TTC PCOS, suspected Adenomyosis/Endo and in pain!

[Fro93]

First time I’ve posted so sorry if I have duplicated another thread! I’m nervous... here goes! (Sorry so long)

We have been TTC a year now and still nothing.

I have PCOS which affects my cycle length- anything from 21 to 50 odd days. I also frequently suffer from intense pelvic pain which is suspected adenomyosis (very similar to endo). I haven’t had a lap and whilst an NHS ultrasound was clear, I saw a private gynae last year who was 95% certain it is adeno.

Last year I was in immense pain and prescribed the pill to manage those symptoms and regulate things. I lasted 3 weeks, it didn’t agree with me and on reading up I didn’t want it to affect my chances of TTC so didn’t try a different one. That was last May, we married in July and I had to take Provera just for risk I’d come on in the wedding day as I was v symptomatic a few days before.

Long story short we are at a year TTC now. GP is processing referral which will be delayed due to covid (though I’ve had my bloods done and OH is sorting his sample).

I just feel so crap and alone in this. The longer it is taking us the more upset I am. The more pain I am in which is affecting our ability to DTD as regularly. I’m currently on cycle day 52 (longest for a while!) and have been in agony/ can’t eat properly for 3 days. For the first time in a while I’ve ugly cried

I guess I just want advice on where to go from here. I don’t want to throw the towel in but I do feel very poorly a lot of the time and all I can think is this is going to get even worse the longer it goes on!

I have told a couple of close friends but they don’t really understand. Haven’t told my mum as I feel like she would tell others so I can’t trust her with it.

Probably feeling a bit sorry for myself but I do wish my friends were here for me a bit more! Harder due to lockdown but it’s not hard to start a conversation/ ask how I am/ if I want a socially distanced cuppa in the garden. I feel like a burden asking them first but they know I’m poorly

How are you getting on? I’m in a similar situation

We've been TTC for a little over a year now. I am diagnosed with PCOS so I do not ovulate on my own but this has been solved with the help of letrozole and metformin so I now ovulate regularly and have normal cycles. However, I have just been diagnosed with suspected adenomyosis and am now concerned I won't be able to conceive although I am now ovulating. How are you getting on

Hi @maw16 sorry for the delay I’m rubbish at checking mumsnet!

I have good news- im now 20w. I had surgery last October which formally diagnosed the Adenomyosis, endometriosis adhesions and had ovarian drilling at the same time to stimulate ovulation, the plan if that didn’t work was letrozole.

The drilling worked, I began to ovulate (im presuming, didn’t monitor ovulation itself but my cycle shortened significantly and here we are!)

I was told the PCOs was the main issue and to try deal with that. The Adeno and endo adhesions are just complicating factors but don’t seem to have affected it as much as I thought they would

I’ve had a fair bit of pelvic pain during pg but it’s manageable

Hang on in there- I know it is so hard to have been trying so long without answers :( but the regular ovulation really is a step in the right direction
I have everything crossed for you.

Reading that post back has made me realise I had hit rock bottom last year and I didn’t see a way out.... there’s proof out there that it can happen for you xxx

Thankyou so much for replying to my message, I can’t tell you how much it means to hear of someone who was in a similar situation and is now pregnant. I feel like I have definitely hit rock bottom and keep preparing myself that maybe being parents isn’t on the cards for us but thankyou for your glimmer of hope! I’ll try to keep positive and not give up. Congratulations on your little miracle xxx

@Fro93 Hi, no problem about the delayed response! I wasn’t sure you would respond as you stated the thread a while ago!

so thankyou much for replying to my message, I can’t tell you how much it means to hear of someone who was in a similar situation and is now pregnant. I feel like I have definitely hit rock bottom and keep preparing myself that maybe being parents isn’t on the cards for us but thankyou for your glimmer of hope! I’ll try to keep positive and not give up. Congratulations on your little miracle xxx