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Premature Ovarian Failure Anyone Else

5 replies

lostittoday · 06/03/2009 09:18

Hi
I was diagnosed with this last October after ttc for 14 months and experiencing absent periods.
I have now been ttc for 18 months and I am just not coping emotionally as time is also running out for me at 38.
I do have a glimmer of hope as hrt seems to make me ovulate.
The infertility clinic told me to take a months supply of hrt each time my periods stop to get things going again and it seems to work every time so I am holding onto that piece of hope.
Please is there anyone else on here with this awful condition.

OP posts:
fifitot · 06/03/2009 21:17

Sorry can't help but bumping for you. Sounds awful and don't want your post to go unanswered.

babyboom1979 · 07/03/2009 00:27

Bumping for you as well....

2moggies · 08/03/2009 21:59

Yes same here also aged 38 and ttc over 18 months. Not given HRT, told only chance was donor egg, but waiting list about 3 yrs.

LB1983 · 16/04/2009 15:02

Hi
I thought I'd respond to your post as you seem to be appealing to people who have POF. I can completely sympathise with your situation however, I was diagnosed when I was only 18 years old, I'm now 25 and the reality of the situation still hasn't really sunk in, especially now I'm in a serious relationship of 4 years and we're "planning" ahead (with a plan a,b,c and even d!).

I read your previous msg and you said you had child and wanted another - you need to really hang on to the fact you do have one beautiful, amazing child already. I'm not being negative but realistic - this condition is rare and has a 5% to 7% of naturally conceiving. There are other options available, have you considered egg donation? This is something I am considering as I have been told I can 'carry' a child, but more than likely have no eggs left or very few. My sister has kindly offered to donate.

I wish you all the best but also advise you to be positive and not spiral into a depression by thinking of the "if, buts & maybes" - I've been there at a young age and it isn't a place you want to be. Look forward and research the topic area so you have a better understanding. There is confusion around is POF and early menopause etc, and there are differences between them. There is also a lot more side affects to POF than people realise (hot flushes, dryness, low sex drive etc) A lot more information is available now compared to 8 years ago (I'm happy to send to you, just contact me privately through this site)

All the best and take care
L

Calgary · 11/05/2009 22:39

Lostittoday,
I know your post is a few months old and I hope you found some useful help. I thought I'd try to respond regardless though to give others some links for great POF info and support.
I just turned 39 and was diagnosed with POF last year. My highest FSH was 113! I just went to the daisynetwork.org.uk but find it's info to be unbalanced when compared to other sites that gave me much help: earlymenopause.com and pofsupport.org
Check those out. POF is NOT menopause - we have up to 10% chance of conceiving naturally after diagnosis. Since going on HRT I've ovulated several times so there is always hope!
Good luck!

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