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Ttc - ivf after trisomy baby

5 replies

Gabriellemj · 11/05/2015 07:20

Hi everyone,

Im 38, 39 next month. Last May 2014 I began IVF due to PCOS. My first transfer (2 eggs) resulted in a miscarriage after 4 weeks. The second transfer of two eggs, 6 weeks later, resulted in one successful pregnancy. Unfortunately 6 months in we found out the baby had Edwards Syndrome (trisomy 18). I was induced after 36 weeks and the baby died 90 minutes after birth. As you can imagine, I'm devastated. This was 2 weeks ago. Time no doubt heals but at my age I need to think ppsitively and look to the next step in order to start a family.

I'd really like to hear if any other ivfers have had a similar experience and gone on to have a healthy ivf baby. We have two more frozen embryos, and we're considering another complete round of ivf egg retrieval first, in case the last two don't work an/or so we could have more than one child if time and my hormones allow me to.

It's been such a difficult experience and I'm clinging onto my sanity at the moment... Many thanks for any feedback x

OP posts:
Trooperslane · 11/05/2015 07:22

So sorry. Just been through something similar and trying to get my head clear enough to begin making decisions.

No advice but Thanks for you x

Stinkersmum · 11/05/2015 08:26

Didn't want to read and run. I've nothing really to add but Flowers. I love your positive forward thinking outlook though. It's awesome. Good luck to you.

farfallarocks · 11/05/2015 08:52

So sorry to hear of your loss, could you try another round of IVF with PGD screening first? It sounds as though you produce a good number of eggs if you have embryos to freeze so this could be an option for you?
Along with the Harmony test at 10 weeks which can give you a definitive yes/no answer on the main trisotomies?

Big hug to you

Lamaitresse · 11/05/2015 09:11

So sorry Gabrielle, how incredibly sad. This must be a terrible time for you, and I can understand why you're looking for a bit of hope.
I lost a baby in the second trimester due to chromosomal problems. He was incompatible with life. I too was terrified that we would never be able to have a healthy baby after that, but we did. I have to be honest and say it was a struggle, but thanks to IVF we did go on to have a healthy baby girl last year.
The pregnancy we lost wasn't an IVF pregnancy, but I would've thought that there was as much chance of having a baby with chromosomal problems naturally as there is through IVF. We were just terribly unlucky.
Can I ask whether you have had chromosomal testing? Sometimes they do it as a matter of course before embarking on IVF. Ours were tested, and were normal. The doctors advice was that it was bad luck and that we should carry on trying. We didn't have any PGS/PGD to have dd, we just hoped to goodness that she would be fine, and she is.
I will be thinking of you. Just give yourself time. I'm not sure I should say this but I am only now starting to come to terms with losing our baby, and it's been five years. There is a hole in our family where he should be, but as sad as it is you do learn to live with it Flowers I managed to get through it much the same way as you are doing - by looking to the future. Good luck x

bronya · 11/05/2015 09:14

Time heals but so does having a live healthy baby to love and cherish. As said before, can you get some v early screening this time round?

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