Immune/NK issues - aka Pred Thread no. 22!

[HappyApple05]

Helllooooo dearies

Opening this new thread looking for a light in the tunnel during my journey towards conception. Would be nice to walk along with people in the same journey. To cut my story short, 3 miscarriages and referred to Mr.S, diagnosed with high NK cells and lupus positive, already on levothyroxine. After 2 weeks of staring at the med pack, I have now finally started on Aspirin, Vit D and Pregnacare plus. Awaiting Ovulation to start on Pred protocol.

Miscarriage history:

1. July 2017 - In my 12 week scan, found foetus with no hb (6 weeks foetus size), devastated! Had severe morning sickness, didn't predict anything negative. Took my son (6 years then) to the scan planning to break the surprise where he could see his sibling in scan.. We all broke down, opted d&c

1. March 2018 - started bleeding in 6 weeks and miscarried naturally.

1. July 2018 - spotted in 6 weeks, scan at EPU no pole, returned when 9 weeks along, still nothing, opted d&c

Bought the ovu predictor kit for the first time, counting days to use it. Any of you in the same position? Would be great to hear your stories and cheer each other up towards the destination. Previous threads were beautiful, so supportive but sadly the latest post was in Sep 2017. So most of them would have crossed the bridge. Decided to start on a fresh thread.. So here we are....

Looking forward to catching up... Take care you guys.... Plenty of baby dust to everyone

I'm so sorry @Sunshineblonde1 I didn't get an update. I've never used arnica but that's a good idea. I may ask as I've got some horrible bruises....

@megan234 I don’t really understand - is it a sort off cross between superO and going totally natural? Is the benefit of the trigger just so you can time Intercourse better?
Good luck to you, I will keep you posted xx

@DaniMERL Yes to time intercourse better and make sure that I’m 100% ovulating and he said to take pressure of me. I’m not sure if this is worth it to be honest Xx

@megsn234 Oh I see. It’s hard to know isn’t it? I’m certain we will get there. Keep positive xx

@DaniMERL and @Megan234 just been reading your updates and want to wish you good luck! @Megan234 have you considered IUI?

@Sunshineblonde1 how are you doing love? I hope all's well, we are both now on 11 weeks. Sending you love and hugs.

Hope every one had a good weekend.

Hey @nixwix 👋 all good thank you lovely 🤗 just waiting for the results of the Nuchals and Sex test now 🤞 Nausea has died down a bit. How are you feeling?? I’ve put on a little bit of timber, around 5 lbs, and got a whisker or two - my brows are uncontrollable, totally unusual for me 😜 thanks Pred!! I’ll have to put the threading lady to work on those tomorrow - she can wrestle the feckers out.....

@Megan234 and @DaniMERL best of luck lovelies on your new protocols. Rooting for you and hoping for a new run of Spring BFP’s.

@HappyApple05 and @Chickjen how are you both?

X

Hey @UnicornDust17 I feel your pain. My tummy is black and blue at times. I use Arnica sparingly, but can thoroughly recommend Mama Mio Tummy Rub. It seems to work wonders on the bruising and I prefer to use it as I know it’s 💯 pregnancy safe. Hope all is well with you x

@Sunshineblonde1 I'm feeling alright, no more constipation and random nausea today but not so much usually. I had my nuchal test results back on Friday, didn't opt for sex reveal. They have come back low risk 🙌🏼😅
Hopefully you will hear your good news soon too maybe tomorrow actually! I have gained a kilo but my face is so much rounder - hate it. Oh and totes get what you mean by hair growth - my face has so much hair now and I am just very hairy all over 😂 when's your next appointment at Dr S' clinic - I'm guessing it's the 12 week scan with the Prof? I have a scan with my hospital on Friday and if I think it's not thorough enough, I'll keep my 12 week scan booked with the Prof at Dr S' clinic. Xxxx

@Sunshineblonde1 I meant harmony yet results*

Awww that’s amazing news @nixwix so so pleased for you!!

My constipation has only just kicked in eck! I thought I’d got away with it. I’m embracing the whiskers 😝I’ve got the twelve week scan booked on the 28th March , when is yours? ?🤞🤞 best of luck for it. Then you can wean off the Pred hurrah!!!!

Sorry I meant Harmony test too, how long did yours take to get back to you? Xxxx

Mine's on 25th of March. The harmony test results took 3 working days, came back on the 4th working day. So not too long. The wait was still killing me. Are you looking forward to the 12 week scan? I cannot wait to stop fragmin and wean off pred at 12 w. I have to continue with progesterone applications till 16 w. Ooh constipation - water and lots of fibre. Although spicy food did the trick for me 😅 I hope the pessaries are less annoying now? xx

Oh wow @nixwix those results come quick then I had no idea. Mine will be any day now then 😱 cripes! I was expecting longer. I’ve been fine with the pessaries - no bother at all. Your right I must up my water though, I went off any kind of water for a while and had to revert to sparkling. It’s the fragmin that gets me. I hate doing it and have to until 6 weeks after birth 🤡

ooooh we must have similar due dates then!?! Xxx

@Sunshineblonde1 oh wow, fragmin is sticking around for a while then - do you do it yourself? My husband has to do it, I can't pierce myself 😭 How come you gotta do that till after birth? Yeah! We probably do- according to the calculators I am due 6th Oct but the dating scan should say more accurately when I will be due. xx

Oooo exciting!! My scan last week said DD 4th Oct so very close. I’m hoping it’ll be end of Sept in the end as that is my fiancé and I’s anniversary 💓

Euch I had a DVT back in 2015 after being on the pill for 20 years and taking 20 long haul flights in a year (that’ll do it!). Hence now I have to take the fragmin for so long 👎 I inject myself xxx

Wow @Sunshineblonde1 and @Nixwix you two have got this

Oops didn't mean to send that soon!

Are you able to relax a bit now?

Good luck @DaniMerl is it today you can test?
Good luck to you too @Megan234 it is catch 22 I guess, you have the extra appts and shot to guarantee ovulation but the appts themselves add extra stress and worry! Hopefully it will be worth it when this cycle is the one 🍀

I am struggling at the moment. One minute I am really busy and motivated and organising 10 things at once and the next I crash and feel like my heart is broken and nothing, not even a baby, will ever fix it. Repeat that cycle 5 times a day and you're left with an emotional wreck. I have a gp appt at the end of the month to talk through the treatment plan and see if there are any bits she might be able to support/prescribe and then I think I just need to crack on before I torture myself any further.

@chickjen sorry to hear. Where are you up to with all this, I have lost track.

Yeah I tested yesterday and today and was anxious about the trigger shot giving a false positive and wanted a comparison for this morning. Both have come back positive but today’s is slightly darker. So it’s good news for now but I’m being super cautious. I hate this bit.

Hey @chickjen lovely to hear from you love. Are there any thoughts in particular that are causing you the most torture or stress with all this ? You’ve got a lot on your plate at the moment, and on top of that feeling like your an emotional rollercoaster - your not alone I think we all feel that way too 😘🎢 can I help ease your thoughts in any way?

Xx

Wow that’s good news @daniMERL! 🤞

@Chickjen as I was reading your comment, I felt, man do I not feel that way too sometimes? I am sorry you going through that emotional roller coaster, we all do from time to time, even when things go well, because you constantly fear for the worst or just don't have the energy to keep going sometimes. Is there anything in particular that's worrying you? It's going to work out, have faith! Easier said than done, but try to keep distracted when you feel down, I watch funny things on Netflix or amazon 😁

@DaniMERL yes yes, fingers crossed for that BFP!

Yay @DaniMERL that is great news 😀 I will keep my fingers crossed for you 🍀 I am just at the beginning, I have a diagnosis and treatment plan but because I have just moved into a house which needs a lot of work I delayed starting yet.

@Sunshineblonde1, @Nixwix thanks ladies, my biggest problem is me I think! I have a thought in my head which keeps getting louder, do I actually want a baby? I know I used to, it was a real urge, now that has gone I keep thinking now I have my answer to why I should just walk away and save myself any further heartache. But I can't. Maybe I am just stubborn or maybe the urge is still there buried under 3 years of frustration and disappointment. Either way I need to crack on, I have never been good at waiting and I always over think things.
One day at a time. 💪

@chickjen that’s completely understandable. Take your time and listen to your instincts. The great thing is you are in control of this decision. You have the tools and treatment plan now if you want to take that route. I think after your appointment with your GP things may be clearer 🙏 in the mean time and if your unclear take some time out and just focus on other things until the appointment. Stress can paralyse the brain when it comes to decision making and can cause it to over analyse xx

Ah @Chickjen I see.
Well I kind of know what you mean but I think you can’t really control much of it. It’s also likely to be a bit of self preservation too. I have sometimes wondered the same and even recently, having had an enforced month off, I’ve found myself feeling a lot more content and it’s been great not counting the days and having life and my mood controlled my cycle day.
But I guess you just have to follow your gut and if you find yourself still cautiously proceeding then it probably means you still have some will and fight left in you.
And if you put all of this diagnosis and treatment aside, you’ll find many women and couples have a lot of doubts about whether they really want to be parents or not.

I have Intralipids booked for thurs - it seems so soon/early

*controlled by my cycle day

@DaniMERL I think you hit the nail on the head! I was feeling so much freer taking a break and forgetting all about cycle days, that lead me to start thinking about stopping altogether, but the more I thought of it the more worried and confused and stressed I got, so actually deep down I guess the will is still there.
And as @Sunshineblonde1 says I was totally paralysed by indecision. I will see the gp, either she will help or she won't, and then I just have to throw myself into the hope of DrS.
I am so glad you are all here, I have a renewed fighting spirit, I do want this and it's only a couple of weeks till I can get started 😎