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Chronic pain

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Original poster

Can we make a Fibromyalgia support thread 🙏 ✨️ ❤️

78 replies

sunshineandkindle · 30/08/2025 06:39

Hello I've been recently diagnosed wi4h fibromyalgia and hypermobility and looking for other people in a similar boat.
I'm not on Facebook so can't join a Facebook group.
Anyone else around here with fibromyalgia that would like to start a thread for support?

OP posts:
chunkyBoo · 04/04/2026 12:40

HelloDaisy · 04/04/2026 07:30

Morning All, can I please join this thread?
My dd is 19 and has recently been diagnosed with fibromyalgia so I am looking at ways to help her manage the pain and fatigue. Her pain is in her hands and wrists which affects daily life a lot, uni, weekend work, home etc…

Dh has rheumatoid arthritis so originally doctors thought it could be that but all tests came back clear. What else could we test for?

Consultant was great with her and said they were reluctant to prescribe meds, steroids or antidepressants, due to her age but we are struggling to find anything to help.

Does she have anything like psoriasis? Just wondered too what her inflammation Parker’s are like? Not that it’s a good way to diagnose PsA as it’s often negative, though I always have inflammation. My hands and wrists/forearms suffer with tenosynovitis too.
i also have fibromyalgia …. Thankfully I’ve been approved for ill health retirement at 54, so just finalising the paperwork etc

chunkyBoo · 04/04/2026 12:43

Megsdaughter · 28/01/2026 14:40

I had a pleasent surprise today. We have travel insurance with our bank account.

Looked at what was covered and Fibro isnt so had to phone them to inform them and find out how much it was going to cost me.

The customer service guy was lovely. Very polite and easy to understand. He went through everything with me, added Fibro to my profile, added all my medications and said thats fine your covered now. I asked hiw much it would be and he said nothing!

So that was an expense I was expecting that turned out not to be!

Thing is there’s nothing medicines really can do about it and it’s not like you’d need potentials of say specialist drugs or extra hospital care like say someone who has cancer or who has had a stroke so it’s good it was free IMO

HelloDaisy · 05/04/2026 08:26

chunkyBoo · 04/04/2026 12:40

Does she have anything like psoriasis? Just wondered too what her inflammation Parker’s are like? Not that it’s a good way to diagnose PsA as it’s often negative, though I always have inflammation. My hands and wrists/forearms suffer with tenosynovitis too.
i also have fibromyalgia …. Thankfully I’ve been approved for ill health retirement at 54, so just finalising the paperwork etc

Show quote history

No inflammation markers at all, in fact no tests revealed anything really apart from low ferritin and B12 which she’s having tablets for.

She does have sensitive skin and sometimes has a rash under her chin but we haven’t found a cause yet. It seems to just appear and then vanish.

The only symptoms she has are pain in hands and wrists with occasional swelling and tiredness.

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