Immune/NK issues - aka Pred Thread no. 22!

[HappyApple05]

Helllooooo dearies

Opening this new thread looking for a light in the tunnel during my journey towards conception. Would be nice to walk along with people in the same journey. To cut my story short, 3 miscarriages and referred to Mr.S, diagnosed with high NK cells and lupus positive, already on levothyroxine. After 2 weeks of staring at the med pack, I have now finally started on Aspirin, Vit D and Pregnacare plus. Awaiting Ovulation to start on Pred protocol.

Miscarriage history:

1. July 2017 - In my 12 week scan, found foetus with no hb (6 weeks foetus size), devastated! Had severe morning sickness, didn't predict anything negative. Took my son (6 years then) to the scan planning to break the surprise where he could see his sibling in scan.. We all broke down, opted d&c

1. March 2018 - started bleeding in 6 weeks and miscarried naturally.

1. July 2018 - spotted in 6 weeks, scan at EPU no pole, returned when 9 weeks along, still nothing, opted d&c

Bought the ovu predictor kit for the first time, counting days to use it. Any of you in the same position? Would be great to hear your stories and cheer each other up towards the destination. Previous threads were beautiful, so supportive but sadly the latest post was in Sep 2017. So most of them would have crossed the bridge. Decided to start on a fresh thread.. So here we are....

Looking forward to catching up... Take care you guys.... Plenty of baby dust to everyone

@ginandtonicformeplease I had a panic yesterday after I posted in case you had already paid and I was making it worse! I'm in Surrey so not a million miles away but getting time off work is tricky at the moment (my boss is going away and no one else can cover). As if all this isn't stressful enough now we have to shop around for the best price! I think I read somewhere MrS is pretty adamant you have to have intras at his clinic though 🙄

@KittyKatSmile that's what I have been thinking too. I automatically assume this will be the same as the others, but what if it isn't?
How did you get on with your scan, I am assuming no news is good news?

@Chickjen thank you so much for asking. I don't always talk about good news on here, trying to be sensitive. The scan was amazing. It was moving round loads. Just blows my mind because it's only 4cm long! Just waiting for the Harmony test results now and then I'm determined to enjoy this! And 6 more days of drugs!

Take care, I'm sending positive vibes to you xx

@Naticle my cycles seem to run at super speed! I have had a BFP on day 21 a few times now, the lines gradually get darker for the first couple of days, then start getting lighter, then AF only a few days late.
I think you are right though I am going to book an appointment just in case.

@KittyKatSmile awesome news! I didn't realise you could see it moving already ❤️ It's nice to have some good news to keep us all going 😀

@Chickjen No, I haven't paid yet! I'm currently trying to find out how much it would cost from the pharmacies that deliver as I've read that it needs to be chilled and I live quite a way from Wimbledon and the pharmacy my clinic recommended. So far both online pharmacies I've contacted have told me they only calculate prices when they receive the prescription I'm getting irrationally mad at DH as he's grumbling about the cost but then not doing ANYTHING to help me reduce it.

@ginandtonicformeplease I am around an hours drive from Wimbledon so they said to bring a cool bag. It does say in the leaflet that comes with it, it can stay out the fridge for 2 weeks (like if you are going away) but you must then use it, it can't go back in the fridge.
My DH was just as helpful! Just as I was about to inject he kindly reminded me 'this is a grand, don't mess it up!' No pressure then! 😀

@Chickjen @ginandtonicformeplease these are the times I'm pleased it's only me putting pressure on myself!! Bloody DPs!! Although I'd like someone to vent to (I'm sure you'd probably all like it if I had someone to vent to as well!!) One of my friends from Sydney who was over last week messaged me and asked if I would please tell another of our friends over there soon so he 'didn't feel left out'. I'm sorry, selfish as it may seem, I had thought this was about me and my feelings etc etc. I had only told him early so I could do it in person. I was very cross...

@Chickjen To get back from the pharmacy my clinic recommended I'm two hours on public transport, about three hours from Wimbledon. I have no idea what I'm supposed to do as the online pharmacies appear to only sell to doctors registered with them, and my clinic wants all its patients just to pay the extortionate price of the pharmacy next to them.

@ginandtonicformeplease I googled Parkside hospital and it seems to be part of a group 'Aspen Healthcare' they have a few locations, maybe one of those is closer? Or set DH a practice test with some cool bags and ice blocks and a tub of ice cream and see how long he can keep it from melting? 😀

@Chickjen He'd eat the bloody ice cream and not bother doing the test! The problem with living in the sticks is that at times like this it's a minimum of two hours to get to a reasonably sized city. None of those Aspen hospitals are near us but thanks for trying - that's more than DH is doing currently. Surely it's not too much to expect a bit of help from him to source this??

@Chickjen yay on your positive and fingers crossed this won't be another chemical. It's hard what to suggest, I was going to say wait until you were late then realised you can't go for 2 weeks if you don't go tomorrow, it's a tough one. Have you made an appointment?

Thanks @Pop1234 yes appointment is booked. They couldn't do today but there was a spot free tomorrow I can make luckily. Now I just need to hold on that long! I will test again in the morning though just in case 😀

@Chickjen fingers and toes crossed for you lovely xx

Hi ladies,

I can't explain how happy I am to find this thread!!!!

Finally feel like there is ladies here in the same situation as myself.

3 misscarriages in under a year and also a ectopic pregnancy which left me with just my right tube.

I've had all the tests on the nhs which I've been told have come back normal ( although I wouldn't be shocked to find out that, that is incorrect if I'm totally honest due to them being totally awful!

we are now going private with Dr S, has anyone been before? It is in the Epsom clinic. Also what should I expect?

What will he ask me? Is there anything I can do to prepare in the mean time?

Good luck ladies!!

@mybestfriend123 welcome. There are quite a few people who have seen Dr S, I am one of them. First appointment he just tells you which tests he thinks you need, take your results of the tests you've had done as this may save you some money. You'll be in good hands. When is your appointment?

@Chickjen did you go for your intralipids today? How are your lines looking?

@Pop1234 I am hooked up now! I woke up in the night absolutely convinced it was all a false alarm but the test this morning was darker than yesterday. So here I am! 😱
How are you getting on? ❤️

Welcome @mybestfriend123 MrS has a reputation for being quite blunt so be prepared for that. But it sounds like you had a bad experience at your RMC, which I did too, and I really like him and find him so much nicer and far more caring than the RMC. It feels like he actually wants to help you. 🍀

@Pop1234 thank you so much !!! My appointment is at the end of September! So not to long away!

@Chickjen it's okay! I don't mind blunt as long as he's to the point and does what he needs to do!

Can I ask if you have had tests yet?will he do the tests the same day ? I'm travelling a long way so I'm hoping he will be able to.

How much are we looking at if you don't mind me asking? I believe it's £325 for just the initial appointment.. so what exactly does that include?

Money is no object when it comes to trying for a baby hit at the same time I want to save where we can! Thank you for your replies!!

@Chickjen sorry I'm also not following properly? Are you pregnant then? If so!! CONGRATS! Finding it hard to keep up with such a long thread x

@Chickjen great! Hooray! Let's go with the old mantra: 'today, I am pregnant'. (And step away from the tests now as otherwise you'll go mad).

Wishing everyone a lovely weekend x

Haha yes @KittyKatSmile I have promised myself I am not testing tomorrow, and will see how long I can resist! I have come away from the intra with all sorts of aches and twinges, did you get that?

@mybestfriend123 the £325 is just for his opinion basically. They will take blood the same day for any tests he recommends, they do add up though, I think if you do everything it is around £3.5k so definitely take your results with you! Also if you want to test your OH for sperm DNA he will need to have 'abstained' for 2-5 days if you want to test that day.

Oh and @mybestfriend123 yes I am (I think) but really not feeling confident 😕

@Chickjen I felt terrible two lots of intralipids ago, although just a totally dead arm for an hour or so. The last time I bruised like a peach, around 6 or 7 inches long and it lasted for ages. But totally worth it of course! How are you feeling now?

@KittyKatSmile a LOT better now thanks. Just kind of tingly now. It started in my stomach which of course I was terrified about, but moved to my legs and walking around really helped. I guess it all just has to spread round. PJs and chocolate helped too 😀

@Chickjen great news!!

Congratulations @Chickjen fingers crossed for a happy & healthy 9 months.

Sorry I don't post much and am really behind on the thread.

A quick question - How long are you all on pred for once pregnant? I was originally told 12 weeks then wean off but had a letter yesterday saying 16 weeks. I'm not under Dr S, am under Coventry clinic but I just wondered when others came off. I am just over 8 weeks and to be honest am not enjoying my new hamster cheeks/and insomnia so am looking for a little light at the end of the tunnel. Thanks x

@fnej01 12 weeks for me I'm afraid then weaning programme. Cannot wait. Hate this chubby furry ness