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Try again now.. or wait for recurrent miscarriage tests??

10 replies

Summerrose24 · 21/07/2024 19:22

Hello all
Looking for some advice.
I have had 2 miscarriages this year, both missed miscarriages with no sign of anything wrong until the scan. The last ended in a D&C and really traumatic time.
I have tests booked in with a consultant to try find a cause in about 6 weeks time. But I'm due to ovulate next week.. would you wait to TTC again? Any positive stories of successful pregnancies while waiting for recurrent miscarriage tests?? Part of me feels I should wait to see if anything is wrong which could be easily fixed as we feel this is our last try (for a number of complex reasons I won't get in to)

Thank you so much

OP posts:
MrsScotland · 21/07/2024 20:45

I’ve read that if you are going to go through investigations, avoid another pregnancy because the more miscarriages you have, the more your body kind of ‘learns’ that behaviour. I’m not entirely sure on the quality of that advice though. Have a look on the Tommys website to see what it says?

Figtree11 · 21/07/2024 20:56

Hi @Summerrose24 i have also been wondering the same. I had my second MC in April, following my first in November. I have been referred to the recurrent miscarriage clinic, but not til November, and that’s recently been pushed back to January now. Have you gone private for your consultation?
Ive no idea of what caused my first MC, but my second one was a partial molar. So I am very nervous of trying again. But I have decided I will try as I just can’t wait til January

Carportforme · 21/07/2024 22:01

To be honest, there are ladies on here who have had several losses and then a healthy baby and some who have a pattern like mc, mc baby, mc, mc baby so I'm not convinced that our bodies actually learn to miscarry rather than hold on to a pregnancy so to speak.
I guess, if you hade an appointment in only 6 weeks it may indeed be worth waiting but if, like Figtree11, you are having to wait longer, I would probably give it another go.

J had an MMC iin the Autumn, followed by a recent chemical but I am not referred yet so will be trying again and trying low dose aspirin.

AllThePotatoesAreSinging · 21/07/2024 22:33

MrsScotland · 21/07/2024 20:45

I’ve read that if you are going to go through investigations, avoid another pregnancy because the more miscarriages you have, the more your body kind of ‘learns’ that behaviour. I’m not entirely sure on the quality of that advice though. Have a look on the Tommys website to see what it says?

Your body does not learn to have miscarriages and please don’t repeat that again. It’s damaging and incorrect, and to be quite honest I don’t know why you would say something like that.

There is always a medical reason even though science might not know what it is yet. The advances that have been made in the last 40 years in regard to understanding the causes of miscarriage have been akin to watching the Big Bang - and yet it’s just the tip of the iceberg.

OP.

The odds of having a single miscarriage is 1 in 5. It’s thought about half of these are due to chromosome issues.

Of the women that have had 1 miscarriage, about 20% of these will have a second, Again, many of these will be down to chromosome issues. Lightning can strike twice. Having 2 miscarriages doesn’t mean there’s an underlying cause. It might mean there is though which is why many countries (not the UK unless you are 35+) will test after 2. Even after 2 miscarriages though, only 25% of women will have a third. That sounds like a lot but it also means 75% of women will go on to have a successful pregnancy.

Only 1% of women will have 3 or more miscarriages. This is when an underlying cause is more likely. 40% of women who have 3 miscarriages will have another (I am in this group).

I was referred to the recurrent miscarriage clinic after 3 miscarriages. It should have been after 2 as I was 37 but they missed me (although they saw me very quickly when I questioned it after my third). I waited for testing and results because even though my biological clock was ticking, my biological clock was ticking and I didn’t want to lose time to another loss if that makes sense. I turned out to have a clotting disorder (APS) that can’t be tested for when pregnant, which is one reason they ask you to wait, and my next pregnancy was successful. It meant that without treatment my odds of miscarriage were about 82%. With treatment the odds of success are about 80%. The diagnosis was doubly important because APS means I’m at risk of clots which could cause stroke or heart attack, so I now take a daily aspirin as a precaution.

I was pregnant a month after diagnosis and baby arrived exactly a year to the day after my first appointment at the clinic. I had another miscarriage following this but to be fair I was in my 40s at this point. My OB added progesterone and the next pregnancy was successful. So you might need help but even so for every 4 women who go in to have a further miscarriage, 6 women have a successful pregnancy. Got my fingers crossed for you.

I asked at my first appointment about what would happen if I got pregnant between tests and they’ve told me they would monitor me, probably prescribe aspirin and heparin as a precaution (because so many issues are down to clotting) and scan every 2 weeks in the first trimester. You remain under the clinic for all future pregnancies. I moved house during my last pregnancy and was picked up right away by the local clinic, just gave them a call.

MrsScotland · 22/07/2024 03:47

@AllThePotatoesAreSinging I am genuinely sorry that my post has upset you and perhaps it was written with haste. It was only meant to be from a helpful place as a signpost to do more research on the matter before making a decision. If it were me I would ask the clinic I was under for advice, but I appreciate they may say ‘it is up to you’.

I am not saying this from a position of being on my high horse, I have been through a tfmr for a chromosome condition that I know usually causes miscarriages before the 12 week point. I have spent a lot of time looking for answers and used forums like this to get ideas for avenues to do my own research. I’ve also spent a lot of time in the TTC community and I have read what I wrote so I put it out there as something to consider. Im not a medical professional but then again Mumsnet is not a place for professional advice but a place for getting some ideas to do your own research and consider.

Your post was excellent, lots of very helpful info.

Again, my post was only meant to share what I had read someone else being told and give something to consider and I am sorry.

At a glance this is what I could find from a nhs reoccurrent miscarriage clinic about TTC whilst waiting for an appt

www.nbt.nhs.uk/our-services/a-z-services/gynaecology/gynaecology-patient-information/recurrent-miscarriage

Monkeysatonthewall · 22/07/2024 22:46

@MrsScotland I just want to add to what the PP has said - please don't repeat that sentence about body learning to do it, it's incorrect. I obviously know you didn't mean it in a bad way 🏵️

OP, best of luck whether you decide to try with next ovulation or not 🏵️

Summerrose24 · 22/07/2024 23:00

Thanks so much everyone, I only remembered to check this thread tonight as I wasn't getting notifications and I'm overwhelmed by the kind responses, thank you so much.
It makes it much less lonely to talk to others so I really appreciate you taking the time.
I will keep you posted and I'm hoping the tests show if anything is an issue

@AllThePotatoesAreSinging That's really helpful to hear about the APS. I have had a previous pregnancy with my son which had placenta complications and I am starting to wonder if it's all linked. Delighted to hear you have had 2 succesful pregnancies since and also that you were able to catch the issue for your own health. Wishing you all the best.

Thanks again for taking the time to chat me through this, it's been very tough.

OP posts:
Summerrose24 · 22/07/2024 23:10

@AllThePotatoesAreSinging do you mind me asking did you have any symptoms of APS?

OP posts:
Summerrose24 · 29/07/2024 16:07

Hi all,

Just wanted to update that I got the results of the analysis of the last miscarriage and it showed chromosomal issues. A random event which is not reoccurring and could not have been prevented. I still will have the tests in August but I'm glad to have heard this. Also we have decided not to try until after the tests. We are going on holidays this week and hope to relax and enjoy with plenty wine and no thinking about cycles. Thanks for all your support.

OP posts:
Peonies12 · 29/07/2024 16:44

MrsScotland · 21/07/2024 20:45

I’ve read that if you are going to go through investigations, avoid another pregnancy because the more miscarriages you have, the more your body kind of ‘learns’ that behaviour. I’m not entirely sure on the quality of that advice though. Have a look on the Tommys website to see what it says?

This is entirely untrue, and very unhelpful to suggest. Please don't repeat this.

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