Hi folks - this is a long one (sorry) - looking for anyone who has some experience or advice being in a similar situation, hopefully.
I have recently had an appointment at recurrent miscarriage clinic where I had bloods taken to be tested. I have spoken with the midwife who said my ‘well-being bloods’ were all within normal range. I already had this set of bloods taken at the beginning of the year by my GP surgery and it was the same outcome - so that’s good and consistent.
The next set of tests are for antibodies called lupus and antiphospholipid - both can apparently make miscarriage more prevalent due to the proteins in your blood increasing risk of blood clots.
I was told I have the lupus antibodies and this may be why my miscarriages are happening. She said you need two positive tests 12 weeks apart and so I’m booked back in for the second round of testing in December. She has asked that we do not get pregnant in this time and honestly the thought of not trying or tracking has made me feel really upset and anxious. But for the next two months we won’t be using opks or having sex to conceive. Gutting - but, it’s the best thing moving forward to find out what is actually going on.
The midwife said that the lupus antibodies are not due to anything I have done, nor is there anything I need to do in the meantime. However, if we get pregnant again I will be given injections and aspirin to take to help sustain the pregnancy.
I’m really just hoping someone can share their experiences and knowledge with me that have been in this situation. How hard was it trying to conceive with the antibodies? How was the pregnancy? Any sort of lifestyle changes? Etc. I have had a look online for some information but I have found it all quite contradictory and confusing. You can have the antibodies but not have lupus etc? Bit unsure.
I will be meeting with the doctor and midwife for an appointment at the clinic in two weeks and can ask for more clarification but my minds racing now.
Thanks!