Immune/NK cells - pred thread 28

[myrainbowjourney]

Hi Ladies

New thread 🥰

If you comment to hold your place. I'll try and tag as many as I can xxx

@Tumby you will be under excellent care with Dr. Jan. I even got a call off him on my holiday yesterday to make sure everything was fine three weeks after the last procedure I had with him. He's very thorough x

Oh @Tumby I am so so sorry ❤️ I'm heartbroken for you. Dr Jan is very kind, you're in good hands with him. I'll be thinking of you xxx

@treesall So good to hear your scan went well and that everything looks good! ❤️

I'm sorry, I must have missed all of the other messages.
@Tumby I'm so sorry to hear. Sending you lots of love and strength. It's such a painful time, so make sure to take good care of yourself.
I also had a MVA last year. The good thing was that it was fairly quick and not very painful. The nurses were great and helped me through.
X

Thank you everyone for being so kind. It really means a lot, especially at a time when nobody in the world seems to understand.
Xxx

I hope today goes as well as is possible @Tumby. I'll be thinking of you. Xx

Thinking of you too @Tumby. Take care and be gentle with yourself xxxxxxxxx

Thank you so much, ladies. That's very kind.
It was such a surreal experience but done now & we're home. Really don't know what to do with myself. Left home 2 days ago with a baby that I really thought would be ok & now it's gone. I just feel empty. Xxx

I'm so sorry @Tumby it's the worst feeling in the world. Noone can say anything to make it feel better (and people can be so clumsy in saying stupid/unhelpful things!) Take care of yourself, take time to grieve and don't be too hard on yourself. It's OK and totally normal to feel like this. Sending a lot of love your way x

Ah thank you @89Hope xx

I wondered whether anyone else has been through a similar experience...i.e. being on Dr S' plan but it failing and then having success? I just thought that we had a plan and felt like we were in control again & I'm really reluctant to just continue with him with additional things added if it's just not going to work with all the cost/travel/anguish. I know that nothing is 100% but he just kept throwing the '80% success rate' at us and I'm sure he would have us continue at any cost...xxx

@Tumby my friend had a miscarriage under Dr S. He adjusted her treatment for their second attempt, meaning she took an extra drug (and ditched the intralipids because she couldn't afford them) and she's now 37 weeks. I know that's just one individual but I hope it is of some comfort. Sending you a big, massive hug. Xx

Thank you @treesall that does help. We have a zoom call with him at the end of September to get the results of the karotyping & see whether we need a new plan but just not sure at the mo whether to continue.
Huge congrats to you on your good news btw. Xxx

Hi @Tumby im so sorry to hear of your loss and I know there is nothing anyone can say but be kind to yourself. I am with Miss Viswanatha at the RMC at Epsom/ st Helier hospital under the NHS and she works alongside Mr S and apparently advises same treatments he does. Would it be possible to get a referral so you don’t have such high costs and can carry on? Thinking of you at this sad time xx

@Tumby hello. I’m sorry to hear what you’re going through.

I wanted to give you some hope. I had my fifth miscarriage under the care of Dr. S in August 2017. He changed my protocol by adding hydroxy and I then had my daughter a little over one year later in September 2018.

It’s a traumatic time but stick with him x

Thank you very much for the hope @Naticle. I was on hydroxy and monthly intralipids but maybe I need pred too...I also worry that one of us are carriers of chromosome problems so we may never succeed despite any of Dr S' plans. But he said he doesn't want us to have karotyping testing as 'no point'.
I'm now in extreme amounts of pain, I can't even stand up so the clinic have said I need to go to A&E. I just can't believe it, it's like a living hell. The op itself cost over 2k as well. We're close to having nothing left.
Sorry, I feel like I've hijacked this thread a bit. Thank you to you all for the support xxx

Oh my gosh. I’m so sorry. I had similar incident with the one medical evacuation because they’d not removed all the contents and so your body is still trying to remove them. I hope you get the pain and emotional support you need.

Which a&e are you heading to? If posting on here is offering emotional support then keep posting. We’re all here for you x

Oh @Tumby you poor thing. I'm so sorry that you are now in pain. It does sound like you should get checked out ASAP though, I've only had tenderness / aching after wards and not the extreme pain you're in. It's bad enough having to go through that procedure without trauma afterwards.

Don't feel youre hijacking the tread, we are here as your virtual support and that's what it's for! Sending you a big hug. Do let us know how you get on xx

I'm so sorry you're going through this @Tumby ❤️ I hope you aren't waiting too long in A&E and that it's nothing serious. I completely understand where you're coming from, it's hard to know what to do for the best. I hope that the testing on your baby gives some answers. It is possible that you need prednisolone as well. Please let us know how you get on today, thinking of you xx

I got my results back, everything was normal, so no infection and no inflammation. The only thing that did show was I was receptive for our transfer window if I take 5 days of progesterone and with my fresh cycle I did 4.5 days 🤷🏻‍♀️ whether it made a difference or not, I'm not sure. I was kind of hoping we would find something to treat. My dh is very pragmatic and says that ivf isn't expected to work first time, so feels we had bad luck with our chemical pregnancy and wants to move forward with our frozen embryo transfer. So I've made a start and we've got a couple of appointments booked in, hoping for an October transfer. As my tests were all clear, we'll give it a try this month as I'm near ovulation, but fully expecting to be on the hrt, lucky dh! 😂

I hope everyone is doing OK x

@Tumby I'm so sorry to hear what you've been going through, it's just rotten. I hope you're ok. We are all here for you, there's no such thing as hijacking.

@VenusStarr in a way I'm glad for you that there's nothing to treat but I also know that sometimes you want there to be something wrong so that it wasn't just more 'bad luck'. I've joked before that I may as well just get 'unlucky' tattooed on my forehead to stop the doctors saying it as it winds me up so much! I'm glad you have the transfer booked in, and it gives you a bit of time to build up to it and enjoy life a little bit without needing to be prodded by doctors for a little while.

Hey @Tumby, I hope you are feeling alright and are back home. So sorry to hear that you were in pain after the op. I hope things will get better very soon. ❤️ I agree with everyone else, we are here for you.

@VenusStarr, I kind of agree with @Lozfish, in general it's good that everything came back clear and there is nothing wrong. Exciting to hear that you are booking in a transfer for October. ☺️

I was supposed to get my first results back this week, but somehow the receptionist messed up the timings and now I have to wait another 2 weeks. Also sent an email to Dr Quenby in Coventry for NK cell testing, but I'm still on the waiting list. This waiting game...

A lovely weekend to everyone x

Morning all. Feeling a bit low today as I tested at 10DPO and then 12DPO and BFN. I know it was a long shot to think it could happen first cycle but you always hope don't you! Before this week I told myself I didn't think I was ready to be pregnant again but now I know I'm not, I'm feeling really sad 😞 I know it will happen, I'm just having one of those days where I'm fed up of being disappointed. Did anyone else/is anyone else going through the same? x

Hey all ❤️
So, went to the EPU this morning which felt weird given I'm not pregnant anymore. The scan showed there's still some pregnancy tissue left in there & it's my body trying to expel it causing the pain. Just a never ending nightmare really as they've said it could take weeks to come out. I just want to be able to move on & grieve. I just feel so silly & wish I'd not paid all that money for a procedure when we could have had it done on the NHS, but just felt under pressure and my head was a complete mess. I think a few of you have unfortunately been through similar experiences? Xx

@VenusStarr I really hope your transfer goes well & I think your dh is right re it not working first time. Keeping everything I can crossed for you xx

@Lozfish I totally get how you feel re the BFN each month. Even though you're not necessarily expecting it, you can still feel deflated.

On the plus side, the nurses were so lovely and put me in touch with some support organisations & referred me for psychological support which is just so important & often gets neglected when women experience loss. The grief is like nothing I've encountered before.

Hope everyone else is well & enjoying the weekend xxx

Hey @Tumby yes I have experienced this with the MVA and it was a nightmare that never seemed to end - I had the most enormous bleed the day before my wedding and thought that was it done, but the damn tissue was adamant it needed to stay in even though they kept telling me it would come out. Ended up having four separate procedures. My advice would be to push the doctors for a hysteroscopy, you should get on the list now as the wait list for the NHS is about 5 weeks. Get your GP to help you and cite mental health reasons around having that tissue there. I find it ridiculous they don't do this anyway but you know what the NHS is like with fertility. Dr Jan will do it for you privately but it's expensive - do you have private medical? x

Ladies, has anyone had any sort of counselling after recurrent miscarriage that’s helped at all? Did you go private or to a charity or wait for nhs? I feel like a nutter at the moment! Last loss in June time (number 4 in 18 months) I just feel raging a lot of the time. Really cranky and really cross. You know when it’s just not like you to be like that and you’re actually annoying yourself? 🤪