ISO IMMUNE NEONATAL THROMBOCYTOPENIA

[agirlandtwoboys]

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My very close friend recently lost her baby at 21weeks.
She went for her 20 week scan to be told that they thought the baby had Spina Bifida. She had to go back the following week to be re scanned and was told that the baby had died. She delivered 2 days later.

She has a review on 12th May with hosp consultant, but asked our GP to let her know if she found anything out 1st.
She went to GP on Thurs expecting to be told that baby had spina bifida or hydrocephalus.

She has been told that her and her husband have incompatible blood - ISOIMMUNE NEONATAL THROMBOCYTOPENIA and that the chances of re occurance are 50-80%.

They have a little girl aready who appears to be fine.

Has anyone heard of this, and more importantly, is there anything that can be done. I am in the dark about immune issues, but someone may know something on here!

Many thanks.

Message withdrawn

How awful for your friend I don't know anything about this but I wonder if IVF using pre-implantation genetic testing offers them any hope of having another healthy child? How terrible for them - to lose their baby and then be told that the reason for this loss may rob them of any other children

hi - i also suffer from this and was diagnosed after my 2nd child was born (both my kids are healthy but the 2nd did have a blood transfusion at birth). i am now pregnant with my 3rd and will undergo treatment throughout the pregnancy. i am trying to find fellow sufferers who have had this treatment but it seems to be very rare. it is treatable so your friend should speak to her doctor about it. i'm happy to help if i can.