Factor V Leiden help

[TwinkleStars15]

Hi ladies (and gents maybe?)

I have Factor V Leiden which I know is fairly common. I have to be on blood thinning injections throughout pregnancy and I am aware that this condition is sometimes the cause of recurrent miscarriages.

I have had 3 - one at 11 weeks last year, one at 5 weeks in October and a chemical pregnant right now. I’m wondering if anyone with this condition has been advised to go on the injections when ttc rather than waiting until pregnant? I have an appointment with my haematologist in January so will ask them, but don’t want to put ttc on hold until then (and they NEVER answer the phone)

P.s I would never start them without consulting a medical professional by the way, just looking for other people’s experiences

Place marking as I’ve got round 2 of blood tests next week and was wondering the same (APS in my case)

I have this. It was discovered after my fourth miscarriage. I was always advised to start the heparin injections after becoming pregnant. I went on to have two further mc (one due to a chromosomal defect, one of unknown cause) before having dd. I'll never really know whether my clotting factors were a 'cause' in my case, because as well as the mc I had also carried two children to term prior to finding out about them.

Hi @TwinkleStars15. Sorry to hear about your losses. I'm also positive for factor V (just the one gene) and currently going through my first miscarriage at just over 9weeks.
The advise I've been given is that as it's the first time it's unlikely linked to my blood and it's just 'one of those things', but who knows I suppose. The research I've done seems to suggest that if you only have the one gene the increased risk of miscarriage is pretty small in comparison to those who don't when the risk is already 1 in 4 anyway, whereas if you have the two genes the risk increases quite significantly. I'm thinking positive that the stats show that 1 in 20 people are affected with this and most of those don't know they have it and will go on to have healthy pregnancy's without any complications and be non the wiser. Like the majority of my family who have had children with the one gene (thinking positive)
Sorry I'm not sure if it really answers your question but I was on aspirin and have been advised that for my next pregnancy it's likely they would take the same approach, there hasn't been any mention yet of injections. I'm assuming this might change though if
I go on to have reoccurring miscarriages. Sorry I don't have much more advice on this but didn't want to read and run when I can somewhat relate to your situation.
All the best