First MN post! I'm 33, 5'8'', have lean PCOS, and am working on getting my BMI up - currently weigh 8'8'' (BMI 18.2)
I've never really had proper periods when not on the pill - could go 6, 9 months without a bleed. Have always been skinny - even at my heaviest I was barely into the 'healthy' BMI range of above 18.5, same frame as my late Mum who was a skinny size 8 well into her 60s. Had always suspected something might not be quite right with my plumbing given highly irregular cycle, so a few years ago I came off the pill to get myself checked out. Took 10 months before a period came on so that I could get my Day 3 hormone levels checked and get scanned etc - showed normal hormone levels but PCO.
I didn't know it was possible to be polycystic and be underweight - had always read it's associated with insulin resistance and being overweight, and the consultant at the fertility clinic pre-empted me with 'I know, you're not fat and hairy but you're still polycystic and have acne (when not on the pill) and don't have periods, you've got lean PCOS'
Anyway, v rambling intro post! I went to see an O&G consultant who specialises in PCOS to discuss plan for TTC - all a bit complex for me as I have epilepsy and also a spinal injury for which I take mega painkillers, both of which have quite significant implications on the TTC process, hence coughing up to go straight to the consultant.
He said I had to have minimum 3 months on prescription strength folic acid before I should come off the pill and we could start treatment (Clomid, starting 50mg), because the epilepsy meds double the risk of birth defects including spina bifada, so have to take the full 3 months of the 5mg folic acid before beginning TTC, currently into month 2.
I asked him about weight and he said really needed to be at an absolutely minimum up to a BMI of 18 (at the time I was more like 17.5) as being underweight significantly reduced chances of treatment working - both getting and staying pregnant - and really I needed to be aiming for 18.5.
I think some NHS trusts specify a minimum BMI of 19 to fund IVF, this is private treatment, and he said my BMI was in part low cos of my height and natural frame, and that it's a blunt tool but the general point of needing to be not underweight was a valid one.
Trying to put the weight on, don't get much sympathy for struggling to get heavier, but I do really find it hard. But the consultant is head of reproductive medicine at Barts Hospital and knows his apples & oranges, so I'm trying my best to do as he says to give myself the best chance once starting on the Clomid. So yes, weight absolutely does come into it, according to my Doc at least!