Pcos journey help!

[Lj02]

Any information is helpful! Ive just found ive got pcos & been referred to the gyno. What happens now from here? Ive been ttf for around 2 years with a mmc in between and multiple other symptoms... Im seriously down, just had enough. My dr is useless just hurries you to leave after ive waited 6 weeks for my scan review appointment. I could just sit and cry. Seriously considering just giving up ttc at this point just seems impossible, its the only thing i ever think about and its impossible to just ‘relax and it will happen’ bull**it!

My best friend has pcos and has been ttc for just over 3 years. She plucked up the courage to speak to the doctor who turned her away and said they couldn’t do anything for her as her husband has already had a child. She is absolutely heart broken and thinks it’ll never happen.
She’s now decided to go private and has her first consultation on Friday.
I hope you get the answers you need to help go forward and conceive x

I can only speak of my own experience. And do bare in mind with the responses here that there are different types of PCOS and different presentations across patients. I have classic pcos, with high testosterone, hirstuism, lots of unruptured follicles on the ovaries. I was ttc for 17 months, had a chemical and an early loss during that time and I'm now 11 weeks pregnant. The things that helped me were a high dose of folic acid( I was always low when blood was tested) levothyroxine ( I also have an underactive thyroid) which is apparently quite common with pcos. Also losing weight, I lost over a stone, it didn't make me ovulate any more regularly but got my hormone profile in a more suitable balance to support a baby. The key to that was a focus on protein and lack of sugar and refined carbs, to be honest I didn't change much just was a bit more thoughtful about what and how much I ate. Ask for a copy of your blood tests, find out what you can about your hormone levels, I found I had to take charge of my own health, I eventually got an excellent endocrinologist but before seeing him no doctor had anything helpful to say or do. Wishing you the very best of luck x

Thank you for your replies...

@Chicken123 i hope your friend finally gets the help she needs and conceives. The doctors really are rubbish. I walked away more angry and confused than when i went in. He was useless!

@Sulkypatsy i haven't much of an idea as to what it is ive got i just know i have inflamed ovaries and cysts that aint ‘too big’ so he says! I dont need to loose anyway as im only 9 stone so my bmi is fine... eating better may help me as im not a great eater anyway, i know i always have low folic acid when i have my bloods taken so maybe thats something i can look into and start. Ive tried multi vitamins but they didnt seem to help in anyway after months of trying them. They haven't even taken my bloods to confirm hormones!! Ive had my ultrasound scan and they just confirmed it there and then which i find odd! I do have irregular periods and alot of other symptoms too but i though the bloods would of been a must before he decided to refer me to the gynaecologist? Btw sorry for the long message im just really feeling shit and confused! Xx

It's possible that you have "lean PCOS" or pco(polycystic ovaries) but not the syndrome with the associated hormonal problems. My endocrinologist said that in good practice they shouldn't diagnose PCOS without at least two full hormonal panels and a full ovarian scan. PCOS can sound very scary but it can be managed, in my experience the gyno wasn't much help as it's the hormonal side of things that needed to be managed, if this isn't the case with you I'm not really sure what treatment they can offer you.
I totally get that it's a very stressful thing to get your head around in the beginning, it's ok not to feel ok too, don't beat yourself up about that. There are lots of YouTube videos that explain PCOS and there's a PCOS for dummies book that I found quite good years ago

Sorry for all the questions but have you had fertility treatment for yours?... i have irregular periods, oily and spotty skin, hair loss (in clumps), pains in my right side a hell of a lot! And bloating. Plus a few extras but like ive said i haven't had my bloods done they just haven't asked for them so ive made another app with a different doctor in a few weeks time to ask a few more things and try get a better outcome hopefully. Xx

No problem, ask away, I'm happy to answer what I can. I was scheduled for ovulation induction starting at the beginning of this year, it was delayed a couple of times because they wanted my thyroid hormones at the right level before starting, I was very lucky to fall naturally before I was due to go in for the appt when I would have started treatment. I only ovualte on my own about 5/6 times a year. I also get awful pain on my left side, that ovary is usually very big and full of follicles that haven't ruptured. I also had super oily skin when I wasn't on any contraception. I know that the oily skin and hair loss can definitely be linked to increased androgens(male hormones). There are lots of ways to manage the symptoms but the first step is to find out what's going on in your body so you can address your individual issues, sometimes doctors treat it like a one size fits all approach. There's dietary management, a couple of medications, insulin control, holistic therapies, it really depends on what's going with you