TTC with Adenomyosis

[KayC19]

Hi, I'm very new to all of these forums and Mumsnet in general!

We've been TTC for 8 months and recently paid for private fertility tests for peace of mind. Everything looks good, no real cause for concern, but the one thing they diagnosed me with is Adenomyosis.

I've never heard of this before, as I don't suffer any symptoms. I don't have painful periods, just the usual cramps like any of us get, no bleeding/spotting outside of my period, I have regular periods, they're not extremely heavy etc. The only symptom I do notice from time to time is that I get mild cramping occasionally (or pinching which may be a better description) throughout my cycle - not just during the two-week-wait or during my period.

All the doctor said was: it's associated with painful periods and if you don't experience that, then I'm sure you're fine. I've not found that very reassuring due to lack of information given to me and Google searches pretty much make out your best shot is IVF when you have adenomyosis, and even then it can be difficult - but there's no clarity of whether there are different levels/extremes of this condition - it's so overwhelming!

I'd love to hear from others who are either TTC or have successfully conceived and also have adenomyosis of any severity. How long did it take you to conceive? And were there any specific supplements you were advised to take, diets to follow etc. to help with implantation?

You too @Gillseybear! Hope you all have an amazing one, and here’s to the 2022 baby’s 🤞💕

@KayC19

You too *@Gillseybear*! Hope you all have an amazing one, and here’s to the 2022 baby’s 🤞💕

I am in two minds about that but a big part of me hopes I get my BFP soon

It’s been a while, but I wanted to come back and update you all/get your thoughts. We’ve had our first fertility consultation and should have our follow-up in the next 1-2 weeks. I had to have my blood tests repeated as my GP booked them all on the wrong days of my cycle (typical), so that’s what my follow-up is for - to discuss the results as they were 4 weeks ago.

Today I’m 13dpo with AF due today. I’ve had cramping for a solid week which is unlike me before AF - I normally get it just on the day.

I took a cheap early test yesterday afternoon with my 4th wee of the day. Then got the top result within a minute.

This morning I did another early test with FMU and got the bottom result. The lines are there for both tests, but are very different also. I’m going to test again this afternoon as I’ve heard FMU isn’t always the best for everyone, but what do you think?

Hi @KayC19
Just scrolling through as I'm in a similar situation and wondered where you're up to.

I've had three early miscariages and I've had all tests which have come back normal. I also paid privately for a scan to check everything was ok and I was told (and shown) this is what happens as we get older (I'm 36) and that I had 'mild adenomyosis, with no other symptoms so doesnt warrant further investigation'.

I'm worried the Adeno is causing my MC's. So I'm wondering if you had any updates and how you're getting on xx

Hi @Tilber

So sorry to hear about your losses :(

I actually have very positive news - I'm 10 weeks pregnant!

I had brown spotting in the very early weeks which was worrying me as this is my first pregnancy so no idea what was normal or not. I had a scan at 7 weeks for reassurance but also because I'm a fraternal twin and my younger siblings are too, so there was a risk I'd be carrying multiples. Everything was good at that scan: measuring as expected, saw the heart beating and even saw the part of my uterus where the embryo would've implanted and they said that's why I'd have had the spotting. We have our 12 week scan on 6th July so I have everything crossed things are still fine then.

My last post showed a very faint bfp, but turns out they were faulty thanks to Sainsbury's own-branded tests being notorious for that (wish I'd known before buying them).

I ended up having a HyCoSy at the very end of April as it was the last test I needed to check everything was okay and that the mild adenomyosis diagnosis was the only thing that could be potentially affecting us. Just before the test they checked my ovaries and uterus again and said my uterine lining was now showing perfectly normal at 8.2mm and my right ovary had a dominant follicle at 17mm which meant I'd ovulate 2 days later.

Whereas the last time I had a transvaginal scan when I was first diagnosed with mild adenomyosis, I was around 1 week away from ovulating as my dominant follicle was only 11mm, but my uterine lining was a lot thicker at 12.3mm and likely to get much thicker to prepare for ovulation - hence the diagnosis. So two very different scenarios. They said I still had spots of mild adenomyosis, but barely noticeable compared to my last scan which was bizarre.

I don't know if this is reassuring, as I'm the same as you where I feel like everyone was telling me the adenomyosis won't affect anything, but at my first midwife appointment last week they asked if I suffered with endometriosis and I said no but I was diagnosed with mild adenomyosis in November - they had to ask me to spell it as it wasn't even on their system as an option to select and neither the midwife or student midwife had heard of it before. I was relieved in a way where I figured, well it's obviously not that big of a deal if it's not even on the system, but at the same time I thought, well what if adenomyosis causes complications and they don't know? Definitely worth getting a few opinions I think!

x

@KayC19
Oh thank you so much for coming back to me. Sorry I havent checked hereand only just seen the notification.

Congratulations!! I'm so pleased everything is going well.

And yes, that's really reassuring that even the professionals dont really know about its, so hopefully its not a big deal.

I've actually just found out I'm pregnant again. Absolutely terrified, but hoping the outcome is different this time xx

@Tilber oh that’s great news!!! I have everything crossed everything will be great and healthy for you and baby 💕✨

Hi ladies,

I can see you both managed to get pregnant with adenomyosis. Congrats!

Just a quick background about me. I have a 3 year old and then got pregnant again when he was 15 months old with our second but her lost her at 18 weeks. So no issues getting pregnant naturally.

we have been TTC since and no luck. Had various tests, a hyterscopy etc and been on the waiting list for a lap. Since July 2021 so 5 months after the miscarriage I started getting brown spotting for a whole week before every single period.

Now I’ve started IVF and it’s been picked up twice of adenomyosis. I’ve had egg collection and 1 fresh transfer which I believe has failed.

I don’t know if to go for the lap next month as I’ve finally got to the top of the waiting list or whether to ask for a down regulation for a frozen embryo transfer.

I just feel devastated and I saw the area really clear on the scan and it was very close to my lining and looked like focal adenomyosis although I don’t really know much about it apart from it can affect IVF outcomes.

I can’t stay off google :( I have a phone call with my Dr next week at my fertility clinic but I just feel so lost.

Hi ladies, in similar situation - did you manage successful pregnancies? Congratulations! Xxx