Recent endo diagnosis- not coping!

[Kate8989]

Positives from my laparoscopy on Thursday- Tubes, Womb, Ovaries clear. Found the anaesthetic a doddle

Negatives- Endo found in pouch of Douglas!??? And some stuck between back of womb and bowel....

Will have to see a specialist to remove but I’m feeling really overwhelmed, shocked. Never even knew I had it as not really had any symptoms over the years.

I lost my baby in January and desperate to try again but I can’t until all this is sorted out.

I’m just feeling so depressed about life at true moment. Like all the joy has been sucked away x

Hi @Kate8989 glad things as a whole went well. I'm sorry they found something though.
Did they say to hold off trying until it's all sorted?
Did they say how long it'll be until your appointment?

No but I’m in pain so need to do something. I just don’t know how much more bad news I can take. I am broken- physically and mentally x

Try not to worry too much, your tubes, womb and ovaries are clear which is great. I was diagnosed with endo and cystic ovaries, treated with Danazol and later surgery including wedge resection of ovaries and surgical removal of endo pockets. Really thought I would never manage to get pregnant and even the doctors said I had a lot against me as ended up with scarring in both tubes and ovaries. Struggled with infertility in my first marriage for 5 years, really thought it must be me even though then DH had a low SC. My then DH refused any fertility treatment and we ended up separating. Tried for 2 years with 2nd DH, ended up having IVF, successful 2nd round, was 35 by this point having
started at age 24 TTC.To cut a long story short, now have 4 children, 3 conceived naturally, the last one at age 42 on the pill. Please don’t stress too much, get your treatment and go from there. You have a lot on your side. Good luck.

@Ang69 thank you! I know there’s lots of positives to draw from the laparoscopy. It’s just been A LOT to process in a short space of time.
Having surgery in itself is overwhelming, obviously I’m still feeling very tender from that. I am making sure I rest but that’s when all the thoughts and worries kick in about the future.
I never even believed I had endo so that’s also been a massive shock to the system. Coming to terms with the diagnosis and there is so much negativity on the internet it’s unreal.... x

It is a lot to take on board but take comfort that this condition can be treated. You have also been pregnant before which bodes very well for the future. I had rubbish treatment back in the early 90’s and should never have had my ovaries messed with. I was also dismissed from the age of 16 till 22 with painful periods and told it was normal and stop being a drama queen. I used to be vomiting with the pain and really was too young to understand what was happening. There was no internet or forums to get advice but I have been lucky and come through it, you will too. Take time to digest the diagnosis, try not to google too much as you will always find horror stories. Focus on your treatment plan, make a note of all your questions for your surgeon but with the mindset that you can get pregnant and you will again. Remember the best thing for endo is pregnancy, it cetainly was for me. Really wishing you all the best, you will get there.

@Ang69- I’ve been on endo forums and I don’t find them useful at all. As all I keep reading is negativity and how it consumes your life. And I feel that’s what I’m letting it do to me... I mean I am in pain at the moment so that doesn’t help with mood and positivity. I find you lovely ladies on here much more helpful and optimistic which is why I post my feelings on here.
I’m going to see the gynaecologist on Tuesday to discuss next steps. I will probably have the injection for a few months to give me a break from the pain and let things calm down a bit. I’ve only just turned 28 so I know I’ve got time on my side but I am an impaititnet little madam!!! X

@Kate8989 have you spoken to your gp about support with your mental health? As crazy as this sounds your mental health can effect the rest of your body. It might help to raise the issue to them to help you get on the right track. This has been going on for quite a while for you, I really hope you start to feel like yourself again soon

@DaisyMay25 yes I’m going to. I have severe anxiety ALL the time and I can actually feel the effect it’s having on my body so I need something to relax me for sure!!!
I might go tomorrow depending on how I’m feeling but I’m still not very mobile at this stage so will see how I feel tomorrow. All you ladies on here are so lovely, I’ve got to stay away from endo forums!!!!!! X

Probably wise to stay off endo forums, you probably get inundated with more bad news stories than the success stories.

For what it’s worth at least there’s a diagnosis and a plan of attack in place. I was diagnosed with endo and PCOS when I was 14 and told point blank I’d never have kids so I took it as gospel, went through all sorts of hormonal contraceptives from just progesterone, to oral poll, depo shot, implanon etc to no avail, had three laparoscopies and spent two years TTC when exH decided we should and it felt like a lost cause.

In the end exH and I split, for other reasons, but my now DH and I somehow fell pregnant within two months and I fell pregnant with our second when the first was 3months old.

Endo isn’t the death knell to fertility all the time. Try and keep positive but know you’re allowed to be sad by it at the same time.

Be good to yourself.

Hi Kate8989,

The diagnosis didn't happen that long ago, so it will take some time to get used to, but you'll be fine and to be forewarned is to be forearmed.

DaisyMay25 is absolutely right; like I said to you before, Kate, my endo really seemed affected by my stress levels and I think it's just as important to treat your anxiety as it is to treat the endo itself as I personally have the belief they often go hand in hand. Definitely see your GP about it. It's important they know you're struggling.

Be kind to yourself, rest well and look after your body in the ways you can.

My amazing hubby has just been sat on the bed with me researching endo specialists. We have found a couple that sound amazing, so trying to keep positive!
It’s all very early days and i do feel like I’m running onto a potential next surgery before allowing my poor poor battered body to heal!!!
I’m just so desperate to get on with my life and enjoy being a newly turned 28 year old.
@KnitKitty- please tell me off I was reading depressing endo forums this afternoon and got all sad and down again x

I think your husband should confiscate your internet, or monitor which websites you go on at least!

In all seriousness though, those forums aren't generally helpful other than letting you feel you're not the only one with endo. And you can get that from us upbeat people here. :) Once you've kicked the habit of over-googling you'll feel a bit better, I think.

I know and the forums have definitely made me worse as I feel as though they’ve “told me” how to be and cope with the diagnosis. Ie- be depressed, miserable and prepare myself for a life full of pain and misery!!!’
You ladies definitely pick my spirits up
and give me hope! I’m annoyed with myself at how much pressure I’m putting on myself physically and mentally when I should be resting. Like I said, I’m already preparing for the next op and it’s only been 3 days since I was diagnosed!!!!!!! xx