Factor V (5) lieden - blood clotting issues

[Itscurtainsforyou]

Hi there - not sure if this is the right place to post.
After three losses (2 early, one at 23 weeks) I've had some tests done and they've shown indicators for Factor V Lieden - basically a blood clotting disorder.
I'm waiting for an appointment with a consultant (either haematologist or obstetrics, not even sure which at this point) to discuss what can be done to reduce any blood clot risks/reduce chances of miscarriage again. From Dr Google, it looks like either aspirin or heparin injections (which I don't like the thought of, but...).

Does anyone have any experience of this? Or success stories? I have one DC (4 year old) and after a fairly routine pregnancy I never dreamed that I'd be in this position.

TIA

Hi Itscurtains - so sorry to hear about your losses. I have factor V lieden too, I take dispersible aspirin (75mg) one daily, as advised by my DR. As I have had 2 clots before I will have to go onto the heparin injections when I get the BFP. I saw my consultant (haematologist) earlier this year and she advised the aspirin should help with maintaining the pregnancy, until I switch to the injections as factor v has a high risk rate for mc. The injections aren't really that bad, as I use them why I fly, you will get used to them, if your consultant thinks you need them, but every case is different and as you have not had any problems before aspirin may be all you need. Good luck,

I've got the same issue, but it was only diagnosed after 4 miscarriages. After the diagnosis I became pregnant with twins. I took aspirin and daily heparin injections and gave birth to my beautiful twin girls at 36 weeks. There were lots of problems through the pregnancy and numerous P.V. bleeds but the girls were born with no problems at all. I hated the idea of daily injections but you really do get used to it!

Thank you for your messages, glad I'm not alone (although would rather none of us were in this position.

I already have diabetes, so I'm hoping that if I have to have heparin it will be as straightforward as insulin injections.

It sounds like aspirin is a good start, so once I've seen the dr I think I'll crack on with that.