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TTC with PCOS - what's your experience? (Potential PCOS diagnosis)

10 replies

idlefolly · 21/10/2014 12:02

Hi all,

After my AF taking nearly 14 weeks to return after implant removal, and blood test results that may suggest PCOS, I have a pelvic scan on Thursday to investigate further to see if I do have PCOS or not. I'm really nervous and just wondered what kind of experience people have had when TTC with confirmed PCOS (hopefully to put my mind at ease rather than worry me more!). I know that it doesn't mean I won't be able to conceive but that it may take longer.

I'm not overweight and have no other symptoms besides the lack of AF (have now had AF but unsure of cycle length as of yet). My testosterone and levels were normal, the only levels that were amiss were that my levels of FSH and LH were the wrong way round (although I may have been ovulating at the time, which would explain it).

Any comfort you can give me would be very much appreciated! Thanks.

OP posts:
idlefolly · 21/10/2014 15:00

Anyone?

OP posts:
Stupidhead · 21/10/2014 15:05

I was diagnosed 17 years ago, like yourself I wasn't overweight and the only clue were my weird periods. I had one cycle of Clomid and got pregnant, the result is my baby who's 16 yrs old!

I then had two more children both conceived naturally. I hope you get help and good luck x

idlefolly · 21/10/2014 15:52

Thank you stupidhead that is reassuring and kind of you to comment. x

OP posts:
MrsTaylor35 · 22/10/2014 12:53

First of all, there are MANY causes for irregular periods, and women with irregular menstrual periods should be evaluated by a physician to determine the cause. PCOS is often diagnosed on basis of your symptoms. One of the hallmark symptoms is irregular periods or lack of periods. The current general criteria for the diagnosis of PCOS include the signs of excess androgens (male hormones) in the form of excess hair growth – or – blood tests that show elevated levels of androgen, Irregular or absent periods or Polycystic Ovaries.
Problem with the pituitary, thyroid or adrenal glands also needs to evaluate to rule out the reason for above conditions. Through the history, physical exam, and blood testing your physician will have enough information to diagnose PCOS or determine another cause for your symptoms.
It is important to understand that not all women with irregular periods have PCOS. An experienced specialist (may be an endocrinologist) can help you to sort out the issue.

Mrwillywonkasbitch · 22/10/2014 14:01

I've had PCOS for years I got pregnant when I stopped trying, told my DP that we weren't ever gonna have children so what was the point and wham I now have 2yr old twins

idlefolly · 22/10/2014 22:18

Thanks for your replies, all very reassuring. My blood test results showed my androgen and testosterone levels to be normal and I have no symptoms other than it took almost 14 weeks for my AF to return after implant removal (I'm not sure if I am regular yet as not due for a couple of weeks) and that my levels of FSH and LH were the wrong way round (although would be within normal range if I was ovulating). I have the scan tomorrow afternoon so quite nervous and hoping for good results. Thanks again for replying.

OP posts:
fourthandfinal · 22/10/2014 22:29

PCOS diagnosed at 19. DD1 conceived after first month on Metformin at 26. DD2 conceived after two months on Metformin at 28. DS1 conceived after 9 months on Metformin and first month on Clomid at 32. DC4 conceived in three weeks of no condoms in a "we need to start clearing the attic of the baby stuff but that feels like a rather big task so let's see what happens if we just have a quick shag instead but seriously what are the chances???" at 34 - SURPRISE!!

Lots of success stories around so just try and stay chilled and enjoy the trying (I know it's easier said than done!!). x

TaurielTest · 22/10/2014 22:43

Www.verity-pcos.org.uk have lots of information and support, if that turns out to be your diagnosis. I found it very helpful when I was ttc with pcos.

AnnaBanana25 · 22/10/2014 22:47

Was trying for over 2 years . finally got to see a fertility consultant and was dagnosed with pcos mere weeks after I would have concieved ... The little seed was so tiny it wouldn't have come up on the scan. I was about to be prescribed clomid but had managed naturally within time. Good luck to you.

Lilwelshyrs · 23/10/2014 12:05

I have PCOS. I'm on metformin which is a pill for people suffering type 2 diabetes which can be common with PCOS. I don't have diabetes but it's been amazing helping me lose weight (another side affect of PCOS is the inability to lose weight easily - I'm a horse rider and ride every day, eat well, walk two dogs and still struggle!!). The metformin also helps regulate ovulation. We've been TTC for 2 years and now I've finally found a doctor who I like and is being really helpful.
The next step is usually a drug called Clomid which can be used with the metformin. Both a pretty successful. I've only been on the metformin for a few weeks, but am hopeful :)

I've created a post on the Infertility board about PCOS and a few people have written their experiences which you might find helpful. it'd be really nice if there was a little support group of people in the same boat who can all chat and keep each other up to date with progress :)
It's nice to know you're not alone :)

C x

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