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Worried about post c-section periods

6 replies

Mum415yrNew9mo · 26/10/2014 05:18

Hi! So background:
I had an emergency c-section after 21hrs of labor (2.5 were active labor but he was too big / my pelvic opening to small to birth him vaginally) about 9mo ago. Since then, i've had about 2 full periods and some irregular spotting at most. After giving up on breastfeeding due to low milk production, I began taking hormonal birth control at about 3mo postnantal. At that time I was told by my OBGYN that the low menstruation was probably due to those pills. After experiences a resurgence of my (believed to be hormonally related) migraine condition, I had an IUD inserted about 2-3 weeks ago when i should have been menstruating. I was told to expect the procedure to inspire my menses, but it did not - I have had some spotting but very little.

Now:
In addition to what feels like perpetual bloatedness, I began to have some abdominal pains at night when lying down. I am concerned that something may be going on as a result of my c-section, particularly because I had a history of multiple miscarriages before my son was conceived.

My question:
Should I be worried about a condition like Asherman's syndrome, or something else, or am I being a hypochondriac?

Any advice would be greatly appreciated. I am a recent transplant to an unfortunately rather backwater town, and they do not seem to be particularly responsive to patient's concerns (like when in the 8th month I began warning them that I was pretty sure my son was going to be huge and they ignored me, which lead to some pretty nasty birthing distress for both of us) nor up-to-date on more recent medical advances. I can't imagine that what i'm going through is unique, so I'm hoping someone out there has had a similar enough experience that they can give me some advice.

Thanks in advance!

OP posts:
Findingthisdifficult1234 · 26/10/2014 05:57

I was worried I had ashermans syndrome after a D&C and did alot of reading up on it. Given that your periods street irregular, you have light spotting, and you get stomach cramps mid cycle- you could very well have Ashermans syndrome. Definitely go to your doctor to get the ball rolling on a referral.
Or if you can afford to go private there's a doctor in London who specialises in ashermans who can diagnose using a specialist 3d scanner. His names Adrian Lower.
Good luck and all the best

Findingthisdifficult1234 · 26/10/2014 06:01

*are not street!
The cost for the Appt with Mr Lower is about £500 (including the consultation and the scan) least that way you would know quicker if treatment was needed. This is what I was going to do but then luckily the month I booked the appt I fell pregnant.

Mum415yrNew9mo · 26/10/2014 06:37

Thank you - the more I read, the more I feel justified in feeling worried.

Unfortunately I am in the States, and specifically moved to one of the high poverty, low technology states from just having been in one of the three most medically advanced cities in the country (ah where the jobs take us).

I'm worried that there may very well be no one around us who has a clue - I just found out on Friday that there are only 5 geneticists in the entire state (found that out trying to determine if my autoimmune disease had been passed on to my son - their attitude was "well he's not sick now so why worrd?"!!). I can't imagine they have any specialists in what from the lit seems to be a rarely diagnosed disease. But, one can only try!

Thank you!
(And congrats on the pregnancy!)

OP posts:
Mum415yrNew9mo · 26/10/2014 06:38

(Sorry - worry, not worrd - guess I should have spell checked before hitting reply!)

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Findingthisdifficult1234 · 26/10/2014 07:17

Oh okay, that's ashame about the medical situation you are in :( it's so frustrating when you've done all the research and feel no one is listening and wants to take you seriously. There are American doctors I've read about on the ashermans website that apparently specialise in Ashermans but I'm not sure where they are based.
Be persistant and go back to your doctor and try get a referral (or does it not work like that in the US?)
Hope your ok and thankyou for the congrats, still early days so I'm very nervous!

Mum415yrNew9mo · 26/10/2014 07:33

We do have referrals in the US, yes. But if the nearest doctor who knows about the condition is the next state over or further, I could be looking at a cost prohibitive trip just for a consultation.
To give you scale, there is one real city in this state and its an hour and a half away; the next nearest real cities are 4 and 6 hours away, and they're not much better than the one we're "near". The city we moved from (the one with cutting-edge medicine) is 19hours away. While the referral might help with the copay (the amount you have to pay, regardless, for just seeing a doctor - usually less than or equal to $50) and deductible (the amount you have to pay before insurance will kick in at all - it turns over annually, so even though we've met for this year because my son's birth was so expensive, as of Jan 1 we'll be back to paying out-of-pocket for any tests, treatments, etc. until we hit that magic number again) it definitely won't pay for travel or time off from work.

(Our healthcare system here is a bit barbaric, I'll admit, which is why I keep voting to have a system more like the UK's or Canada's. It makes no sense to us, let alone someone not subjected to it.)

Re: the pregnancy -
I understand the worry, I was scared every day when I was pregnant with my son. When he was big enough to kick, it was vastly reassuring, though every time he fell asleep in there I'd freak out. Despite everything, including his mom's paranoia, everything turned out Ok.
Stress is the enemy, so even though you're going to want to worry, try not to - take a deep breath or three, eat something yummy or have some nice caffeine-free tea (or a milkshake as was in my case, but then again I had morning sickness all through and lost weight the first two trimesters) and try to relax. :)

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