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Chronic pain

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How to obtain fibromyalgia diagnosis -GP's are useless

26 replies

BernardButlersBra · 27/08/2025 12:49

For the past few years l have been having pain in my elbows and shoulders on and off. Sometimes in my wrists but that is rare. It went to my GP summer 2023 about this, they referred my to rheumatology and l had a few appointments / tests with them. They don't think it is a rheumatology issue and instead think chronic fatigue or fibromyalgia so referrals to those services. They send 3 letters to my GP asking them to do this but they don't do it. I have 3 appointments spread over about a month and in which appointment they agree to do the referral but either don't or include the wrong blood results. Eventually they do the referral correctly to the local chronic fatigue / fibromyalgia service towards the beginning of this year and it is accepted. Over 18 weeks go by which is the time limit set out in NHS constitution and l then contact the local chronic fatigue / fibromyalgia service who say they most likely won't be able to see me until 2027. GP's agree to refer to my to another local chronic fatigue / fibromyalgia service, l get a phone appointment and attend it but it actually rheumatology at a different hospital and they haven't bothered to include any test results. That was nearly a month ago, l have chased the GP's about an alternative provider, today l got a snotty e-mail back telling me to source my own NHS provider! Also to source the referral form.

There are lots of other twists and turns with ball dropping by my GP but this is a summary. I am unsure what to do next. Obviously l have a complaint open at my GP's due to the terrible service. Why would l be sourcing the alternative provide?!

OP posts:
BernardButlersBra · 15/09/2025 10:09

I have contacted by ICB, they have clarified that it is my GP's responsiblity and not mine to source an alternative provider 🙄. GP are now ignoring me since l informed them of that, l am going to give them a few more days and then l am going to escalate my complaints to the ombudsmen. I am out of patience now, luckily l have timeline of the various twists and turns e.g. submitting the original referral to the wrong hospital, the GP telling me to "stop going on", ignoring letters from outpatients, wrong blood tests done numerous times etc.

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