my high prolactin was,nice to read how others are being so strong about there diagnoses and this has helped me a lot to understand things more