Recurrent Loss

[Clarita191]

Hello mummies!

I'm just wondering about other people's experiences. I have had multiple losses - ectopic, stillbirth and x2 miscarriages in a row...as well as a healthy pregnancy bringing me my LG. I was recently referred to the recurrent loss team and I feel a bit underwhelmed. I was initially referred for bloods which were taken and I was told the results would take 2-3months to come back. I was given vit d spray and a prebiotic to take and basically told if I get pregnant in the mean time to book an early scan and to start using the progesterone pessaries again... to complicate things, I had cancer a few years ago and had to wait a year after my initial diagnosis to TTC again so I feel very impatient at the thought of waiting another 2-3months when I have already waited a year and lost 2 babies since and also...they don't seem overly concerned at me getting pregnant in meantime. I am curious as to what things were flagged up for others in this position and just wanting to read some other people's experiences. I'm ovulating this week and very much considering throwing caution to the wind and seeing what happens but just not sure I have the head space for the heart break again.

I'm going to be honest and say my experience of recurrent miscarriage clinics was also completely underwhelming. I had 5 miscarriages and then ultimately 2 ruptured ectopics - wait time to even see the clinic was 3 months minimum and then they just did some cursory blood tests. Wouldn't offer progesterone, no tests on DH sperm, no NK cell testing, waved off with a call us when you next get pregnant and we'll scan you at 6 weeks (usually too late to make much difference by that point) - except during covid and afterwards they weren't doing scans either. I turned to IVF in the end to get additional testing done and eventually did have success x

Will go for bare basics. Alot of ppl know my story.

1 DC and 3 ectopics - one rupture, 5 mc plus multiple chemicals. Finally referred to clinic 6mnth wait due to my age at the time. I was 32. As pp above, not offered anything more than blood work and told to take 75mg aspirin on positive pregnancy test. They only seemed concerned about the frequency of intercourse and suggested we weren't going at it enough. not sure I could have had more sex tbh. Did daily and SMEP

Had to wait 3 months for baseline results and full blood panel. All hormones and egg count at great levels. Came out with everything showing normal bar some active anti bodies. Took 2 years to get a diagnosis. Husband not offered anything. Did tests for him privately. (All was as it should be) I was discharged and told there was nothing else they could do. During this time 2 more mcs. Took time off ttc while waiting on diagnosis.

I was discharged with the same advice as above aspirin on bfp and 6 wk scan to check location. Told to ask for another referral if nothing happened in 6 mnths or if I had another 2 mcs. I was still under 35.

Over the next 6 years I had another 4 mcs and two more ectopics. During covid they were not taking referrals. Told I should stop ttc. I had unexplained secondary infertility and my only option left was private treatment and given my history it was unlikely to result in a healthy pregnancy.

At 41 fell pregnant naturally. Due in a couple of weeks. Will be 42. All has been going well.

I am glad I am not alone in feeling so underwhelmed and I am so grateful for both of you sharing your experiences! One More Cookie Monster I am so sorry for your losses and so excited about your little one on the way! It is horrible being left in the dark because both my miscarriages happened at 10 weeks were baby had stopped growing at 6... it could be a fluke but they are so identical in nature that it just niggles at me that there is something more going on... but I am impatient too... my stillbirth wad sadly at 37 weeks but I have to say the pregnancy itself was healthy just my LG was not. So I know I am able to carry babies and I seem to get pregnant ok but then it all has been going wrong. Sigh. I asked about aspirin when I was at the clinic and they told me I shouldn't take it unless there was a reason to... yet other people I've spoken to have been advised by their consultants to take it regardless. It makes me cross that women are "fobbed off"...if a man's penis was having issues I'm sure it would be investigated and sorted more thoroughly🤣

I am so sorry for your losses as well. I couldn't imagine what you've been through.

The more women I speak to, the more I find that this is sadly so very common in regards to so little being offered on the NHS.

In regards, to my losses they were all roughly within the same 4 week period time and time again. I think along with the private consultant I have seen, that it was due to low grade inflammation which didn't allow implantation to happen correctly. Like you no problems getting pregnant, it was the keeping them that was the issue.

Maybe see if you can have a full blood panel run again plus an anti body panel. You never know what could be lurking. I hope it's nothing and you find your rainbow.

Everyday, I worry and won't stop until there's a healthy baby that's been delivered.

I’m so sorry for everyone’s experiences. I’m also in the same boat, 1 chemical, a text book healthy pregnancy resulting my 4yo son, then when we tried to conceive again last year we had 2x recurrent miscarriages in 4 months. Luckily I got referred to the recurrent miscarriage specialist even though the miscarriages weren’t 3 in a row. But I’ve been on the nhs wait list since November and no update. In the mean time i had basic blood tests from my gp (folic, vitamin D which was shown low, progesterone, thyroid). I then forgot I had private healthcare insurance that the company I work for provides. I called to see if I could be referred for their recurrent miscarriage clinic but they also said I had to have 3 in a row…. I then tried to see a gynaecologist through the healthcare insurance and it was the only thing I feel positive about. We discussed what had happened and she prescribed me 150mg of asprin once I get pregnant , heparin injections 4-12 weeks and progesterone pessaries twice a day 4-12 weeks. I just went and got my antiphospholipid blood test done yesterday to rule that out. The gynaecologist prescribed me heparin because she said there’s a clinic that does a huge amount of blood tests for recurrent miscarriages compared to the nhs, and if anything is out one bit from the blood test then they prescribe heparin. She said there are no negatives taking it. She said if I don’t fall pregnant 6 months in total of trying she will do a HiCosy to check everything is ok. I’ve been pregnant 4 times and got instantly pregnant first try. It’s now been 4 months trying to conceive and I never knew how high my anxiety could get waiting for my period to come filled with disappointment! My period is due this Saturday and I already can feel it coming

Hi Clarita191, I was reading this thread as it sounds like you have some similar experiences to me. I've had two early miscarriages with a neonatal death in the middle. I was advised to take aspirin in my most recent pregnancy, but still that resulted in miscarriage. Did you ever get any good support from the recurrent miscarriage team or anywhere else? I am trying to work out where to turn next. My hospital has done a bunch of blood tests, all of which seem normal so they've basically just advised me to crack on and call them when I get pregnant again. It also feels like pretty underwhelming guidance. I hope you are doing well and feel like some progress is being made somewhere.