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RESPONSE trial thread

984 replies

Marchgirl · 04/05/2015 19:50

For anyone who had joined or is thinking of joining the RESPONSE medical trial for recurrent miscarriage

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17
clairemorgan81 · 15/05/2015 10:58

choccy you lucky lady -enjoy Smile

still spotting so def the start of af. roll on next month .....err not I'm dreading it, I get sick of the whole thing tbh. ttc is exhausting!! literally!!x

Indiedog · 15/05/2015 11:35

That's great news Louise, what a picke your bean gas been!! As choccy said, things can even out pretty quickly over the next few weeks, and as you said, it's nothing to get hung up on, so yipeeee.

Choccy, I need to holiday shop too. I had a belly before BFP, now I can't hold it in. Floaty clothes all the way for me!!

LouiseM1987 · 15/05/2015 13:08

Thanks ladies I'm still in shock ! Tho last night I woke up as my boobs were killing me!
Claire ttc is a ball ache it stops being fun and more of a Military operation !
Very jealous of holiday shopping I want to book somewhere for after 12 weeks.
Xx

Kazz2112 · 15/05/2015 13:12

How far are you now indie? I need to check a few things... Is cycle day 1 the day of AF? And if I had my AF last Friday do I start ov testing this Wednesday?

philippa88 · 15/05/2015 13:57

Yey so happy for you Louise!!! :) bet that's made you reassured!

I tested this morning and the test didn't work lol.. Will try again tmrw and see if that brings anything!

Had to go in for routine 3 month bloods last night, interesting the bloods are sent to York for testing! I guess at least a little part of me is going away for the weekend unlike some other lucky people.. No names, choocy!! Enjoy :) x

Kazz2112 · 15/05/2015 14:13

Even better Philippa they then get sent to the USA! That's why I couldn't have mine taken the Friday of bank holiday. International travel!!!

Indiedog · 15/05/2015 15:42

Hi Kazz, I am 10 +3. I am on my last lot of injections, and I have my 12wk scan next Friday, but it will be 11wks5 as we go away the Monday I would be 12 xx

LouiseM1987 · 15/05/2015 17:15

Indie have you had your 10'week scan this week then ? How exciting !
I know when the response team from America came to the UK I was being randomized so i was introduced and I did ask if we could go to America but they just laughed at me :( ha x

girliesaints · 15/05/2015 17:21

I received my dates for 10 & 20 wk scans today which has freaked me out given the scan this week. I've hidden them in drawers for the moment. However very exciting for you Indie x

Joy2713 · 15/05/2015 18:30

Do they do a 10 week scan? Though it was just the 8 then 12? I also got my 12 wk scan 20 wk dcan through the post and it was abit of a shock tbh but J did warn me xx

LouiseM1987 · 15/05/2015 18:30

Fingers crossed girlie!

Do you not get a 12 week scan where you are ? Xx

girliesaints · 15/05/2015 18:43

Sorry meant 12 & 20 wk! J did warn me but I had already received them. To be fair DH did hide them from me for a few days as I've had bad experiences getting scan dates for precious MC on the day or day after the MC has been confirmed.

LouiseM1987 · 15/05/2015 18:52

Do you not get a 10 week scan thru the trial tho ? We have a 6 week (7 week if the 6 week isn't good) an 8,10 and 12 week. Then the official 12 week and then 20 week, we don't get our 12 week until we've seen the community midwife person. It's so strange how different places work... Are you down south ? I can never remember who's up north and south sorry xx

clairemorgan81 · 15/05/2015 19:21

having a rubbish day firstly my friend had a baby girl back in feb who was only 24 weeks, she was doing so well but got a bowel infection and has passed away today. so so sad I cannot begin to imagine how you deal with something like that.
then my consultant has just called me to say that my gammar gt results (relating to liver function ) is high. she repeated this test in April as the original test was high and she thought it might have been a lab blip but obviously not. I am practically tee total and its usually high in alcoholics she doesn't seem concerned but I'm a right worrier. it's not linked to miscarriages but I'm worried. then af showed up Sad. x

Joy2713 · 15/05/2015 19:28

No we dont get a 10 wk although i am trying to get one thru epu as most of my mmc have been round the 9-10 week mark so need the reassurance instrad of waiting till 12 weeks! If not might just get a private one! Thats in Southampton. Do you get 2 12 week scans then? Xx

Joy2713 · 15/05/2015 19:33

So sorry to hear about your friends baby claire! What truly devasting news xx

Indiedog · 15/05/2015 19:51

Claire, that is awful. I too can not imagine how you can even begin to deal with that. Thoughts are with you, and your friend.

As for your liver results, I'm not sure what one yours is, but mine were squiffy to start with, and they thought a lab blib, retested then ok, and now during the trial various levels have fluctuated above/below the averages but nothing taking the results into the concerned range. They will probably run them again!
She showed me my last set of blood results last week, as I used to work i labs and it intrigues me. My BUN test was low, so I looked it up and apparently that's normal in pregnancy.
Try not to worry, and just let them guide you. You are being monitored more on this trial at least.

Xx

Indiedog · 15/05/2015 20:05

Girlie, I did the same when my 12 and 20 wk scans came through. I tucked them in the draw. I've put the 12 wk up on the calendar, but not the 20 yet. I've got my first midwife appt booked now too, that's first week of June!

I'm still taking it in stages. Kind of landmarks to get to, so my next one is next Friday's scan. Then it will be going away to Spain and getting back in one piece.

Hope everyone else is ok, as can be, glad it's the weekend. X

clairemorgan81 · 15/05/2015 20:12

indie it was the gamma gt test but my liver function results are completely normal. I think she said normal range is up to 45 and mines 52 but when they were done in Feb they were 70 something. she doesn't seem concerned and said they wouldn't have even done these tests in uk but this American company do it.....what a day.
on plus side my twin sis has had a little bloody show tonight so she may go into Labour soon x

Indiedog · 15/05/2015 20:19

This is what I found Claire. I do seem to remember when I worked on the labs that ranges can vary. So if yours is 52, under this info you are only the tiniest bit over. I hope you don't mind me looking but this kind of stuff interests me. It is very worrying when you get told something's not 'normal', I was terrified, they asked me if I had all these symptoms, but I didn't. Turns out it was all ok. Try to put it to the back of your mind. They will keep an eye lovey. Xx

The normal range is 0 to 51 international units per liter (IU/L).

Note: Normal value ranges may vary slightly among different laboratories. Talk to your doctor about the meaning of your specific test results.

The examples above show the common measurements for results for these tests. Some laboratories use different measurements or may test different specimens.

girliesaints · 15/05/2015 20:23

Sorry to hear today's not been the best Claire. Big glass of vino tonight?

Joy, I had a private scan with MC 1 as I had a gut feeling everything wasn't going well and my GP wouldn't refer me. Went to a clinic in Bedford Place, which was reasonable x

Indiedog · 15/05/2015 20:28

Joy, there is also a place near Paultons park, over the road, call Window To The Womb.

clairemorgan81 · 15/05/2015 20:32

thanks indie I like to know the "ins & outs" of everything. she honestly wasn't concerned but she did say we 'll see what the next lot of bloods show. Surely it can't be that significant as she would do more tests or at least tell me to see gp?
no vino unfortunately girlie as I'm on alert for my sis as I will be looking after my niece and nephew when she goes into Labour x

girliesaints · 15/05/2015 20:38

Boo Claire!

LouiseM1987 · 15/05/2015 21:42

Oh Claire That's really sad :( I hope you and your friend are as well as you can be at this time.
Xx