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Ttc with endometriosis

7 replies

MumToAButterfly · 22/03/2022 08:42

Hey ladies, been ttc for 3 years now and just been diagnosed with endo. I’m in the uk and not eligible for the NhS fertility help as I already have an 8 year old. Before I go private, can anyone recommend a vitamin shake up, thing I could try to better my chances, diet changes? Can find loads online about the condition but not lots on ttc with it and it’s got me a bit flustered 😕

OP posts:
becarefuloutthere · 22/03/2022 08:53

Hi @MumToAButterfly this fb group is full of advice on endo and helped me when I was ttc and getting diagnosed. www.facebook.com/groups/1148144608538280/?ref=share
Best of luck!

ChoiceMummy · 22/03/2022 19:32

My personal advice, get the endo under control before starting anything.
Don't say you're ttc, get it tested with a lap and removed, request zoladex. Get it as zapped as possible. Then ttc like mad. You're most fertile in the 3 months after the removal.
Not treating in my experience is a false economy.

Iflyaway · 22/03/2022 19:48

Hi OP,

I had Endo. Way back when. I had progesterone or whatever you call it to simulate pregnancy. I stopped it myself after 8 months. The gynycologist was not pleased. 70's/80's.

While doing that I also went for natural healing, anything to heal it.
Acupuncture, homeopathy, natural healing, reiki etc.

Don't know what helped but my DS is going to be 31 this year.

Never give up!

catandbabymama · 22/03/2022 19:55

I have Endometriosis and PCOS.
Endometriosis was formally diagnosed in 2020. I had a laparoscopy and they burnt away what they could. I got pregnant naturally (absolutely no changes, no vitamins etc) 7 months later. We had been TTC for 2 and a half years so not quite as long as you but still a while.
You need to really, really push to see a gynae and get referred for a laparoscopy. It took me a decade to get my diagnosis.
Good luck x

Iflyaway · 22/03/2022 20:00

@becarefuloutthere

That's the beauty of FB (for all their faults...) it has all these groups...

In my day it was not even online, but a paper newsletter set up about it which you would get in the post.The beginning of the Endometriosis Society.

Strange really. There is still so little known about it.

Maybe mystifiying, maybe just not interested doctors (most don't know about it even, you have to educate them). Hmm

Do you still in 2022?! That just makes me sad about how many women suffer from it. It's just dismissed as painful periods.

Painful sex is what made me realise that is not normal, so went on a "detective hunt"....

Wishing every woman in the world with endo to find their path to healing and be rid of it.

Iflyaway · 22/03/2022 20:16

It took me a decade to get my diagnosis.

That is absolutely shocking!! So much for the wonderful NHS eh?

Mind you. Endo is such a mystery in the medical world. There should be so much more research into it.

But hey! You're a woman. Deal with your mentrual cycle!

Men generally are still shit scared of the workings of the female body. Puberty (lustful men, creeps), menstruation - NO Mention of THAT!!, childbirth, menopause.... "Let's NOT GO THERE!!

And now we have men pretending to be women. TAKING OVER OUR REALITY AND SPACES while pretending they are like US!

Fuck off!!

Rant over.

Hope you get a great healing from it OP, and everyone else.

OreoMilkshakeExtraCream · 22/03/2022 20:17

I was diagnosed with endo and had a laparoscopy. Like OPs have said, you are at your most fertile 3 months afterwards. Some also say a gluten free diet helps. Like you I was ttc for 2.5 years when I had the op. I was able to conceive naturally 6 months after. I know of a few friends with endo who also had a laparoscopy and conceived afterwards so would recommend you try for this on the NHS. I was able to and had a 4 year old at the time.

Dr confirmed if I didn't conceive within a year of the op, I would not be entitled to any further fertility treatment and would need to go down the private route so definitely worth asking. Good luck OP

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