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TTC 1 year Varicocele diagnosis

22 replies

Imisscoffee2021 · 09/04/2022 10:49

Me and my husband have been trying to concieve for a year next month and have recently had some news that has shown us that all our efforts have essentially been pointless this whole time. I wanted to pop a post on here just in case our experience might chime with someone and encourage them them investigate sooner if they're struggling too, as time wasted is such a hard thing when TTC, especially if you're nearing 35 like me.
Because we were really targeting ovulation well, I was getting worried that we'd not had a snifter of a pink line on a pregnancy test yet, and looked at myself first as the possible cause, getting trans-vaginal ultrasound and blood tests done. They all came back perfectly so although it hadn't been a year we decided to get my husband a semen analysis.
Turns out he has a severely low count, concentration, motility and morphology, making the chance of us getting pregnant naturally almost 0%. All that focus and hope each month, hundreds of pounds on opks, sperm friendly lube, pregnancy tests, vitamins and not to mention the mental toll of the two week wait and disappointment of AF suddenly seemed so utterly pointless, but we pulled ourselves together and began looking into the next steps.

One possible cause is physiological like a varicocele, and my husband had actually gone to the GP about ten years ago early in our relationship to check if he had a varicocele because one side of his testicle was bigger and there was a feeling of something else in there. The GP said he definitely doesn't have them so we didn't give it another moments thought.

Cut to ten years later and we paid for a private urology consultation (£160) and it turns out he does have a varicocele. A big one, grade 3 that is visible never mind only being diagnosable by a physical examination. I'm trying not to be too furiously resentful at that first GP for misdiagnosing him and essentially making us infertile while we try for our first baby ten years later as its not helpful to have in my head, but at least now we know. We'll be pushing for a fast varicocele embolization and hope that improves things but his results were so low even a 100% improvement won't take us to the lowest baseline of 'normal' sperm, so it may just even delay us further from possible IVF/ICSI.

Hope this isn't too long a post or seemingly irrelevant, I just wanted to share so that perhaps someone else might push for an investigation sooner and not buy into the whole 'it can take a year', just in case it's something more serious as if we had waited we just would have added more months with 0% chance to our journey to concieve.

Xx

OP posts:
Summerdays90 · 19/08/2022 18:58

Imisscoffee2021 · 09/04/2022 10:49

Me and my husband have been trying to concieve for a year next month and have recently had some news that has shown us that all our efforts have essentially been pointless this whole time. I wanted to pop a post on here just in case our experience might chime with someone and encourage them them investigate sooner if they're struggling too, as time wasted is such a hard thing when TTC, especially if you're nearing 35 like me.
Because we were really targeting ovulation well, I was getting worried that we'd not had a snifter of a pink line on a pregnancy test yet, and looked at myself first as the possible cause, getting trans-vaginal ultrasound and blood tests done. They all came back perfectly so although it hadn't been a year we decided to get my husband a semen analysis.
Turns out he has a severely low count, concentration, motility and morphology, making the chance of us getting pregnant naturally almost 0%. All that focus and hope each month, hundreds of pounds on opks, sperm friendly lube, pregnancy tests, vitamins and not to mention the mental toll of the two week wait and disappointment of AF suddenly seemed so utterly pointless, but we pulled ourselves together and began looking into the next steps.

One possible cause is physiological like a varicocele, and my husband had actually gone to the GP about ten years ago early in our relationship to check if he had a varicocele because one side of his testicle was bigger and there was a feeling of something else in there. The GP said he definitely doesn't have them so we didn't give it another moments thought.

Cut to ten years later and we paid for a private urology consultation (£160) and it turns out he does have a varicocele. A big one, grade 3 that is visible never mind only being diagnosable by a physical examination. I'm trying not to be too furiously resentful at that first GP for misdiagnosing him and essentially making us infertile while we try for our first baby ten years later as its not helpful to have in my head, but at least now we know. We'll be pushing for a fast varicocele embolization and hope that improves things but his results were so low even a 100% improvement won't take us to the lowest baseline of 'normal' sperm, so it may just even delay us further from possible IVF/ICSI.

Hope this isn't too long a post or seemingly irrelevant, I just wanted to share so that perhaps someone else might push for an investigation sooner and not buy into the whole 'it can take a year', just in case it's something more serious as if we had waited we just would have added more months with 0% chance to our journey to concieve.

Xx

Hello!

Just come across your post and we are in an almost identical position - finding it hard to handle!

Have you made any progress since your last post in terms of treating the varicocele or did you decide to go straight for ivf? I can't process what to do!

Thank you x

Imisscoffee2021 · 19/08/2022 19:44

Hi @Summerdays90

We paid privately to get it embolised, but that didn't work as the radiologist couldn't find the vein after 40 mins rummaging. He warned my husband it happens to 10% of men before the op but sods law it has to be him poor fella. So only other option is surgical. We decided to go to IVF, because of the potential risks in surgery.

What we've found confusing is the different urologists opinions of varicoceles on fertility. The first private urologist said absolutely get it embolised BEFORE ivf because ivf is so invasive. After we went back to NHS when the embolization failed, the urologist said it doesn't have a bearing on sperm parameters and to go straight to IVF (and he was had rude and dismissive attitude when my husband wanted to discuss another urologists opinion with him, god forbid a well informed patient!)

We've gone private for a multicycle package of IVF with ICSI while concurrently going through the lengthy NHS referrals as we don't lose our two rounds even if you have private in our CCG, and because I'm 34 we want to get this done fast. I'm on day three of stims two months after initial tests at the clinic and am feeling positive, but also prepared for it not to work at first because of the varicocele, as I've read so many stories on here and in clinical documents about dna fragmentation, it's become like the bogey man in my mind!

My husband has also been doing all he can to try and improve on that, by ... replenishing I'll say, every two days or so, taking proxeed and has completely stopped alcohol and caffeine, though he wasn't a big drinker.

Lots of people have a successful embolization and go on to concieve naturally, or optimise their IVF rounds if time isn't on their size, there is alot to be positive about, we've just had two rounds of bad luck with my husband's, hopefully that luck changes now were on the IVF journey :) Hope that helps, wishing you all the best on your journey! X

OP posts:
Imisscoffee2021 · 19/08/2022 19:50

Side*

OP posts:
IslaO · 04/09/2022 14:04

@Imisscoffee2021 thank you for your post! I am in the exact same position as you in your first post.

DP has a variceole diagnosed in 2020. We were told it wasn’t an issue. Started TTC in 2021 and just recently had a SA done- zero sperm present. It was like a punch to the stomach. Don’t know what to do or where to go from here. I just know the two are linked and he is so against any sort of donor sperm right now. I’m 33 and he’s 34. I’m terrified.

wanted to check in on you and see how your journey is going?

IslaO · 04/09/2022 14:04

@Summerdays90 how is your journey going? X

MarmiteCoriander · 04/09/2022 14:20

Sorry you have gone through this OP. You do realise though 10yrs back, when the GP examined your husband- it may not have been as big or an actual varicocele? If his testicle is still larger, and he never got it checked again- esp after having issues TTC- then how on earth can you blame the GP from 10yrs ago! Surely it would have been obvious to get it checked out sooner because alot can change physically in 10yrs!

I've read that lycopene can be helpful in improving sperm quality and motility. I was unable to find any tangible research papers, but it can't hurt. Its found naturally in red and orange fruit/veg, but comes as a stand alone supplement, or often in mens fertility/conception vitamins.

I've had 12yrs TTC, including 2 rounds of IVF- no living children. I know it can be a long, stressful road. Best of luck with your journey.

Imisscoffee2021 · 04/09/2022 15:21

@MarmiteCoriander He suspected he had a varicocele because he (and I) felt the mass inside his testicle, which is why he went to the GP, as well as he had mild pains from time to time in it. The doctor only checked him standing up and the clinical best practise for diagnosis is to check lying down, we have since found out, as the varicocele could be missed. I think they genuinely weren't equipped to make the diagnosis, but they should have referred him to a urologist rather than saying he definitely doesn't have a varicocele. Varicoceles also develop over puberty in general and he was well past that stage. So in trusting an incorrect diagnosis based on an incomplete examination the varicocele has been allowed to persist, and perhaps get worse.

In a way that gp error was useful as it has really pushed us in a quick diagnosis of the varicocele through private means, and though unfortunately it couldn't be embolized, we had to find that out too so we were glad we didn't wait for the op on NHS only to find that out.

We've just had our first round of two that we've paid for, for ICSI, 16 months to the day amost of starting to TTC, so we're feeling more positive about things now. We got 6 blastocysts of top quality, 5 now frozen, after hubby had taken 3 months of vitamins to improve aperm quality and had a regime of ejaculating every few days to refresh sperm and try to avoid dreaded DNA fragmentation, so we aren't pregnant yet (rather PUPO with a hatching 5 day blast on board!) but we're hopefully getting there day by day 🤞

Thank you for well wishes, and best of luck on your journey too :) x

OP posts:
Imisscoffee2021 · 04/09/2022 15:29

@IslaO it's a frustrating thing for DH to have because so so so many clinicians and urologists disagree if a varicocele affects sperm. The first urologist we saw privately but working in NHS hidpital said it did and advised embolization, the expert consultation in urology at a London private hospital where we attempted embolization said it mattered too. After the embolization failed we decided to go for IVF in the meantime and ny DH went back into NHS for further investigation of the varicocele, and he had an awful experience with the urologist this time (different from the first) who said varicoceles don't make a difference and go straight to IVF with ICSI.
It seeks to be their answer for everything and then you read forum after forum of women who have had embryos and then huge drop off after 3 days showing a sperm issue, then either had embolization or surgical sperm removal and got good quality embryos afterwards.
With my experience doing NHS privately, they will want to do a few tests on your husband despite the varicocele if there is zero sperm to check he doesn't have a few inheritance conditions like cystic fibrosis. Then, they would surgically remove sperm periodically and freeze I believe to get enough for an ICSI cycle.

I just did an ICSI cycle, completely spooked from many ladies experiences of dna fragmentation and embryo drop off, so my husband went all in in the months leading up to it , taking wellman vitamin complex, stopping any caffeine and all alcohol (not a huge drinker but anything helps) and wearing looser underwear as well as shorts round the house. We had 7 eggs at retrival, 7 fertilised, and 7 made it to day 5. One was a bit slower so couldn't be frozen but the other 5 were top grade and frozen, and I'm currently PUPO with a hatching blastocyst, after being in so much despair when I wrote the original post!

Good luck with your journey and hope our experience helps, just keep pushing for information from the clinicians x

OP posts:
K8dferXdder · 01/10/2022 19:43

Hi @Imisscoffee2021, hope things are well on your end. Wanted to check what tests was your husband done for cystic fybrosis? We never had such test and wanted to know more. Was it done through NHS or privately? We were suggested also to do periodic sperm freezing and do IMSI after that. Did you have this as well to achieve the good quality embryos? Really don’t know which route to take. It is so difficult.

Imisscoffee2021 · 01/10/2022 19:59

@K8dferXdder Heya, he hasn't had the test yet but the consultant said his count was so low that they have to check that, seems mad when he doesn't have CF himself and he has a huge varicoele, but many doctors don't believe varicoceles cause low sperm count! Which clearly they do.
We had normal ICSI, we saw this cycle as a test run and if it didn't go well we could do surgical sperm removal next as we bought a multi cycle package. First cycle was a tentative chemical unfortunately so they're going to increase my progesterone for my frozen transfer this month, so hoping one of those 5 frosties a sticker! I did lots of healthy eating, exercise and vitamin intake for egg quality, and avoided all the things in It Starts with the Egg, even nail narnish so my nails have been hideous! My husband took proxeed and wellman, quit caffeine and alcohol and wore loose fitting boxers, and had no baths for 3 months before IVF, just showers. Something must have worked as we got 6 blastocysts from 7 eggs, good and top quality.
Obviously wish we could have the varicocele embolised as we won't concieve naturally ever with it, but hoping IVF magic works for us! Where are you with your journey atm?

OP posts:
Iamneverfull · 01/10/2022 20:32

Hello, I just saw your post and we had exactly the same issue only it was 6 years of misdiagnosis/lack of them wanting to investigate. My dp had an embolism I think (something with coils?) and 3 months later I was pregnant! Recently we were scared to ttc again and it happened first time which was a shock, we were expecting last time to be a fluke after the operation.
The operation itself was so quick, 15 mins and he walked out absolutely fine a few hours later. I was so relieved but so angry we went through such hell for 6 years when it was something so quick and simple to fix. Good luck!

Iamneverfull · 01/10/2022 20:36

Sorry op I didn't realise this was an older post, I'm sorry to hear the op didn't work. Wishing you all the best with your cycle!

feelinglost22 · 01/10/2022 21:14

Iamneverfull · 01/10/2022 20:36

Sorry op I didn't realise this was an older post, I'm sorry to hear the op didn't work. Wishing you all the best with your cycle!

This is amazing news!!! So pleased for you.

My partner is booked in for double embolisation next week!

Can I ask if your partners were severe varicoceles? My partner had a moderate to severe on the left at 3.2mm and mild on the right st 2.2mm.

Also - do you happen to know what his semen results were like before the embolisation? Did he have low counts? My partners are really low across the board!

Thanks in advance x

K8dferXdder · 01/10/2022 22:21

@Iamneverfull, @feelinglost22 where do your husbands have the embolision? We are looking for a cheap options, do NHS do it at all or did you go private?
After the failed ICSI we are at the moment waiting for an appointment with an urologist.
it is such a long journey 😌

feelinglost22 · 01/10/2022 22:30

K8dferXdder · 01/10/2022 22:21

@Iamneverfull, @feelinglost22 where do your husbands have the embolision? We are looking for a cheap options, do NHS do it at all or did you go private?
After the failed ICSI we are at the moment waiting for an appointment with an urologist.
it is such a long journey 😌

We are going to Wexham Park hospital - it's an NHS hospital but we are going through the private section and self funding to speed up the process.

It's hit and miss whether they treat on the NHS unless your husband complains about pain and it isn't just related to fertility issues as a lot of people don't believe they having it does has any impact.. so if your husband says it's causing extreme pain and getting in the way of daily activities; they would likely do it. Your husband will need an ultrasound first and then your GP will likely refer to urology and then at that point is the referral for embolisation. The wait to see a urologist on the NHS where we live was 4 months and as it wouldn't be classed as urgent, and then likely to be another 6 months for the actual embolisation. It could be totally different where we are but we've just had a bad experience and couldn't keep waiting! Hope you get sorted soon! Good luck on your journey xx

IslaO · 05/11/2022 16:43

@Imisscoffee2021 just reading through this thread and wondering how you’re doing? X

Imisscoffee2021 · 05/11/2022 17:08

@IslaO thank you for thinking of me :) I'm currently embryo on board from first frozen transfer, trst day Monday but I've been getting positives since 8dpo :) totally anxious and obsessing over line progression, convinced AF will turn up soon but taking it a day at a time, never ever had a whiff of a BFP in 18 months of TTC! How's you?

TTC 1 year Varicocele diagnosis
OP posts:
IslaO · 17/11/2022 21:23

@Imisscoffee2021 oh my goodness how have I only seen this?!!! Congratulations!!! How are you doing? This is the best news to have stumbled across on one of my aimless scrolls hoping that these forums will give me the magic cure for my fertility struggles 😂 so so delighted for you!!

Imisscoffee2021 · 17/11/2022 21:31

@IslaO thank you! It's actually been a learning curve, for so long I dreamed of a bfp and thought all my worries would be over once I saw those two link lines ... nope! I've paid for several hcgs as my clinic doesn't offer them and have had great rises, but had the odd little bit of spotting on one or two days since the bfp, which freak me out every time, so much so I had an early scan yesterday at 5+4. I saw the gestational sac, yolk sac and foetal pole where it should be and just started feeling a little secure and then today had a gush of red blood! Only the one and nothing since but what a rollercoaster this is! Have another scan on Saturday to check again, wish I could just relax and enjoy this but it seems to be a thing with couples who've struggled, my husband and I just can't count our chickens yet :)

How are you doing? Xx

OP posts:
IslaO · 26/02/2023 01:58

Hello @Imisscoffee2021 - just reading through old posts and wondering how you are doing? We got to the bottom of our azoo diagnosis- CF carrier and no vas deferens. So we are pushing forward with next steps. Hope you are doing well and relaxing into everything but j know that’s easier said than done! Xx

Imisscoffee2021 · 26/02/2023 05:25

Hi @IslaO :) so glad you have a diagnosis, what are the next steps for you both? Is ut straight to IVF with SSR or are there treatments first?

I'm doing well thanks, up at this hour because of the usual early morning bladder busting from the growing bubs😅 I'm 20 +1 and can feel him now, my husband felt his tiny kicks on Thursday for the first time too. I have my 20 week anomaly scan tomorrow, feel world's away from this time last year getting the varicocele diagnosis!

Hope it's not too long for you, keep in touch :) xx

OP posts:
IslaO · 26/02/2023 10:10

Oh @Imisscoffee2021 what a beacon of hope you are! This is so lovely to read, I’m over the moon for you! We have the SSR and then IVF fun probably starting in April. Every step of the way is so nail biting though isn’t it?! Like, will they find sperm? Will be be ok quality? How many eggs will I get? How many will fertilise? Bahhh!! But hearing stories like yours really eggs me on and gives me hope! So amazing to hear your hubby can feel the kicks x

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