Does anybody have a septate uterus?

[sunflowersaremyfav93]

Hello,

Does anyone have a septate uterus and have any success stories please? I read that there is a procedure to fix it, is that possible on NHS? Or do they only do it once you've had three miscarriages, any advice/help/anecdotes very much appreciated. I'm driving myself mad here 😩

Hi, I also have been diagnosed with either separate or bicornuate uterus (at this stage they are unable to distinguish which one based on ultrasound and I will be referred for an MRI to know for sure, however the waiting list for this is many months). I have had already had 1 miscarriage in May this year and the doctor has indicated that they wouldn’t consider surgery or intervention unless I had a further 1 or 2 miscarriages. How long have you been TTC? Have you had any pregnancies yet?

@Docm40 Thank you for replying!! I'm so sorry to hear about your miscarriage, i can't believe that their policy is to wait until women have several miscarriages, it just awful 😩
We're going to start TTC for our first in Feb, but because I know I have this I'm trying to see what u can do to help now. I have private healthcare through work but that doesn't cover for anything fertility related. I just think it's awful that they wait for a number of miscarriages. What will you do no? Continue trying or wait until you have the referral? X

@sunflowersaremyfav93 We're just going to carry on TTC for now. We only started trying a the start of this year and I conceived by April before I miscarried. I am also exploring the private MRI route - as I also have private medical care through my employer but, like you, it seems as though anything fertility/pregnancy related is not covered, which is a real shame. If you don't mind me asking, how did you become aware that you had a septate uterus? Was it via ultrasound?

@Docm40 Fingers crosses for you, I have read stories of women who have had perfectly healthy pregnancies. I hope you manage to get an MRI on private healthcare. I found out 5 years ago, I was 22 at the time and my periods were just absolutely awful, excuse the TMI, but I had large clots coming out when I was on which I latterly learnt was the uterus lining but when they did scans to work out why (I was also in a bit of pain during sex) they told me my uterus was septate, it was an ultrasound. I called my GP a few weeks ago to discuss TTC and I raised it again because at the time I wasn't thinking about starting a family and didn't ask any questions. So my GP has referred me to a gynaecologist I have an appointment with them on 25 Aug, so will hopefully know more then. I will go for a private referral after. I think there are different spectrums some are really septate others aren't?

@sunflowersaremyfav93 Are you based in the UK? I only ask because it seems like in the US, women seem to get quicker/more tailored care for fertility/gynaecological issues because their system is private to start with. Yes, seems there are different spectrums. I suspect mine may be a partial rather than complete septum because in the several scans I had as a result of the miscarriage, half the nurses didn't even notice it at all, and in the one where it was diagnosed the Doctor had to roll the wand in several directions/different views before he could see the septum.

My sister in law has one and has 2 children, both born by C section and both healthy.

I do but it is only small so they decided it is better to leave it as it is

My mum had a bicornate uterus it was mitten shaped, one large part with a part on the side like a mitten. Her first child was born in the 60s when she was younger. Due to the technot being as good etc they didn't realise she would not be able to give birth naturally and her child was born starved of oxygen by c section and he passed at 6 months. She had me in mid 70s and my brother 2 years later. It nearly happened to me but because of an Eagle eyed midwife I was fine.

@TTC2016 have you been TTC? How was yours diagnosed? @fantasmasgoria1 Sorry to hear about the loss of your brother, but great your mum went on to have two healthy babies.

@Docm40 yes it was diagnosed and measured during an internal ultrasound scan

I'm late to this thread but hope I can offer some reassurance.
I have an extremely severe septate; I had an mri to diagnose as they initially thought I had a didelphic uterus/cervix (apparently it is very close to being entirely divided down the middle). I learnt this because I had a miscarriage at around 6 weeks.
I then, however, went on to have a normal pregnancy (I was classed as high risk because of the septate and risk of early labour but actually, it was all entirely uneventful). I had my baby by planned c-section at 39 weeks (breech baby and unsafe for ECV due to the septate).
When I found out I had a uterine malformation, I lost all hope of ever having a baby. I thought I'd struggle to get pregnant and to carry a baby full term, especially because my malformation is so severe but I'm proof that actually, it is possible.
Please try to stay positive. I was extremely anxious throughout my pregnancy but I needn't have been.
I hope that it all works out for you.
Please PM me if you want any further info/support

@BorderlineBob Thank you for this, I've just spent all morning crying my eyes out. I had my scan yesterday and spoke to gynaecologist today who said mine is completely septate, I am also being referred for an MRI to diagnose further.

Did they do anything to correct it? Did you have a stitch during pregnancy?

I'm so happy everything went well for you, thank you for giving me hope.xx

Oh bless you, it really is so upsetting isn't it. I was convinced I would never be able to carry a child and I was devestated. I assumed my miscarriage was because of my septate (it may or may not have been, I'll never know) and assumed I'd have multiple miscarriages (I actually only had the one miscarriage, thankfully)

They didn't do anything to correct it (and have said now that I carried a baby to full term, they wouldn't anyway as it's obviously not too much of an issue - I had asked if they could correct it during my c-section as I do hope to have another baby and I do still worry about it).

I didnt require a stitch during pregnancy but they did measure my cervical length to assess if I would need a stitch.

I was classed as high risk and so had scans every month or two and was under the consultant (who did say he expected the baby to come early and was surprised that I made it to my c-section date).

I know it's really hard. I really do, honestly I was a wreck when I found out; I was utterly depressed and entirely hopeless but please try to stay hopeful as it is possible to conceive and have a healthy pregnancy.

Wishing you luck

I have a bicornuate uterus.
Just had my 3rd baby.
I had a mc between 1st & 2nd & early scam picked it up otherwise would have never known.
I've had x2 breech babies.
Middle baby was text book pregnancy & birth. You'd never know I had a bicorn.
Sonographers did get some things wrong at the scans though such as they thought I had a cyst, I didn't it was the horn.
Last pregnancy they struggled to find placenta, they though it was located on the horn, it wasn't!
They also struggled to get correct measurements of baby.
X2 of mine went overdue too (last was a CSection).

Thank you both so much!

@BorderlineBob I just keep reading your message over and over and telling myself that we'll also be ok. We want to start TTC in Feb and atm it's 6-8 week wait for my MRI scan. Did you get answers quite soon after your MRI? I feel comforted knowing they considered a stitch. Did they ever mention the procedure to snip some of the septum wall?

Sorry for so many questions and thank you so much!

I think my MRI report came through quite quickly, within a couple of weeks. Although it had to be reviewed by two consultants as one was convinced it was didelphic while the other one luckily saw the tiniest glimpse of a gap at the bottom of my womb (thats how severe mine is).

They did mention the snipping procedure, well I think I mentioned it to them actually and they assured me that as long as this pregnamcy went well, that wouldn't need doing (and obviously they couldn't do it while I was pregnant anyway).

Another thing to bear in mind, a nurse mentioned to me that I may not be able to labour because my uterus may not contract the way it should. Obviously I dont know if this is the case because I had a csection but when I had my mc, the pain was all on the one side so maybe there is some truth in that, just worth bearing in mind. I believe most bicorn/septate babies end up breech anyway though just because they lack the space to turn around.

I was incredibly anxious before and during my pregnancy. I think I probably drove them mad, asking all the questions but the way I see it, thats my baby and I would have done all I could in the world to protect him. So I think, if you have to be pushy (I was never rude, just emotional and anxious really), just do it because I know that would have blamed myself had anything gone wrong.

I really wish you luck, and if you are able, I'd love an update to the thread when the time comes 😊

I can't thank you enough for all of the information you've given me and the reassurance!

I'll definitely give you an update when we're TTC and hopefully will have a successful journey. And I agree, I'd do anything and everything to protect my baby too. Xx

Possibly not too much help to you but I have a bicornuate uterus, only diagnosed at my 12 week scan during my first pregnancy. Baby went into a dangerous position at 36 weeks so there was talk of hospitalising me for the remainder of pregnancy but then he moved again - went to 42+2 despite being told I was at greater risk of giving birth prematurely! Healthy baby :) I'm now pregnant with our second child but still within the first 12 weeks, have to say it's more anxiety provoking knowing about my uterus this time around as I believe the higher odds of miscarriage are still within the first trimester but touch wood I'm 8.5 weeks and all seems to be going ok. It's a minefield and not one that people expect to encounter amidst ttc but hopefully your doctors will suggest any treatment that might be needed and you can still have a positive journey. Good luck :)

@mummabubs Just hearing a positive story helps me, I've just been in shock since Tuesday and can't stop crying. I've taken it as a 'you can't have babies' which I shouldn't do because I hope they can correct it and you both have had positive stories.

An MRI scan is £490 and as much as I don't want to touch my savings I'm seriously considering just paying it, I can't go on for another 8 weeks feeling like this.

@Docm40 Was just reading back through these messages and realised I didn't respond to you, sorry. I'm in the UK having to wait 6-8 weeks for an MRI and just considering paying for it privately because I'm going crazy and it's only been 3 days! The scan is £490 which I could use for other stuff but I don't know what to do. How are you getting on?

Hello there! I was diagnosed with subseptate uterus (meaning partial septate) about four years ago during internal ultrasound not related to pregnancy. At that time my GP didn't tell me about it as he never heard of it so I went two years without knowing. Only last year, when me and my partner decided to try for a baby from January this year I went back to GP and asked for the results of the examination. Weirdly, I had a feeling there was something wrong with it (although I was told everything was perfectly fine) so decided to look at those results for the first time (before, GP just called me to tell me that everything is fine) but two years later I saw that there was an additional note saying that my uterus is subseptate.

I was referred to hospital. Doctor told me what I already knew from my obsessive google searching. I asked for MRI but she said there's no point in doing it. Bottom line is, you need to start trying for a baby first and then when you get pregnant you get more dedicated care and monitoring - that's what she said.

Btw, I've never been pregnant and we've been trying for 10 months now. I can't really give you any positive story, unfortunately. The only thing I can say is that I spent months crying after I found out. I thought it means I'll never have children and I read and read and read about it, mostly in medical journals, trying to understand this condition. In the end I had to mentally let it go. It wasn't easy but I stopped thinking about it so obsessively after few months and now my attitude is, it is what it is and we will deal with it one step at a time when the time comes. In the UK they don't deal with it until you had few miscarriages unlike in US where they seem to fix the septate before you start trying.

I hope you find your peace soon and get all the answers you need!

@Kuki03 Thanks for your message, I haven't started trying yet and they're giving me an MRI. I'm thinking of going private for the procedure to fix it if I'm not offered it. I feel like I know too much now and would end up having a very stressful pregnancy just constant worrying.

I'm in the phase of constant crying at the moment.. it's only been 6 days and haven't have one day without crying yet. Once I get my MRI booked in I'm hoping I'll feel better and have a date to work towards to know more.

We're still going to start TTC in Feb and see what happens though.

Hate all the worrying!

Hello, I’ve just come across this thread after being told by a sonographer at my ultrasound (been ttc for 8 months and periods have been heavier so GP referred me for scan) that she suspects I have a subseptate uterus and I will need to be referred to gynae to confirm this. My heart sank! It wasn’t very helpful of her to share this when she wasn’t able to give me any more information about it!! So I’m left to do my own research while I wait to discuss results with GP.

So it’s been really helpful to come across this thread. Did anyone hear with this shaped uterus also struggle significantly with conception? Thank you for sharing your experiences all very new right now X

@Kuki03 @sunflowersaremyfav93 @Everythingcrossed2021

Hi ladies,

So happy I found all your experiences on here.

I know this is an older post. However, I wondered if any of you ever managed to conceive and carry to term with your uterine septum.

After 8 months of TTC unsuccessfully. Weve never fallen once and had no MCs.

I had an extremely painful HyCoSy this month and was diagnosed with a uterine septum.

I don't know if it's a partial or complete septum until I meet with an NHS gynaecologist (probably a few months wait)

I'm just holding onto hope and wondering if any of you ladies had any success xx

@AprilShowers2021 shortly after speaking on this thread back in 2020 I went on to conceive another pregnancy which was taken successfully to term. My little boy will be 2 this June! Unfortunately in January just there I did have another miscarriage, this time at 9 weeks with twins, but please know it it possible to conceive and to carry successfully to term.