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Conception

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Ehlers-Danlos syndrome TTC to avoid winter?

5 replies

myriadofsins · 12/04/2015 19:49

This is going to sound silly but my DH and I are looking to TTC soon. But I have Ehlers-Danlos syndrome (EDS) hypermobility type and my joints get much worse in Jan-early March in the cold/wet weather.

I'd like to avoid being heavily pregnant in these months so I don't lose my mobility completely. I was looking for some sort of chart I can pin to the wall that tells me when I should avoid TTC. All I can find are due date calculators. Anyone have some help when planning conception dates?

OP posts:
AbbeyRoadCrossing · 12/04/2015 19:55

I've seen reverse due date calculators where you type in the birthday you want (if you're lucky enough for that to work!) or you could use the due date calculator by typing in your LMP each month. Take into account that a term baby could be 3 weeks early or 2 weeks late too. Good luck

DaisyDuckSW15 · 12/04/2015 19:58

One of my friends has EDS and have birth two months ago. She was in her wheelchair for most of the end of the pregnancy. It affects people in so many different ways though. I have two younger friends with it too (sisters) and it affects both differently. So I do realise my anecdote about my friend giving birth in February is probably not that helpful for you. In terms of planning due dates, are your periods regular? I'd just manually work out potential due dates by counting forward 40 weeks after the beginning of each potential future period. Then re-adjust each month if your period isn't totally regular.

myriadofsins · 12/04/2015 20:28

They are super regular and I have been tracking my period with apps since 2010. Did your friends use her chair regularly anyway or did she get it only when she was pregnant?

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DaisyDuckSW15 · 12/04/2015 22:38

She used it fairly frequently. Not daily and not all day. But for long journeys instead of walking, then yes.

auxiliaryauroch · 13/04/2015 09:40

Hi myriad I don't have eds but I do have an autoimmune with full scale hypermobility across all joints. It sucks but not so much as eds. My theory is that pregnancy messes everything up because your body functions ^out of the ordinary* and you can't predict what it will do. I wouldn't plan too hard about timing as your body might just perk up for winter of you are pregnant. It may not but you really can't tell ahead of time (I became asymptomatic during pregnancy which my consultant said happens in a small number of people so that was totally unexpected!) I did become a lot more stretchy though but didn't lose my pelvis. Oh and remember you might just have a really easy birth presuming all stays in place properly until then! Grin fwiw I wore support braces for my commonest joints which pop out most often on days where I felt a bit tender/unstable and it worked well.
In short I'd say just go for it as soon as you feel ready. Don't plan around dates or times as you don't know how you will react or how long it might take you to fall pregnant in the first place! Best of luck!

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