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Conception

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Bicornuate uterus/womb ttc

10 replies

choccrumpet · 15/03/2021 12:40

Has anyone being diagnosed with a bicornuate womb whilst ttc? What has your experience of trying to conceive been like?

I've had 4 very early losses and am wondering if it's due to this. The sonographer thinks I've got a bicornuate womb, waiting to speak to my doctor to confirm.

OP posts:
RobinRose · 15/03/2021 14:50

Sorry for your losses, that must be really tough! Are you OK?

I have been told I may have this (couldn't give me a definite answer for some reason). As far as I am aware it doesn't cause issues ttc or in early pregnancy but it can cause problems later in pregnancy, like late misscarage and early birth.

choccrumpet · 15/03/2021 18:47

Thanks for your reply @RobinRose. I'm doing as okay as I can be, it hasn't been easy.

I was told mine could be the reason for my losses but not confirmed yet so am a bit devastated. It'll always be a shock to find out something isn't quite right in your body so it's been a hard day. The fact that I've had 4 losses makes me think there is something not quite right so I'm a bit worried about this.

I have seen some positive stories and that helps. But nothing about women struggling to keep the pregnancy early on.

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Esmeralda1988 · 15/03/2021 19:06

Hey OP, I have uterus didelphys which is where the womb is entirely divided into two, I also have two cervixes. I've known this many years before TTC. I didn't suffer any losses but it took a year to conceive and I now have DD. I had issues with cervical incompetence in the second trimester then DD came early at 34 weeks. I think it's relevant how divided your uterus is which might need further investigation. It's probably not possible to say for definite if this is the reason for your early losses, a lot of women with these abnormalities have perfectly normal pregnancies and conceive easily. The only thing I can think is maybe if implantation happens on the dividing tissue (septum) there may not be enough blood supply to sustain it? In which case it's just luck. I've read about this being a potential issue but please don't take my word for it, I'm no expert!
Flowers for you. It's really tough having news like this especially if it was unexpected and you're scared it will prevent you having a baby. I was convinced I'd never conceive for many years and actually it was relatively easy, so please don't lose hope. You need to see a gynaecologist really, who specialises in uterine abnormalities, my GP was USELESS when I was struggling to conceive and just told me I would need IVF and there was no possibility I could conceive naturally. Did you have an internal ultrasound?

choccrumpet · 15/03/2021 19:41

@Esmeralda1988 thanks for your reply, I'm glad you had a successful pregnancy, that's nice for me to hear. What you said about implantation is interesting, I haven't come across that yet but I took baby aspirin in my last cycle and my chemical went on about a week longer than my previous ones did so I wonder if that had anything to do with it (aspirin encouraging blood flow).

I'm speaking to my GP tomorrow to confirm so am interested to see what they say but am worried they won't be able to offer me any other info. How did you go about finding a gynaecologist like that? I assumed that's what I would have to do anyways but don't really know where to start.

I'm really worried about my chances of carrying a successful pregnancy but am trying to stay hopeful and positive although it doesn't feel like it at the moment. I had a normal and transvaginal ultrasound which the sonographer encouraged and am glad that she did.

Really appreciate you replying.

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Hoolihan · 15/03/2021 19:57

I'm so sorry you're struggling, four losses must have really taken their toll. I have a bicornuate womb which caused me a lot of stress during my first pregnancy but in the end my baby was born without any problems at all. I struggled a but to conceive no2 and had a miscarriage in the process but ultimately did have another baby. I've not heard of this issue causing problems in early pregnancy so it could be that you have just suffered terribly bad luck. But worth investigating - wishing you lots of luck.

Mugcake · 15/03/2021 19:59

Hi @choccrumpet I have the same, I recently miscarried my 1st and was told at one of the scans. They told me its only a problem in 2nd trimester and can make you more likely to need a c section as baby is more likely to be breach.
I'm in the same boat as you though, I am terrified it might be the reason we lost our little one and that it night happen again.
The only positives I can take from it is that none of the nurses seemed too worried or told me it would be a reason for MC.
Sending lots of love your way, I'm so sorry for you losses Flowers

Esmeralda1988 · 15/03/2021 20:08

I had to have surgery when it was first discovered, which I had at Queen Charlotte's in London. I've seen the same team to discuss fertility as well
www.imperial.nhs.uk/our-services/gynaecology/meet-the-team
If your GP doesn't know much about the condition then ask if you can be referred to someone who can advise you better on conception and fertility. I was seen in London first ten years ago but I think things have moved on a bit now and actually the consultant at my local hospital was as knowledgeable as them, so you could just ask for a gynaecology referral and see what they suggest. Maybe your local hospital has a recurrent miscarriage clinic? Ours does, so that might be a good way in to get some further investigation done.
It's a lot to get used to. I felt like an utter freak as a teenager post diagnosis and so angry that I had to have this. Hopefully it will help you to find out exactly what the deal is. Maybe your GP or a gynaecologist could send you for the blood tests day 7 and 21 I think it is, to rule out it being a hormonal issue?

choccrumpet · 15/03/2021 21:05

Thank you @Hoolihan I'm happy to hear you've had successful pregnancies and I'm sorry about your loss. Yes the 2 things may not be connected at all. Wish it was more straight forward than this!

@Mugcake I'm sorry about your loss, that must have been really difficult to go through. The silver lining in mine is that they happened so early. I hope things work out for you. The unknown is scary and I hope we learn more about this with time.

Thanks for your advise @Esmeralda1988 I'm on the referral list to a local fertility clinic but unsure if they specialise in recurring miscarriages. I'll be asking my GP about other recommendations so hopefully they can suggest someone.
I had basic bloods done a few months ago and they came back clear. I've been considering asking for the day 21 one just to get it done so may do that as well. Otherwise I suppose it's a waiting game

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Esmeralda1988 · 16/03/2021 07:37

Hope you get some reassurance today @choccrumpet, will you let us know how you get on?

choccrumpet · 16/03/2021 12:00

Spoke to my doctor and she confirmed that I do have a bicornuate uterus. We don't know how deep the separation is, going by what the sonographer said is it's heart shaped so might be only slight. Apparently there's no way for me to check until I get pregnant when this will be monitored.

I called the hospital to find out about my gynaecologist referral and appointment and they said they have had no clinics working during covid (which was shocking to hear) and are just starting to get them back up again so no indication of wait time. I can't believe that women went so long without gynaecologist appointments.

My GP said there's no reason to stop trying so to keep going as we were. She's not worried about my uterus and it shouldn't be causing my early losses although we don't know for sure. I've scheduled for day 21 bloods just to rule that out and apart from that I've done everything I can via my GP so there is nothing left to do. I think we're going to try for a few more months and if nothing happens then we figure out whether we want to go privately.

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