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HyCosy next week, need some reassurance, please.

43 replies

MademoiselleFrenglish · 20/08/2024 12:09

I have a HyCosy booked in for this time next week and I'm absolutely shitting it. I've read countless threads about it on here, but I guess I'm just looking for some reassurance.

I'm seeing my GP tomorrow and I'm going to ask her for some anti anxiety meds and some painkillers, I'm doing lots of breathing etc but at the end of the day I'm scared it's going to hurt.

Could people please tell me their experiences? What type of pain is it? Was your partner allowed in the room with you? How long did it take? What did you feel, i.e nausea, dizziness, sweating etc?

I'm a person who likes to be prepared and know what to expect, but in this case I'm pretty clueless, scared, anxious and dreading the whole thing overall!

OP posts:
MademoiselleFrenglish · 23/08/2024 11:25

Lemonbalm8 · 23/08/2024 10:58

I'm really sorry. These hormonal changes can happen, so many disappointing cycles. Will you do hycosy soon? It's definitely worth doing it to check the tubes. I got pregnant the cycle after it and just before I was about to start IVF.

I think this is the 21st disappointing cycle, just having that type of day where I'm looking at the universe being like "really?!" and feeling sorry for myself. Thought I'd have some good distraction this week as I've got close family over and was really looking forward to seeing them, but they keep going out and not inviting us anywhere, so it's all a bit emotional and crappy at the mo. Doesn't help that they have a 3 month old!

The HyCosy is on Tuesday, absolutely shitting it but crossing my fingers that I at least get some answers. DP has already had a sperm test and I've had blood tests but our gynae won't even meet with us until after the HyCosy, so have spent the past 4 months in the dark, not really knowing what the results mean (beyond googling). Found out I have low iron so was on iron supplements for 3 months, back on them now as the levels didn't rise as well as I'd hoped but no one will even entertain the fact that it could be contributing to fertility issues, so that's super frustrating, certainly as the iron makes me feel like absolute crap, so feeling very much "what's the point".

Sorry for the rant, not a good day today.

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moosey89 · 23/08/2024 11:52

@MademoiselleFrenglish rant away! That's exactly what these boards are for, especially when you're having a crap day. Nothing like a late period to make you question life even more than you already do in a fertility struggle.

Hope your appointment goes well Tuesday - at least it's a step towards doing something. Those steps make me feel a tiny bit in control of what is something really we don't have much control over at all!

MademoiselleFrenglish · 23/08/2024 13:40

@moosey89 Yes you're right, just need to keep reminding myself that the HyCosy is the one thing I can control right now. I recognise your username, I think we've chatted before on these boards. How are things going for you?

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moosey89 · 23/08/2024 17:50

@MademoiselleFrenglish we have indeed! I think it was your opening thread you started which I still remember because it was so honest and funny 😄

Things are....still going! Had my HSG just over a month ago (x-ray version of a hycosy), so this is cycle 2 since, feeling that "3 months" pressure as there's all the talk about lots of women getting pregnant in the 3 months after but I'm just not feeling it. Trying to not get my hopes up.

MademoiselleFrenglish · 24/08/2024 18:19

moosey89 · 23/08/2024 17:50

@MademoiselleFrenglish we have indeed! I think it was your opening thread you started which I still remember because it was so honest and funny 😄

Things are....still going! Had my HSG just over a month ago (x-ray version of a hycosy), so this is cycle 2 since, feeling that "3 months" pressure as there's all the talk about lots of women getting pregnant in the 3 months after but I'm just not feeling it. Trying to not get my hopes up.

Hahahha I remember that thread, weird to think I'm still here almost 6 months later!

Hmm I actually think what I'm having might be an HSG and not a HyCosy (differing French VS English terms!). How was it? Do I need to be worried?

I imagine it's difficult, I just know that my hopes are going to be sky high these next 3 months. It's difficult to know whether you want to indulge the hopeful thoughts as at least it's a reprieve from being miserable a lot of the time, or to keep all hopes rock bottom just in case. How long have you been TTC now? Is your partner dealing with it all ok too?

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moosey89 · 24/08/2024 18:50

@MademoiselleFrenglish I got told my cervix was being difficult so took them a while to find 🙈 wasn't nice but the doctor was lovely all the way through and explained everything that was going on. Then with the dye I had about 20 seconds of really intense cramps, super painful but didn't last long. And then it was just light cramps for a day or so after. I took paracetamol and ibuprofen about an hour beforehand.

It's so frustrating still being here hey - seen so many people come and go, I feel like I've been going backwards 🙈

MademoiselleFrenglish · 25/08/2024 11:58

@moosey89 Damn, doesn't sound pleasant at all! Did you at least get some answers after all of that? I've got some diazepam from the doctor, as well as some ibuprofen so will make sure I'm as drugged up as I can be beforehand!

Yes big time.. I feel like I'm waiting for my number to be called but I'm not sure if I'm even been given a number at this point. It's definitely cemented my decision to only have the one (if I'm that lucky!), I can't face putting myself through all of this again. I have my wedding coming up in May and haven't been able to do anything for it yet because if I am one of the lucky ones who gets pregnant after the procedure, then the due date will also be the wedding date. Feels like everything that's good is currently in limbo.

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moosey89 · 25/08/2024 13:39

@MademoiselleFrenglish the doctors did say to me some women get literally no pain and some get really bad pain - it feels like luck of the draw! I hope you get the no pain option 🤞

No answers for me yet but the doctor there said there was nothing to worry about. All my various test results are being sent to the fertility clinic. My other half has his test at the end of September so hopefully won't be a long wait after that before we get an appointment.

Sorry you're dealing with limbo whilst approaching your wedding - it's so hard at any time, I'm finding it hard just trying to think about booking a holiday for early/mid next year! And I'm with you - I've told my other half I'm not going through all this again. If we want a second (if we get that far) it'll be via adoption which is something I've always wanted to do anyway tbh.

MademoiselleFrenglish · 28/08/2024 09:57

@moosey89 How long have you been TTC now? That's good that there don't appear to be any issues, although probably more frustrating than if they had found any issues to be honest.

My HSG was yesterday and it was unfortunately quite painful for me. If I ever have to have another one I'm going to insist on very strong pain/anxiety meds. I took 2 spasfon, 600mg ibuprofen and some anti-anxiety meds and it still hurt a fair amount, so no clue how it would've felt with no meds at all.

The results are also pretty dire. I apparently have one tube entirely blocked and it took far too long for the liquid to drip into the other one, so they said they're not happy with that one either. They're sending me for an MRI to confirm endometriosis, which I don't understand as I've never had any of the symptoms. My periods are pretty regular, never overly heavy, I don't often have bad cramping etc, so I'm quite confused.

The doctor who did it seemed pretty pissed off at my previous doctors to be honest. Once she'd had a look she asked me if I'd ever had an MRI before and I said no, she said have I ever been asked to have one and I said no, then she asked if I've ever been told of anything "wrong down there" and I said that no, I'd never noticed anything and then she "corrected" me a couple of times by saying "no, you've never been told".

Went for lunch straight after and got a call from the gynae cancelling my appointment that was set for tomorrow, so now have to wait 3 weeks. Feeling utterly depressed and quite terrified, no clue if this means I can't conceive but it's not looking good at all. Think I'll start a new thread at some point asking for experiences from other women in this situation, or just see if I get any replies on this one about it. Fucking sucks.

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moosey89 · 28/08/2024 10:21

@MademoiselleFrenglish I'm so sorry it was painful for you. And that they found so much going on. I am glad though that your doctor seemed on it. Endo can have no outward symptoms at all, so it's best to get checked for sure if they think that you might have it.

And that really sucks about your gynae appointment, how come they cancelled it?

So I've had 2 stints of TTC, 2.5 years with my ex which ended in MMC, and with my current partner we've been trying a couple of years with 2 MMCs. The whole situation sucks. I've just had to sit and watch literally all our friends and family have babies over the last 7 years.

This month my partner has his semen analysis and then we should have our fertility clinic referral finalised at some point after that.

gingerbiscuit24 · 28/08/2024 21:12

Hi @MademoiselleFrenglish, I could’ve written some of your last update myself! I had a HyCosy a couple of weeks ago and found it incredibly painful, to the point that they couldn’t complete the entire procedure (although they did the majority). Thought I was going to faint, vomit or defacate because of the pain- or all three at once! I’ve been told my results are inconclusive, but the doctor is assuming one tube is blocked as no foam appeared to go in, and said of the other tube that the foam was moving very slowly through it. Not the result I was expecting or hoping for! I’ve decided to have a laparoscopy as the results were inconclusive- it could be that my “blocked” tube was actually in spasm as apparently they look very similar on the screen, I’m hoping that’s the case but also trying to stay realistic that it may genuinely been blocked! The laparoscopy should be able to give more definitive conclusions. Anyway, just wanted to give you a little hand hold and say I know how you feel!

Clearinguptheclutter · 28/08/2024 21:19

It wasn’t pleasant but not awful either- comparable to a smear

everyone was super lovely and after I got dressed they showed me the images which showed no particular concern
I got pregnant a few months later

MademoiselleFrenglish · 29/08/2024 11:34

moosey89 · 28/08/2024 10:21

@MademoiselleFrenglish I'm so sorry it was painful for you. And that they found so much going on. I am glad though that your doctor seemed on it. Endo can have no outward symptoms at all, so it's best to get checked for sure if they think that you might have it.

And that really sucks about your gynae appointment, how come they cancelled it?

So I've had 2 stints of TTC, 2.5 years with my ex which ended in MMC, and with my current partner we've been trying a couple of years with 2 MMCs. The whole situation sucks. I've just had to sit and watch literally all our friends and family have babies over the last 7 years.

This month my partner has his semen analysis and then we should have our fertility clinic referral finalised at some point after that.

Not sure why they cancelled it, I've got a feeling I've been bumped lower down the list. I just can't get my head around the fact that I've had tests but no one has looked at them and explained what's going on to me.

I'm sorry you've been trying for so long and have had MMCs, that absolutely sucks. Do you have good support? Fingers crossed your partner's analysis goes well and that it's good news.

OP posts:
MademoiselleFrenglish · 29/08/2024 11:37

gingerbiscuit24 · 28/08/2024 21:12

Hi @MademoiselleFrenglish, I could’ve written some of your last update myself! I had a HyCosy a couple of weeks ago and found it incredibly painful, to the point that they couldn’t complete the entire procedure (although they did the majority). Thought I was going to faint, vomit or defacate because of the pain- or all three at once! I’ve been told my results are inconclusive, but the doctor is assuming one tube is blocked as no foam appeared to go in, and said of the other tube that the foam was moving very slowly through it. Not the result I was expecting or hoping for! I’ve decided to have a laparoscopy as the results were inconclusive- it could be that my “blocked” tube was actually in spasm as apparently they look very similar on the screen, I’m hoping that’s the case but also trying to stay realistic that it may genuinely been blocked! The laparoscopy should be able to give more definitive conclusions. Anyway, just wanted to give you a little hand hold and say I know how you feel!

Wow I'm sorry yours was so painful, does that mean that it's likely the tubes are blocked? What a shitty situation, I wish they would sedate us for these things. I've since read that the tubes can spasm and appear blocked when you're stressed/in pain, so seems silly to do the test with no sedation. Hopefully that's what happened to us both and they're not actually blocked.. who knows.

A laparoscopy is basically like exploratory surgery, isn't. They look at everything from the outside rather than the inside?

Thanks for the hand hold, things are really shitty at the mo on all fronts so it's nice to know someone out there understands. My cat has disappeared and not been back for almost a week, I'm moving house this weekend and also going on holiday this weekend, work is stressful. It just never ends.

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LizzeyBenett · 29/08/2024 15:17

I had one a few months before I fell pregnant. No idea if it helped me fall pregnant , it wasn't pleasant but not awful either it's bearable and it's literally over in a few seconds . Getting the coil in was so much worse for me than the hycosy, I'd try make sure someone is with you just in case but I was fine straight after it

whykeepchanging · 04/10/2024 08:38

Hi All,

Hi,

I was wondering if anyone had cycle changes after their Hycosy?

I had my Hycosy mid September, just before ovulation. When my period came this month it was really light and long. It lasted 8 days instead of my normal 4. And was soo light that it was barely worth using a light tampon. Normally I use super tampons for at least 2 days. It was very noticeable that it was very different.

I'm wondering if the procedure made a difference?

MademoiselleFrenglish · 04/10/2024 11:47

The only change I noticed in mine is that my OPK strip was very very dark, but apparently that doesn't actually mean anything. Have you asked your doctor? I don't think I've had any other changes.

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whykeepchanging · 04/10/2024 12:23

No I haven't yet. I was going to see if it's just a one off or if it happens again this month.

When I've googled it, it says it could be hormonal. Just seems weird as nothing much else has changed. Even after an ectopic and tube removal earlier in the year, my periods were normal straight away 🤷🏻‍♀️

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