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Underactive thyroid and pregnancy - NICE guidelines

27 replies

Gardenbirdy · 12/11/2016 07:19

I've just got my bfp after three miscarriages and (finally!) a diagnosis of underactive thyroid.
So I'm going to my gp on Monday to ask about adjusting my medication as my tsh level was 4 the last time I had it checked, and I know it needs to be below 2.5 for pregnancy.
Could anyone post me a link to the NICE guidelines? My googling hasn't come up with the right ones and I want to have some backup if my gp tries to brush me off with "oh but 4 is normal".
I've lost 3 babies so I'm going to fight for this one! TIA

OP posts:
booox · 07/03/2017 12:10

Thanks counting - I do know all of this, just can't get gps to listen!

Well, I think I have now. I spoke to another gp today who rang endocrinology who said raise by 25. She has then said it will be through 'high risk' obs care. My concern is that last time, I didn't get to see them till 13/14 weeks when I had my scan. Then, the gps had been great at helping me to raise my thyroxine however it was never quite enough.

This time they're sort of passing it over to high risk, but I'm not convinced that will happen soon enough- we shall see. Mw care has changed now as they visit your house first.

Gp said if appointment hasn't come through in a few weeks they can retest etc. She said endo team said to keep below tsh 3 (though I'd prefer a bit lower).

Which ever calculations I do +25 is not enough, but I guess it's very early days right now. Including if I do what some do and they do in the us which is to take a double dose twice a week.

I might go back in 2 weeks to discuss either another raise or a test.

I honestly though it would be easier this time!

SeatOfMyPants · 08/09/2017 14:47

Bumping this because - during a round of tests to discover why I'm feeling so crap at 34w- I have what are supposedly normal thyroid results - see below, only just within nhs range according to lab results. I understand that - actually - these aren't great for pregnancy but gp not bothered and didn't mention it. I haven't been diagnosed with hypothyroidism before pregnancy, though have always thought might have it (ie results for Tsh historically on higher range; I have classic symptoms).

Ts4 12.9
Tsh 3.97

Does anyone have any advice about what to do, or reassurance that all is ok? I'm very worried that this has been overlooked and impact it could have on the baby. I realise that this might be a bit ott but feel so crap at the moment that I can't imagine it's great..,

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